i would be looking at finding support networks for parents of children with the disorder - either locally or online - to get in place coping mechanisms for when things do get bad, to find people that understand how you're feeling etc.

if you feel that your anxiety is going to become an issue, speak to your GP, maybe get some counseling to help with working on coping mechanisms


for me, i think it would depend on what the chronic illness is. i've had a high level of exposure to some things (friends with Crohn's and was being tested for it myself) - so i don't think i'd be stressed about it. i'd be seeking out assistance with how to address the issue both short and long term with the child, family, friends etc. what diet is going to help, what triggers will make it worse. teaching the child from as early as possible why certain things are a no go - making them aware, making those who may have reason to be responsible (grandparents etc) aware as well.


i guess a way to try and not let negativity consume you is to focus on the positives - you have a child that isn't currently unwell. you have a diagnosis, so you're not living in fear of what MAY be wrong - you know what's wrong, so you can be proactive in managing it etc. Yup, there will be days where things aren't going so well, and you'll feel bad - but if you're proactive now in learning as much as you can about management of it etc, it will help. and build your support network now while things are good - so they're there if/when you're having a tough time