thread: Endo, blood clots & throwing up!

  1. #1
    Fluffy Guest

    Endo, blood clots & throwing up!

    Hey guys.
    Do any of you who have endo get ridiculous sized blood clots? And do any of you throw up when you are having a "bad spell"?
    I have been bleeding on and off for weeks now, and today the blood clots were HUGE. Sorry to be graphic, but it actually really frightened me. I have also been being violently sick too...does anyone else suffer in this way???
    (My 5th op is four weeks today...I feel like I am going out of my mind! For those of you who didn't read my first post, I have had endo for nearly ten years now and am thoroughly fed up!)
    Thanks :-)

  2. #2
    Registered User

    Oct 2006
    Perth
    3,299

    Hey Fluffy, welcome to BB. Before I had my lap and found out I had endo (2005), I would get huge clots with every AF along with intense cramps and pain. Threw up sometimes but not all the time. It's such an awful thing to go through I hope your next op is to be your last one and your endo improves, good luck xox

  3. #3
    Registered User

    Jan 2004
    3,903

    Welcome to BB, Fluffy.
    I use to have big clots as well, some that looked to be as big as the palm of my hand... it's a horrible feeling and sight isn't it I hope your next lap brings some relief for you.... goodluck

    Nic

  4. #4
    Registered User

    May 2007
    Out of my mind.... back in 10 mins.
    365

    Fluffy
    I have had times where I vomit due to the pain (well I think it is from the pain).

    These days my AF rules my life. I have to see where I am in my cycle to see if I'll be able to attend an appointment. In the past I have canclled that many appointments due to me being too sick to attend them on the day so now I just check my diary before makeing them.

    Alot of people do not understand what we go through.

    Take care
    Chris

  5. #5
    Registered User

    Sep 2008
    Sydney
    1,413

    Fluffy - I feel your pain! I throw up, faint, have intense cramps, back and leg pain and clotting when I get AF. Big hugs. I was put on the pill continuously so I didnt have to go through the madness every month, otherwise I'd miss out on work for days each month.

  6. #6
    Fluffy Guest

    Thanks guys - I really appreciate your feedback.
    I have also been put back on the pill to try and calm things while I await my op, but my symptoms have not improved.
    Today has been another bad day with the clots and feeling very faint and sore...4 weeks and counting!!!
    Thanks and big hugs back to you all :-)

  7. #7
    Registered User

    Sep 2008
    Sydney
    1,413

    Good luck for your op!

  8. #8
    Registered User

    Mar 2008
    North Northcote
    8,065

    sorry for posting so late after this thread started!

    yep, at my worser moments i would pass clots the size of my hand (in between throwing up all over myself and/or passing out on the bathroom floor).

    i too would have to plan my appts around my cycles as for about 2-3 days out of each AF i could barely leave the bathroom as i would pass sooo much out that it made pads (let alone tampons) completely useless (sorry if TMI!).

    i really commiserate with the pill not helping much. they couldnt even block the bleeding for me .

    that your next op goes well and provides you with some relief. such a hard and silent battle xx

  9. #9
    Registered User

    Jul 2009
    Shepparton Victora
    10

    Hey Fluffy

    I have endo & pcos, and i occassionally throw up whenever i get shooting pains. Also seem to whenever i get pain in the top of my legs, when i also usually collapse. I occasionally get blood clots but i dont have to have my period to get them! Im on the pill and get spontaneous bleeding. I dont know if this is "normal" but as im learning more and more about endo, i am thinking there is nothing normal about endo at all!!

    Best wishes for your upcoming op!

    Katrina.