Endo advice

[Niki1]

Hi endo14,

I'm so sorry to hear of your painful journey with this terrible thing. I found out I have endo about 8 months ago now when my symptoms got really bad and 'something' was wrong.

I'm sorry I don't have any advise for you because it seems you've been doing most things available to you - laps, pill etc. But I'm curious - has all you endo been removed with laps? I had a lap with some endo removed, but all of it couldn't be becuase I had bowel involvement. I was put on a drug called zoladex for 3 months - it puts you into a menopause state - so takes away all your hormones (so endo can't respond). It is not a cure but it can settle it down for some people for a while. I guess this is one thing you haven't mentioned you've tried - but please know from my understanding it is a temporary bandaid and is not appropriate for all people with endo.

I've just thought of another thing - I've talked to a few people with endo now and they say that going to a natropath was the best thing they every did. It is not a quick fix but they say it helped them significantly over time. Also I've heard acupuncture and chinese medicine can help some.

TAke care of youself - sending you comfort wishes

[YDI]

when was your last lap and how much did they find/remove? have you had more than one lap and could this pain could be adhesion pain? I had severe GI endo and used to get all those symptoms youd speak of. I still suffer side effects such as joint aches and pains, stomach pain (i had a double bowel resection) and i have been on synarel and hrt for almost 21months which i agree is a band aid.

[endo14]

Hey Girls,

Thanks for your replies. In a way its a comfort to know I'm not the only one going through this. (although I wouldn't wish it on anyone).

My last lap was approx 18mths ago and all endo was removed... apparently... As to the amount... I have always been considered to have a mild endo...?
I am wondering though if there is endo in my bowel... When af is in town and I have a bowel movement (sorry guys) the cramps afterwards are unbelieveable. They are so bad they make me feel like I want to be sick and I can't move when its happening, I just freeze on the spot. Does anyone else have this?

My specialist and I have discussed the drug/drugs that put you in a menopausal state. But I have refused them thus far... Both my Mum and Nana went through early menopause (nana especially at 32) and as I don't yet have children I'm a bit scared of messing with nature/tempting fate. Prob sounds very silly, but there you have it.

And now would you believe my specialist is closing her Womens Clinic to her own ill health
So once I have my files and refrences I need to find a new doctor... Good times!

I have tried accupunture and didn't have much luck there. But a natropath is something to look into, thanks niki.

Don't laugh but I am also trying hypnosis next week to help with pain management! lol!

[Aurian]

Hi endo14,

I'm sorry I don't have any advise for you because it seems you've been doing most things available to you - laps, pill etc. But I'm curious - has all you endo been removed with laps? I had a lap with some endo removed, but all of it couldn't be becuase I had bowel involvement. I was put on a drug called zoladex for 3 months - it puts you into a menopause state - so takes away all your hormones (so endo can't respond). It is not a cure but it can settle it down for some people for a while. I guess this is one thing you haven't mentioned you've tried - but please know from my understanding it is a temporary bandaid and is not appropriate for all people with endo....

I went through exactly the same situation, except I was on Zoladex for 6 months after my lap (and resumed regular menstrual cycles within six weeks of coming off it). So far, seven months since completing treatment and no sign of endo symptoms, also on a probiotic which has helped too...

Good luck with getting your symptoms under control, endo can be SO frustrating!