thread: Endo updates..... how are you travelling?

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  1. #1
    Registered User

    Mar 2008
    North Northcote
    8,065

    Mehza: wow that must be a pretty major thing to get your head wrapped around. big you sound so strong! is there a definite time-line on when the hysterctomy needs to be done?

    chris: yeah, i'm afraid that i didnt really have bad pain afterwards. like JG i was expecting it, but it didnt happen. it may be worth checking out, just to make sure that nothing has been left behind. big to you too!

    AFM: well it appears that it is coming back...boo hoo. after my scare at uni, it all appeared to go back to normal and AF finished in good time. then a couple of days later i got the bloating feeling and small cramps and sure enough (sorry if TMI!) but older looking blood followed. has now been continuing like this for 3 days. pretty bummed, as i know the signs...ho hum. luckily i have one treatment round left over from my homeopath that was given to me just before i fell pg with DD...

    as for pain treatment i have been trying with just nurofen, but when really bad i raid my stocks of panadol forte...my bad i know...what about you girls??

  2. #2
    Registered User

    May 2007
    Out of my mind.... back in 10 mins.
    365

    Hi girls

    mezha : Why do you have to have a hysterectomy???

    Cassius: For pain I use both pan forte and Ibrufen (nurophen). But if pain is really bad I will use Indicid (a suppository it is from the same family of drugs as Ibruphen but it is very strong hence the suppository (sp) way I have to take them But they do put me to sleep so I hve to have someone to look after kids).

    AFM : I have an appt with GYN to see what I can do about everything, but that is in Dec (earlyest I could get). Between the pain and sleepless nights I feel like a zombie this afternoon

    Take care
    Chris

  3. #3
    Registered User

    Jun 2008
    13

    Hey Chris n cassius,
    i have adenomyosis, endo and PCOS so my uterous is in pretty bad shape...am on hormone therapy at the moment which lowers bone density and a million other side effects so i cant stay on it too long. originally it was a hysterectomy at 30 but now its soon cause somedays i cant get out of bed on hormones and thats the only other solution.

    Chris: Yes i had pain after birth as well the endo came straight back...i suggest for you to see your doctor soon. Especially if your in that much pain, even if it is your GP or a private gyno. doesnt sound too good.

  4. #4
    Registered User

    Mar 2008
    North Northcote
    8,065

    Oh chris big hugs sweet!

    hopefully the pain will settle to something more manageable between now and then...

    that really sux about the waiting time. have you had a 6 week check-up? maybe a MACH nurse can get you into someone she knows???

    Mehza: oh girl that sounds really painful!

  5. #5
    Registered User

    Aug 2006
    N.S.W
    361

    Im with cassius Chris, Dec seems too far off in the event that it's post birth related and not endo related, IYKWIM ?

    Cass - Bugger that your starting to see those familiar signs again. Big Hugs dear. I managed my pain with lots of heat, showers/hot packs etc , then naprosan (prescription) but I know they are not the best thing for your body but they were the only thing that allowed me to get out of bed and didn't cause too much drowsiness.

    I just wanted to mention to mehza that depending on where your endo is a hysterectmy may not be the godsend you think. Its often the easy option for the dr but if your endo is outside that area, bowel etc you may still have trouble, sorry to be the bearer of bad news but I've done lots of research on this and was shocked to find that it is not a gaurantee at all - for me (I had not yet had a family) it was NOT a risk I was prepared to take. ie: have a hysterectomy, be on medication for the rest of my days or go into early menopause AND STILL PUT UP WITH ENDO PAIN...... There are other options dear.

    For me - Im starting to get daily pain on my left side again. I had it while pregnant with H as well. I thought at the time that it was due to the recent surgery that did not have time to heal properly before I fell pg but no it seems to be just what my body does during pregnancy - great ! Fingers crossed that my uterus doesnt become irritable again and start contracting early. That was so tiring and worrisome. All a byproduct of too much abdo surgery over the years me thinks .

  6. #6
    Registered User

    Dec 2005
    In Bankworld with Barbara
    14,222

    Mehza, I'm with Joel's Girl on this one. Plus you will also go into early menopause from the hysterectomy too - not sure at 24 if you'd want to take that path just yet unless it was the ONLY available option for you.

    Clare and Cindy, sorry to hear of your recent troubles and Clare, I hope that it doesn't get any worse.

    As for me, I will be having a laparoscopy for Christmas I think. I went to my GP yesterday because other things have been happening apart from the dodgy cycles (which last time was only 30days - I have NEVER had a cycle that short before), the clots, the pain. the tiredness and the moody-ness, I have also had a significant change to my bowel habits that have really worried me. So I am off to my Gyno on November 3 with a referral for a laparoscopy. Now I have private cover I'm hoping that I'll be done before Christmas instead of waiting 6mths like I did on the public waiting list.

  7. #7
    Registered User

    Mar 2008
    North Northcote
    8,065

    Hi there girls,

    Sherie: you should be able to get in pretty much straightaway. i was booked in 5 days after our first consult! (nice xmas present BTW! NOT!!). hope DH gets the hint and buys you something uber lovely in compensation!

    oh yeah, the moodiness! i forgot about that one too! i was really all over the place this time around. oh joy, yet another hormone to be cross with...

    JG: yeah i had awful pain on the right side from where the endo had really taken hold. awful as well when DD would give a good solid kick to boot too!