Sick of crying about reflux and why are Dr's so bad at treating it?

[shereejoy]

We have been on this dose for atleast 10mths of his life now, geez I never even thought it may not be working. He is fine in the pain department, well I thought he was. He doesn't sleep well at all during the day and at night it is a bit hit and miss, we could have 3 good nights and then it goes back to 1-2-3-4 times a night waking. But who knows it could be teeth too! His eating aint the best but I really just think he is fussy now and not a big eater because he has never extended his belly well enuf to eat like normal babies. I know for a fact the losec even on the lower dosage from 3 weeks to 3 mths didn't entirely work and then we found we did get some relief until 5mths and that is when things went hay wire. But we have been on the same dose for ages now. I remember my paed saying when the CHN gave us the losec and we finally got to see the paed at our 6 week checkup, that the low dosage she gave us (and I think it was 2mg/ml) was not at all high enough and that is when he put us on 30mg per ml.

I am hesitant to play with the dosage as I don't want to make things worse. For the simple fact that we have moved towns and changed paeds and she has not changed his dosage either, makes me think that she is in agreeance with our previous paed anyways.

What are your thoughts?

[scarlet121]

Thanks Caro, LOL

Sherrejoy,
The dose as such wouldn't change, only the amount you give him. So if you are giving him 3ml a day of the 10mg/ml compound you would give him 15ml a day of the 2mg/ml compound.

I totally understand what you are saying about not wanting to play with it, and I am not suggesting you just change it, but just ask some questions, first of the pharmacy and make sure they compound it to 10mg/ml and NOT 2mg/ml, honestly you would be the first person I have talked to who has it compounded at that strength and from what I know about compounds I would doubt that it would last out the full month, this could be why you are getting good and bad days so often.

Also on a dose that high, with FTT and from what I have read no other significant problems (pnemonias, apnea, infections etc) then it should be helping with his feeding, I honestly think that he is still in a lot of pain and that is why he isn't eating properly. My son Parker was very similar to your son, and it wasn't until he was about that age and I started asking questions that we started getting some results and he is no longer FTT although we still struggle with his weight some times.

I think that whole 2mg/ml and 10mg/ml may be confusing you, the dose would be exactly the same, it would just be the way the compound is made that could help out more. So you aren't playing with the dose, just making sure that the one you are on is working. I too agree with your ped that with those symptoms 30mg a day, would be a good dose for him.

If you don't feel confident ringing the pharmacy let me know which one you get it from and I can ask the pharmacist for you, just to check if they are doing it to regulation.

Again, I am adding that I don't think at this stage you should change the medication I do think it is working, I just beleive it could work better, changing the medication to a different type could make things a lot harder.

SSmiles, I am pretty sure that Caro wasn't saying it was ineffective just that the way some pharmacies make the compound is ineffective and the product doesn't work properly. For the record I love losec, it has truly saved my babies life (and he is no longer a baby, so sad, he is almost three)