thread: when it's not nappy rash...

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  1. #1
    Registered User

    Dec 2007
    Hork-Bajir Valley
    5,722

    (I was going to type this last night, but I ended up in bed with a fever...so I hope I do remember it all..)

    But we saw the dermatologist yesterday afternoon. We sat down (and by we I mean I did...Spock was running around and climbing on everything and pulling out specimen tubs and sunscreen samples...and everything else she could get her hands on) and I went through the story with chick derma (as she will be refered as), she then said, lets have a look (and later told me she already had an idea in her head what it would be). so I caught Spock and put her on the bed and showed her. and she paused and goes "oh, so not what I thought it was, hmmm" she then calls in the other derma (known as dude derma =P) and they both have a look, throw a few ideas around, looke in some text books, ask some questions etc... chick derma took photos.
    They think it might be something called Granuloma Gluteale Infantum. But that is caused by steroids (mainly topical), and Spock has never had steroids, so they were a bit stumped...and when checking up the treatment, it was 'stop the steroids and it will clear up'. so they weren't sure. They took some swabs to see if there was an underlying infection that was maybe too deep for the treatment I had tried.
    so game plan is, for me to use a different brand of anti fungal cream. dude derma told me to change to disposables, chick derma said it wouldn't make a difference, because I did have Spock nappy free over summer, so really if it was the nappies we should have seen some change. and if it was an allergy to the nappies or washing etc... it would be more spread.) but dude derma said just try, that way we know for sure there isn't reinfection etc... so I agreed to buy ONE box, and no more =P (it sounds really crazy and stupid but this has gotten me the most upset...) chick derma will also send photos to peadiatric dermatologists in Sydney and Melbourne. and I am to call back in a week. by then she will know if someone else has an idea, we will have the result from the swab, and see if there is any change with the different brand cream.
    after all that the next step is a biopsy =( and she told me to start thinking if we can do it with just a local anethestic, or put her under a GA =*(. my poor girl.
    The only good thing is that they are sure it isn't immune. because she is such a happy healthy active thriving thing. they were amazed she only turned 1 last week and was running and climbing etc... they said if it was an immune thing she would be sick.
    They gave me information on GGI, the photos don't look anything like it... and all the information says that there have only been 30 cases reported worldwide! this is my first time on the computer so i haven't had a chance to look into it more.

    and you know what really has me down and depressed...her pants keep falling down cause there is no cute fluffy bum to hold them up =**(

  2. #2
    ♥ BellyBelly's Creator ♥
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    Feb 2003
    Melbourne, Victoria, Australia, Australia
    8,982

    Holy cow, thats one bizarre case hey. If anything, you should feel PROUD of your efforts - you have done a superhuman effort trying to get to the bottom of this. Where I live there are a significant number of commission homes and some days I just feel sad seeing and hearing what I do. Gosh, if only every one of those children had a mummy like you, I might like living here. Give yourself a huge pat on the back mummy. You'll get to the bottom of it and she knows you love her to death. Go easy on yourself, okay? x
    Kelly xx

    Creator of BellyBelly.com.au, doula, writer and mother of three amazing children
    Author of Want To Be A Doula? Everything You Need To Know
    In 2015 I went Around The World + Kids!
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