i would be looking at finding support networks for parents of children with the disorder - either locally or online - to get in place coping mechanisms for when things do get bad, to find people that understand how you're feeling etc.
if you feel that your anxiety is going to become an issue, speak to your GP, maybe get some counseling to help with working on coping mechanisms
for me, i think it would depend on what the chronic illness is. i've had a high level of exposure to some things (friends with Crohn's and was being tested for it myself) - so i don't think i'd be stressed about it. i'd be seeking out assistance with how to address the issue both short and long term with the child, family, friends etc. what diet is going to help, what triggers will make it worse. teaching the child from as early as possible why certain things are a no go - making them aware, making those who may have reason to be responsible (grandparents etc) aware as well.
i guess a way to try and not let negativity consume you is to focus on the positives - you have a child that isn't currently unwell. you have a diagnosis, so you're not living in fear of what MAY be wrong - you know what's wrong, so you can be proactive in managing it etc. Yup, there will be days where things aren't going so well, and you'll feel bad - but if you're proactive now in learning as much as you can about management of it etc, it will help. and build your support network now while things are good - so they're there if/when you're having a tough time
I found joining a support group for parents in exactly the same position to be extremely helpful. For me it was the national deaf children's society, and it gave me a chance to speak to other parenta who had been where I was and come through the other end. I also spoke to adults who were diagnosed as young children which was a brilliant reassurance for me. They also helped me go through the grieving process because when you find out your child has a long term illness or disability there is often a period of profound grief as the diagnosis sinks in.
I also found being very proactive helped me. I learnt everything I could, asked about a million questions, and became an advocate for my child again. Big hugs, this cant be an easy time for you
Wow! I couldn't believe when I logged on - there were so many replies! Thank you!
Thank emc2 - I will look in to Crohn's and Collitis and try to find a Support Group. I am keen to find one that has parents of kids with the condition.
You are right Traveller about feeling like greiving. I am keen to 'move on' from greiving to coping!!
Brigsey's girl -thank you for your reply as well. I was thinking about what you were saying about my negative thinking and I think I should have a positive statement planned to repeat to myself when I start thinking the negative type of thoughts . Maybe I can re-program myself!
And Thank you Cheshire, I will have a browse in the IBD Support section.
Thank you for such thoughtful and promt replies! I felt really comforted to read them.
Starlet
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