sorry for taking so long to reply girls.
Chris - I can't recall having nose bleeds, but I only did about 3 and a half to 4 months on the synarel. I did start it in the middle of winter, and did manage to get a cold as well. I went to the chemist and they checked out what I could have for my stuffy blocked nose and gave me yet something else to sniff lol.
Clare, have you noticed if there are any foods that make AF worse? I noticed that whenever I had a coffee or coke, and sometimes even chocolate, my AF was worse. It was only for the first couple of days though, about day 3 I could have a coffee again.
Hope you can find some answers about your pain returning.
Yeah sorry for the late replies...hectic times with work and bub! (no complaints tho!)
Hi Nic, yeah i find that if i have coffee, chocolate etc in the days leading up to and during AF the symptoms are MUCH worse. this is also the case during mid-cycle. that's interesting that you have the same thing. it must be a trigger of some sort. Maybe the caffeine...
Nic/Cassius - I also found that eating anything sugary/fatty made my endo symptoms/cycles much much worse. I worked this out from when I had my lap I completely went off crap food and ate really blandly, simple veggies/wholegrains/meat etc and AF was great, then when I started adding sugary/fatty foods back into my diet, the endo pain started to slowly come back.
I definitely think diet has a lot to do with Endo. I find coffee and sugar are my biggest culprits, and tend to make the pain worse. If only I didn't crave both!!
A question for ladies that have spotting before AF. After you had a lap, did the spotting continue? I've found that the lap did nothing for that symptom, or really for any symptoms for that matter.
The acupuncture i'm having is helping I think, but its hard to say. I think i'm getting better, then the next month I get the mother of all AF's. I'm also taking herbal and nutritional supplements, which i've been on for almost 3 months now, and to be honest, I don't know if its all helping or not. I did have a really good month with no pain killers, where I didn't drink coffee pre-AF, I took a magnesium powder every day, and took a herbal anti-inflamatory at really high doses for 4 days before AF and 2 days into it. It's just getting really expensive with acupuncture and all of my supplements!
Laranna, did you take herbal and nutritional supplements after your lap? I know you said that you didn't take the hormonal medication recommended to you. Did you just change your lifestyle and diet? Your situation sounded very similar to mine and I need a little encouragement at the moment. I keep thinking that maybe I should have just taken the menopause injections.... its very disheartening when things keep getting worse since the lap.
Angel - after I had my lap all my symptoms disappeared for a while. With the supplements, I saw a naturopath who put me on to Vitex Agnus Cactus (chasteberry I think?) which was a really foul tasting liquid. It is meant to balance everything out and regulate your cycles. Unfortunately, I had the biggest mood swings after 3-4 days of it so I stopped it. I just sticked with the healthy diet and exercise and found this to be enough.
I haven't tried acupuncture, only saw a basic naturopath. When I was looking at seeing a chiro for my preg back pain, I heard they may also assist with menstural issues, something about alignments and nerves around the pelvic area so that may be something else you could look into?
Its funny you mention about the Chiro. I actually went to an Osteopath about a year and a half ago, before my endo diagnosis, and she mentioned that my pelvis was out of whack/alignment. I know that menstrual pain can be worse if you have poor circulation to the pelvic region, its just trying to fix that which is the hard part! I should get back into pilates!
I've probably had the worst AF pain this week since my lap in october, but its also the month that I conceived last year, and coming up to a year since my misscarriage, so I think stress and emotions has a lot to do with my pain.
A naturopath told me that "wanting" a baby will make endo worse (and the stress and emotions that come with that)... not exactly easy to NOT want a baby when you've had a misscarriage and been told that it will most likely be hard to conceive again. All of a sudden everything becomes about just that, and its hard to maintain normality. I hate my uterus sometimes! lol.
Actually, I should change that to 'I love my uterus and it is healthy and pink and will carry a precious baby sometime soon'. Thats better.
Try not to lose hope! i also found that stress caused AF pain to worsen. I guess it's a 'normal' response for endo.
I totally understand about your anxiety about NOT worrying about conceiving and having a baby. I too was told after my m/c at 8 weeks that i would most likely not be able to have a baby due to the endo. it was devastating and yeah, like you i became pre-occupied, and at times it was all i could think about. also, i figured that i had fallen pregnant in the past, and that alone was my beacon of hope that it could happen again. so we kept on trucking and went to the homeopath and eventually things happened.
In all honesty, i think that you are doing all the right things! (and yes, your uterus is your friend LOL!!). i can safely say that my confidence has returned in my body since having leila, and despite having endo, my uterus carried and helped birth a beautiful healthy baby, so i say stick 'em to all those drs that keep telling us that we can't and our bodies are 'broken'!
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