when it's not nappy rash...

[Mrs O'M]

How awful and frustrating for you! I agree with Rosey, be a pest until you get some answers!

[willow5]

That is crap! I hope they pick up their game. What was the point of the photos if they thought they had a diagnosis? Sounds like an oops we forgot thing to me

[misty]

Hug.
Sadly, that is the kind of medical care I have come to expect.
I would ask if maybe it might be dietary/ allergy related. I say this because all my kids have allergies an intolerances (we are still on waiting lists for the specialists to find out what for specifically) and they present with skin rashes that are completely untreatable. Chantelle currently has it on her cheeks, but also gets it as a nappy rash too. But it isn't a real nappy rash, it is when whatever she is reacting to is touching her skin on the way out. We have no idea what is causing it. We do know it is from some kind of allergy / intolerance though. And because my kids seem to react to 'basic' foods, an each of them different foods trying an elimination diet for them is all but impossible (ir, Nate cannt have more then a tiny bit of dairy, only certain types of bread, only one peice of fruit a day, etc; whereas Angel can eat all of that stuff but cannt have cheap tomato sauce (only Heinz in small quantities) and no other sauces - we believe her problem is a specific preservative, but no idea which one).

One thing we find with Chantelles nappy rash is that it is usually best to avoid the anti fungal creams and zinc and barrier creams, and just use savlon antisceptic (to prevent infection of the sores) until her body has a chance to sort itself out. Don't use the other types of anticeptic cream though, they sting.

[~TT40~]

thanks girls. I think I will ring them to keep them on it.
thanks Misty, I thought allergy but not food. and yea im going to stop everything now cream wise. none of them were doing anything anyway.

[~TT40~]

the other thing I thought of is maybe it is a bite... but no idea how you work that out

also my dad said maybe if they aren't stressed it might mean everything is ok...

[willow5]

Hopefully your dad is right

[OceanPrincess]

Oh wow, that is not cool Sounds like a bit of runaround. Does it seem to bother her, when she's nappy-free?

[Arcadia]

Does the idea of something in her wee burning the area sound plausible? Both mine have had bad skin reactions on their bottoms when I eat certain foods and breastfeed. For ds it was thrush when I ate wheat or sugar and dd it was any amount of chili which would cause acid poos. They were in the bum cheeks though and obviously related to poo. Just thinking if it could be something in her wee? Do you take any medications or vitamins and breastfeed?

I'm sorry you haven't received the treatment you and your dd deserve.

[~TT40~]

thing is how would we narrow it down? cause it has been there for so long, not improved, not gotten significantly worse either, how would I even start to work out what food? cause it would be something we have all the time

[luna moth]

How frustrating. And disappointing.

I don't honestly think its's food - it wouldn't be so localised and long term. Hope you're able to ditch the sposies!

[~TT40~]

already got a friend who has a girl a day older than Spock who I'm giving the rest of the box to =)

[2CheekyMonkeys]

Has there been a blood test done? That could point out any allergies or underlying infections? Poor bubba.

[~TT40~]

no no blood test... I thought that and a biopsy was where we were headed next. because I thought the last week would be everything non invasive getting done first eg showing phoyos to other specilists and swab results etc... because we did both agree we want to do everything possible to avoid invasive things like biopsy etc. . but in saying that if thst is what neefs to happen to get answers....we will do it

[2CheekyMonkeys]

As much as a blood test freaks you out and isn't pleasant it's over pretty quickly and at least you could have some answers. A regular gp could arrange that. My dd2 had a blood test at 12 months and one at 4 years. The older she was the worse her response was . :-(

[~TT40~]

yea. im not sure where to go to from here. but might take her back to gp next week. does anyone know what tests to ask for?

[2CheekyMonkeys]

The gp will know. I think ours was a full blood count and a RAST which is an allergy test. There was probably something else too but can't remember.

[Pholi]

TT40, what an ordeal for you both! Good on you for persevering. It's not easy, I know. If you don't get any joy from the dermatologists, you could consider asking your GP for a referral to a paediatric immunologist, as they will have a raft of different experience and might have new avenues to explore.

[Snacks]

I agree, if the dermo's aren't doing it for you, I'd get ref to a paed. Even if you have to wait, it'd feel better to be working towards *something*. So sorry for you and your girl. What a stressful time. Glad it doesn't make her uncomfortable though. That's a positive.