Hi endo14,

I'm so sorry to hear of your painful journey with this terrible thing. I found out I have endo about 8 months ago now when my symptoms got really bad and 'something' was wrong.

I'm sorry I don't have any advise for you because it seems you've been doing most things available to you - laps, pill etc. But I'm curious - has all you endo been removed with laps? I had a lap with some endo removed, but all of it couldn't be becuase I had bowel involvement. I was put on a drug called zoladex for 3 months - it puts you into a menopause state - so takes away all your hormones (so endo can't respond). It is not a cure but it can settle it down for some people for a while. I guess this is one thing you haven't mentioned you've tried - but please know from my understanding it is a temporary bandaid and is not appropriate for all people with endo.

I've just thought of another thing - I've talked to a few people with endo now and they say that going to a natropath was the best thing they every did. It is not a quick fix but they say it helped them significantly over time. Also I've heard acupuncture and chinese medicine can help some.

TAke care of youself - sending you comfort wishes