Endo , Interstitial cystitis & TTC -anyone in the same boat?

[SimoneG]

Hi

thanks so much for replying.. i am in perth .. but my hubbys family lives in melbourne so i can always come over to see the dr. where is the dr located that you recommended? is it a specialist or a gp?

while going through ivf was the pain worse.. or just the same?

i have been told by my speciaist to get pregnant to help with the endo.. but then i still havea 20c peice size of it on the outside of my bladder which doesnt help.....

[TaRhLi.]

She is a specialist located at the Royal Melbourne Hospital - google her "Dr Helen O'Connell".

I had the surgery 2 years before starting IVF, I don't think I could have managed IVF and pregnancy with my IC as it was pre surgery. So I wanted to get my bladder fixed first and then tackle the TTC process.

I have read that many IC sufferers have successful pregnancies, but in my case my IC was so unmanageable as I was having UTI's 3 out of every 4 weeks which no antibiotics could help and the pain and discomfort was too much to bear.

When you do IVF a lot of interferance is done around that region and I would still end up getting UTI's after my embryo transfers - then having to take antibiotics to clear it up - but as you know being an ICer does make you more prone to getting UTI's but anti's would clear it up and touch wood I haven't had any major IC attacks since the surgery..

[SimoneG]

She is a specialist located at the Royal Melbourne Hospital - google her "Dr Helen O'Connell".

I had the surgery 2 years before starting IVF, I don't think I could have managed IVF and pregnancy with my IC as it was pre surgery. So I wanted to get my bladder fixed first and then tackle the TTC process.

I have read that many IC sufferers have successful pregnancies, but in my case my IC was so unmanageable as I was having UTI's 3 out of every 4 weeks which no antibiotics could help and the pain and discomfort was too much to bear.

When you do IVF a lot of interferance is done around that region and I would still end up getting UTI's after my embryo transfers - then having to take antibiotics to clear it up - but as you know being an ICer does make you more prone to getting UTI's but anti's would clear it up and touch wood I haven't had any major IC attacks since the surgery..

hi K

glad you havent had any attacks lately...

i am still in the process of getting diagnosed correctly... my IC feels like a UTI but no dr will give me antibiotics so i just live with the pain.. over a month 3 days i get with no pain.. thats just before and during my period.. the rest of the month i haev cystitis symptoms plus all the pain and throbbing , pain while going to the loo etc.. its horrible.

i am hoping getting pregnant is going to help.

i still am not clear on what sypmtoms are endo on the bladder and what is the IC..

thanks for the dr name.. i will look her up!

did you have a cathater after the surgeory..??? what was the time like after? how long til you felt no pain?