Chris - sorry to hear about the pain. After some careful consideration and much investigation, I have decided not to do the synarel - at least for the moment as I am not having any symptoms and the side effects from the drug are terrible.
Yes it was the nasal spray that he prescribed.
Chris: oh man oh man. that does not sound good at all girl. i'm really sorry to hear it.
and you're so right, i think many ppl in my group of family and friends didnt quite realise the enormity of pain that endo can bring about. after i had DD mum asked how i coped in labour and i told her point blank that it was on par with an average O and AF pain. i *think* it was then that she really began to understand. i mean seriously you can't 'fake' passing out and throwing up. what course of action are you on ATM? do the GYNs have any clue as to what to do?
Ausgirl: i too had the opportunity to pass on the synarel. i guess i just counted myself lucky that at the time i wasnt too bad. and in all honesty it was the possible side-effects that totally turned me off. at least with the endo i knew what i was going to experience ITMS.
AFM: well for the moment i have no symptoms! i mean i get O pain, but i now consider it within the parameters of 'normal'. some cycles it is painful to sit down without care and attention but these are few and far between. that said i have been sticking to a styled diet of avoiding caffeine in the period between ovulating and AF. i found this to help me manage the pain. dont know why it works but it does for me so i cant complain lol! also AF appears to be 'normal' too. first time in a very long time. lasts for 4 days and is relatively pain free (took like ONE panadol last cycle!). so am happy with that. of course in the back of my mind comes a lurking fear that it will all happen again (especially as we are TTC #2 and fear of m/c and repercussions on the endo flair up again).
Hi girls
Claire: I am so jealous, hardly any pain, lucky you. I am in pain most of the time and it is very hard to deal with at times. I had an U/S yesterday and he could see the thinkening on the bowel and there seems to be something going on with my right overy (in the past 2 u/s this has been checked). This ovulation was on the right as I had a stabbing pain in that area yesterday morning.
Ausgirl: Good luck with the Synarel, I hope you don't get any of the side effects. It is getting warmer now so hot flushes in summer is not nice as that is when I had them. Did your Gyn tell you to take anything else while on the Synarel. I have heard that some women are told to take extra calcum or a womens vit sup to help with the side affects.
AFM: I am dealing with Severe PND (medication might have to be changed agian) and the pain.
I had my first lap surgery done in January 2008 (endo found on outside of uterine wall and bowel, only 75% removed due to the angle of instruments), followed by a six-month course of Zoladex. Hubby and I have been TTC ever since (11 months and counting...) and endo symptoms have returned, along with some new ones.
Hi,
Aurian: I have been told that some of the hormonal treatments can linger in your system for a few months after you have finished the treatment. Are you on any herbal or vitamins at the moment. Have you done any ovulation tests, the home kind??
Take care
Chris
Hi Girls
I have been to see they Gyn and I am not very happy.
I have been given the choice of Merina or keep doing what I am doing with pain killers.
So even though I don't want to I am going to try this merina. I'll give it 6 months. But if I start to balloon or if my pain gets worse I'm getting it out.
I am just out of options now. I am sick of being in pain all the time. I am lucky to have had 4 pain free days in the last 3 months. I can't take it any more!!!
Chris: i am so sorry babe. this is just very very uncool. those 'answers' by your OB/GYN is just not good enough. do they not realise how frikkin impossible it is to live your life with constant debilitating pain? i vote no.
and in all honesty the PND is no doubt related to the intense battle you are waging each and every day just to find some pain-free moments. i know that my endo really played a role in the PND i experienced after DDs birth. i reckon alot of it has to do with the hormones that effect the endo also effect the PND...ITMS lol! gosh my brain is mush today!
Aurian: i am sorry that the symptoms seem to be flaring up again. do you chart your cycles at all? (like with FF)?
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i am so sorry babe. this is just very very uncool. those 'answers' by your OB/GYN is just not good enough. do they not realise how frikkin impossible it is to live your life with constant debilitating pain? i vote no.
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