Endo updates..... how are you travelling?

[Deevine]

Hi Christal,

As some of the girls here know, I was diagnosed with severe endo last october and advised to go on Zoladex for 6 months and then to try and fall pregnant asap. I refused the Zoladex and used natural therapies (i'm a nutritionist) and actually had 3 months of acupuncture from Feb this year. I didn't necessarily notice a big difference from anything I tried, and even found that the pain was worse after having the lap and having it 'all' cut out. But, my accupuncturist said that after about 2 months that my pelvic region had much less congestion and the energy flow was much better.

I then fell pregnant in May. It wasn't particulary planned, but we weren't really avoiding it either! We were going to start trying around now... but i'm very greatful that I fell pregnant without trying as if we hadn't I think the stress of trying would stop me from falling naturally.

I was pretty much told that I wouldn't fall pregnant naturally, and my gyno who did the op said I was stupid for not using the Zoladex and that i'd be back to him within 6 months to get another lap done. I did get a second opinion from Dr Cooper in Sydney, and was much more confident with his advice. He just pretty much said fall pregnant asap, breastfeed as for as long as possible, then if we wanted more kids, fall pregnant again soon after finishing breastfeeding. The longer without AF, the better your chances of warding off endo. He didn't say it can be 'cured', he just said that it can get better.

Also, I have found this pregnancy to be pretty stressful, and I believe its because of the endo. I have pretty much had period type pain the whole pregnancy. And had bleeding from 7 to 17 weeks. I keep getting the feeling like my period is trying to come. The pain is no where near what it was like with my period, but just a constant aching feeling. But, when bubs kicks, it relieves the pain!! (unless its in the direction where I had most of the endo cut off... that is rather painful!).

Sorry for the long post, I just want you to know that there is hope. Good luck with TTC and I hope santa brings you those two little lines.

Dee xoxo

[Christal]

Hi Christal,

As some of the girls here know, I was diagnosed with severe endo last october and advised to go on Zoladex for 6 months and then to try and fall pregnant asap. I refused the Zoladex and used natural therapies (i'm a nutritionist) and actually had 3 months of acupuncture from Feb this year. I didn't necessarily notice a big difference from anything I tried, and even found that the pain was worse after having the lap and having it 'all' cut out. But, my accupuncturist said that after about 2 months that my pelvic region had much less congestion and the energy flow was much better.

I then fell pregnant in May. It wasn't particulary planned, but we weren't really avoiding it either! We were going to start trying around now... but i'm very greatful that I fell pregnant without trying as if we hadn't I think the stress of trying would stop me from falling naturally.

I was pretty much told that I wouldn't fall pregnant naturally, and my gyno who did the op said I was stupid for not using the Zoladex and that i'd be back to him within 6 months to get another lap done. I did get a second opinion from Dr Cooper in Sydney, and was much more confident with his advice. He just pretty much said fall pregnant asap, breastfeed as for as long as possible, then if we wanted more kids, fall pregnant again soon after finishing breastfeeding. The longer without AF, the better your chances of warding off endo. He didn't say it can be 'cured', he just said that it can get better.

Also, I have found this pregnancy to be pretty stressful, and I believe its because of the endo. I have pretty much had period type pain the whole pregnancy. And had bleeding from 7 to 17 weeks. I keep getting the feeling like my period is trying to come. The pain is no where near what it was like with my period, but just a constant aching feeling. But, when bubs kicks, it relieves the pain!! (unless its in the direction where I had most of the endo cut off... that is rather painful!).

Sorry for the long post, I just want you to know that there is hope. Good luck with TTC and I hope santa brings you those two little lines.

Dee xoxo

Dee
Thank you for sharing your story w/ me. It gives me hope; that of which I have little of anymore.
I know I stress too much - I know it sure isn't helping me any.
I am hoping the naturopath I see Tues can help me and maybe I will fall pregnant.
It took us 10 months to fall preg w/ DS - but I also wasn't having endo pain then. My pain/endo got worse after I gave birth. They say being pregnant is supposed to help - its like it made mine worse.
I really want another baby - sometimes I feel like its not going to happen again kwim?

[chris]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. It t

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I may have trouble conceiving. I would get cysts really bad on my ovaries t

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I may have trouble conceiving. I would get cysts really bad on my ovaries too.
I remember coming home and crying when I was about 17 because

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I may have trouble conceiving. I would get cysts really bad on my ovaries too.
I remember coming home and crying when I was about 17 because a

[JLeigh29]

Hi,
I was first diagnosed with endo after a lap about 3 1/2 yrs ago. I'd been having painful periods and bowel movements, stomach cramps (even when AF not due) for years but drs never investigated for endo as I was 'too young' (early 20's then) Dr found stage 4 endo near bowel and on the vagina (sorry for tmi!) After the op my gyno advised getting utd asap as this could help stop endo from coming back. DH and I weren't ready then, so I went on the pill non-stop for 3years (no AF). Started ttc #1 in April and haven't had any bad endo symptoms back yet. Every month I am waiting for things to go bad again, but from what everyone is saying, the longer without AF, the better. I don't htink it's preg as such that helps prevent the endo, just no AF!!
Christal - hang in there. I know what you're saying about ttc, and with endo I feel like it's a time bomb waiting to go off. Most people say I'm still young and have heaps of time to have chn, but I'm worried the endo has already caused problems and we won't be able to conceive naturally. Those words my gyno said are coming back to haunt me - if you want chn, start now, because it could take you a lot longer and you may need help. I thought he was so selfish for suggesting I bring a baby into the world just for the sake of my health when neither dh or I were ready for chn, but now we want a family, I kinda wish I'd listened a bit more closely...

[Christal]

Hi,
I was first diagnosed with endo after a lap about 3 1/2 yrs ago. I'd been having painful periods and bowel movements, stomach cramps (even when AF not due) for years but drs never investigated for endo as I was 'too young' (early 20's then) Dr found stage 4 endo near bowel and on the vagina (sorry for tmi!) After the op my gyno advised getting utd asap as this could help stop endo from coming back. DH and I weren't ready then, so I went on the pill non-stop for 3years (no AF). Started ttc #1 in April and haven't had any bad endo symptoms back yet. Every month I am waiting for things to go bad again, but from what everyone is saying, the longer without AF, the better. I don't htink it's preg as such that helps prevent the endo, just no AF!!
Christal - hang in there. I know what you're saying about ttc, and with endo I feel like it's a time bomb waiting to go off. Most people say I'm still young and have heaps of time to have chn, but I'm worried the endo has already caused problems and we won't be able to conceive naturally. Those words my gyno said are coming back to haunt me - if you want chn, start now, because it could take you a lot longer and you may need help. I thought he was so selfish for suggesting I bring a baby into the world just for the sake of my health when neither dh or I were ready for chn, but now we want a family, I kinda wish I'd listened a bit more closely...

sorry for the above posts girls.. my computer is acting screwy and it posted my message like 6 times and some of them only 1/2 way! argh
Anyways..
JLeigh~I'mglad you are pain free w/ your endo. I've thought about going back on the pill for a few months w/ no AF then going off of it again and seeing what that would do but IDK if it'd help or not. And the thought of not ttc for 5 or 6 mos while on the pill just makes me hurt.
I wish this wasn't so hard.

[chris]

Hi Christal
I know what you mean (re going home and crying when the Dr told you). All I wanted was to get married and be mum. The Dr told me back in 1990 that he would like to do a lap but it was still a new thing and he thought it had too many risks. So he put me on depo provera (where I gained 40 kg in 6 months), when I finished that my AF was a little better. I then decided to just deal with it (the pain), because I wasn't going to take any more hormones if they just put weight on me.
Then the pain just got worse and worse so I seen another Gyn and by this time Laps had developed a bit and he did one and told me where the endo was and put me on the pill (with no sugar tablets) to try and stop AF. That didn't work and I kept trying all different "pills" with higher strengths. I got side affects from the pills but AF still turned up every month. I then tried a nasal spray Syranal, and that didn't really work. He then wanted me to try another hormone but when I looked it up I found out it gave you hair (on the face and around your nipples and it would be a permanent thing) so I said no to that. I then stopped everything again and just delt with the pain.

How did the naturopath go?? What did he/she suggest??
I have never been to one. But I have done me own reaserch and taken alot of herbs /vit & min ).

Take care
Chris

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I may have trouble conceiving. I would get cysts really bad on my ovaries too.
I remember coming home and crying when I was about 17 because a dr. told me I may never have children! They hadn't even done a lap and she told

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I may have trouble conceiving. I would get cysts really bad on my ovaries too.
I remember coming home and crying when I was about 17 because a dr. told me I may never have children! They hadn't even done a lap and she told me t

[Christal]

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me and she seemed to ignore me when I told her).

I know Miss D hasn't helped me much at all with "cureing my endo".

Merry christmas (hope to hear the pitter patter of little feet next year)
Take care
Chris

Chris,
My endo got alot worse after the birth of my son. When I was a teenager I used to have heavy periods and was told then I may have trouble conceiving. I would get cysts really bad on my ovaries too.
I remember coming home and crying when I was about 17 because a dr. told me I may never have children! They hadn't even done a lap and she told me that!! Anyways after the birth of my son, I went on bcps. I never had any endo pain before giving birth to my son. I just had really heavy AFs.
So as soon as I gave birth I went on bcp which I stayed on for 2 years. When he turned 2, we decided to try for another baby figuring it could take a year or so. The first 3 months off of bcp my afs were fine.. but the 4th month, I started getting really severe abdominal pain- especially during a bowel movement. After a few months of this I seen my gyn who suspected endo. He felt we'd be able to conceive though and gave me pain pills and CLomid to try to speed up the TTC process. After a few more months of this w/still really painful AFs he did a lap and discovered endo. He said my tubes were clear like your Chris but that I had endo all over everything and it was attaching my ovary to my kidney or something like that.. he did remove it all thought we'd get pregnant and we just haven't. That was exactly a year ago this month. I feel like I'm out of options. IDK what to do anymore.