Sick again - more time in RCH

[~me~]

That really sounds like an emotional roller coaster you on
I was reading an acticle in Melbourne's Child that sounds identical to your situation. I have just rang them to see if they have a copy of the article, it may be totally different to what is going on, it just sounded familiar. (they are hopefully going to get back to me).
I can't recall what the outcome was.. I think it had something to do with reflux, quite an unusual from of? The little boy in the article was quite old (Primary School age) when they eventually worked out what it was.
I hope your situation improves and the ENT can also shed some light on what is going on.
Is your DD old enough to articulate what she is feeling when she eats?

[Olive]

heather was that last month?? i remember an article too, it was reflux, is that the one? the boy was older too

[~me~]

Yes I am pretty certain it was Olive. I just edited my post. I hope they get back to me as SJL's situation just sounds like the boy in the article.
The article was in the April issue, it was called Feeding Frustration and they are going to email it to me in PDF format, am I allowed to copy it to this thread Olive when I receive it for SJL to read?

Edit: I have been emailed the article..SJL, if you would like to have a read of this article I can email it you, PM me your email address. It does sound similar to what your DD is going through.

[SJL]

Thank you. My daughter is almost 16 but intellectually she is only about 1-2 yrs on a good day.

Heather I will message you, it would be great to read. I saw our GP tonight and he doesn't seam to think that is the issue, even though he did say to continue on the meds the pead has put her on (Losec/omeprazole) for reflux issues, I dont know if that is the issue because normally if she is feeling nausous she screams until she vomits and she hasn't been doing that.

I am really at a loss at the moment, she is slowly improving and fluid have improved a lot since getting home but still minimal food. My biggest concern is what happens next time and the time after that, we have to get a permanent resolution eventually.

[SJL]

Thanks for the article. Interesting.
I am not sure if it is the same but I will consult my good friend google to read a bit more about the conditions mentioned.

I think given she is 16yrs old (with the intellect of a baby) I asume we would have picked up on it by now if that is the problem but then given the disability and her inability to say how she feels maybe not.

[Amity]

SJL I'm so sorry to hear about your daughter. I hope that things improve at home. Thinking of you.