Hi I have just seen this post.. I have an extremely complex congenital Heart condition that is often shortened to TOF .. Pm me please if you would like to know more. Way too much to post here..
Skybie, my SIL has it- pm me if you want her story, she's 32 now and just had her 3rd op. First was at 8 weeks, then 8 months...then at, well 32. She has just received a new valve and all is terrific. Even with the condition she is an outdoor sports queen, a great surfer, rock climber and runner.
But yeah, pm me if you want the full story.
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