Endo updates..... how are you travelling?

**chris** · December 5th, 2008, 08:28 PM

Hello! hello!!! Anyone there???

I have questions!!!!
Has anyone been cured by being pregnant?
Or is your endo just stunted for a few months (after the preg) and then comes back??

I have only ever had a few ok AF and then all the pain comes back. A DR I seen thinks that pregnancy cures endo.

Merry christmas
Cheers
Chris

**Laranna** · December 5th, 2008, 10:21 PM

Chris, I don't believe that pregnancy "cures" endo as such. It sort of like puts it into remission. As you know endo thrives and grows with our menstrual cycles, but when we are pregnant we don't have the cycles so the endo can't grow. When we have our cycles back, the environment is there for the endo to possibly develop again. Hope that makes sense!

I just got my first AF back since being pregnant and breastfeeding. So far, so good, only some mild cramping. I am really, really hoping the endo doesn't return.

**joel's girl** · December 6th, 2008, 07:41 PM

My dr used the word 'remission' to. He said while preg and fully breastfeeding that your body was able to stop producing the 'stuff' (very technically I know) that causing endo but then it could possibly come back, so his advice was to b/f as long as I could, then have another baby ASAP then breastfeed again for as long as possible then get a mirena implant.

He said that is I could get to about fours years of little to no 'stuff' being produced then it is POSSIBLE that the endo will not come back.

Forgive me Im very tired and struggling to strong this post together - I hope it makes sense. Do you see someone local Chris ? I don't have much faith in the local guys after seeing and dealing with Dr Cooper. Perhaps it's worth having a chat to him and see what he suggests. I cannot sing his praise enough.

Just a thought. He very easy to talk to and only deals with endo nothing else, no gyno or ob work at all. He lectures internationally about endo and new treatments etc..... Anyone like I said, Im tired and now Im just rambling. Forgive me dear.

**nic** · December 7th, 2008, 10:00 AM

Chris,
My AF pain completely disappeared after DD was born. She is now 9, and I had just started to get some painful AF's about a year before I started on my Synarel for 3 months before IVF.
It was absolute heaven not having period pain!

**chris** · December 8th, 2008, 05:40 AM

Hi girls
Nic: YOur soooo lucky!!! I get a pain straight back (just a bit less but it works up to what it was before the pregnancy). I was on Synarel to try and treat the endo (I had hot flushes with my mum).

Laranna: I had my first AF 8 weeks after giving birth. I bet you loved those months of pain free time!!! I couldn't breast feed.

JG: I did the same thing (started trying for another baby ASAP). I am thinking about the mirena myself. I was talking about it with a clinic nurse. She said it was first made for women with endo and they found that it thickens the c/m and affects the sperm if they do get through the c/m. The thing I like about it is that the hormone dose not get into the blood stream. I have alot of problems with hormone treatments. The biggest being weight gain with progesterone hormones (I have put on 40kg in 6 months on Depo Provera and after my m/c had to have high dose of provera tot try and stimulate AF, it only put 20 kg on me - no AF) Yet with pregnancy I loose weight

.

I couldn't beleive that the DR said that I would be "cured". Where it is common knowledge that endo can be a different experience for every woman. I previously have had endo return after both of my full term pregnancys.

Thanks for replying
Take care
Chris

**Christal** · December 13th, 2008, 02:55 PM

Hi I'm new to the boards.. but was reading your endo pg and seems like a lots of ladies here know the pain of endo.
I had a lap a year ago and my dr found stage III endo. He was able to remove it and said tubes were clear. Thought we'd get pregnant right away but its been a year now and we still haven't. We've been TTC #2 for 2 1/2 yrs total.
I am going to see a naturopath next week. Has anyone found success w/ this?
My Endo pain is back and to be honest didnt completely go away w/ my lap. I have very painful bowel movements -
I feel like I will never get to be pregnant again. I guess I need to hear some success stories to give me hope.

**chris** · December 14th, 2008, 10:24 AM

Hi Christal
I haven't seen a naturopath. But I know what it feels like to be TTC. I was on vit B6 and flaxseed oil before I fell preg the last time.
My last pregnancy was a big surprise as we had been TTC for a while and then decided to wait and see what a Lap/Hysteroscopy found out. Only to fall pregnant just before the opp date (so it was postponed). Sometimes I wonder if the stress from TTC stopped me from falling pregnant.

I wish you luck with TTC.
Let us know how you go at the naturopath.

Take care
Chris

**Trillian** · December 14th, 2008, 12:00 PM

Just checking in with an update. I had a lap last friday 5/12 and my Gyno said they found some old scar tissue on my bowel and a few new adhesions (which explains a LOT - I always had pain during a bowel motion when I had AF) and a few also in towards my back, as well as some others in various spots. I also had a mirena put in too. Still get a bit tender in the navel from the lap though.

Re pg and endo remission, I was told this too and that pg could well help with it. After I had my first lap in 99, I was on duphaston for 6mths before falling pg accidentally with my first baby. After he was born things were great on the AF front - no pain at all apart from a few cramps that were bliss to deal with compared to before having kids. They were a LOT heavier than they ever were though, but I could deal with that cause there was no pain. Over the ensuing years things were really good and it was in the last few months before conceiving our 4th baby that things started getting funky again and since he was born it just hadn't been *right*, so hence why I had the lap. I suppose depending on the severity of your endo to start with would have an effect on how successful being pg and then BF would be at putting it into remission. Once you have it, I don't think you are ever 100% cured of it though, but the longer you can delay the build up of cycts and adhesions the better off you are for it though.

**Christal** · December 14th, 2008, 12:03 PM

Hi Christal
I haven't seen a naturopath. But I know what it feels like to be TTC. I was on vit B6 and flaxseed oil before I fell preg the last time.
My last pregnancy was a big surprise as we had been TTC for a while and then decided to wait and see what a Lap/Hysteroscopy found out. Only to fall pregnant just before the opp date (so it was postponed). Sometimes I wonder if the stress from TTC stopped me from falling pregnant.

I wish you luck with TTC.
Let us know how you go at the naturopath.

Take care
Chris

Chris,
Do you mind me asking how long you were TTC before u fell pregnant?
I am SO hoping I can get pregnant naturally. I don't want to take meds to put my body into a menopausal state if I don't need to.
Christal

**Deevine** · December 15th, 2008, 07:39 AM

Hi Christal,

As some of the girls here know, I was diagnosed with severe endo last october and advised to go on Zoladex for 6 months and then to try and fall pregnant asap. I refused the Zoladex and used natural therapies (i'm a nutritionist) and actually had 3 months of acupuncture from Feb this year. I didn't necessarily notice a big difference from anything I tried, and even found that the pain was worse after having the lap and having it 'all' cut out. But, my accupuncturist said that after about 2 months that my pelvic region had much less congestion and the energy flow was much better.

I then fell pregnant in May. It wasn't particulary planned, but we weren't really avoiding it either! We were going to start trying around now... but i'm very greatful that I fell pregnant without trying as if we hadn't I think the stress of trying would stop me from falling naturally.

I was pretty much told that I wouldn't fall pregnant naturally, and my gyno who did the op said I was stupid for not using the Zoladex and that i'd be back to him within 6 months to get another lap done. I did get a second opinion from Dr Cooper in Sydney, and was much more confident with his advice. He just pretty much said fall pregnant asap, breastfeed as for as long as possible, then if we wanted more kids, fall pregnant again soon after finishing breastfeeding. The longer without AF, the better your chances of warding off endo. He didn't say it can be 'cured', he just said that it can get better.

Also, I have found this pregnancy to be pretty stressful, and I believe its because of the endo. I have pretty much had period type pain the whole pregnancy. And had bleeding from 7 to 17 weeks. I keep getting the feeling like my period is trying to come. The pain is no where near what it was like with my period, but just a constant aching feeling. But, when bubs kicks, it relieves the pain!! (unless its in the direction where I had most of the endo cut off... that is rather painful!).

Sorry for the long post, I just want you to know that there is hope. Good luck with TTC and I hope santa brings you those two little lines.

Dee xoxo

**Christal** · December 15th, 2008, 01:33 PM

Hi Christal,

As some of the girls here know, I was diagnosed with severe endo last october and advised to go on Zoladex for 6 months and then to try and fall pregnant asap. I refused the Zoladex and used natural therapies (i'm a nutritionist) and actually had 3 months of acupuncture from Feb this year. I didn't necessarily notice a big difference from anything I tried, and even found that the pain was worse after having the lap and having it 'all' cut out. But, my accupuncturist said that after about 2 months that my pelvic region had much less congestion and the energy flow was much better.

I then fell pregnant in May. It wasn't particulary planned, but we weren't really avoiding it either! We were going to start trying around now... but i'm very greatful that I fell pregnant without trying as if we hadn't I think the stress of trying would stop me from falling naturally.

I was pretty much told that I wouldn't fall pregnant naturally, and my gyno who did the op said I was stupid for not using the Zoladex and that i'd be back to him within 6 months to get another lap done. I did get a second opinion from Dr Cooper in Sydney, and was much more confident with his advice. He just pretty much said fall pregnant asap, breastfeed as for as long as possible, then if we wanted more kids, fall pregnant again soon after finishing breastfeeding. The longer without AF, the better your chances of warding off endo. He didn't say it can be 'cured', he just said that it can get better.

Also, I have found this pregnancy to be pretty stressful, and I believe its because of the endo. I have pretty much had period type pain the whole pregnancy. And had bleeding from 7 to 17 weeks. I keep getting the feeling like my period is trying to come. The pain is no where near what it was like with my period, but just a constant aching feeling. But, when bubs kicks, it relieves the pain!! (unless its in the direction where I had most of the endo cut off... that is rather painful!).

Sorry for the long post, I just want you to know that there is hope. Good luck with TTC and I hope santa brings you those two little lines.

Dee xoxo

Dee
Thank you for sharing your story w/ me. It gives me hope; that of which I have little of anymore.
I know I stress too much - I know it sure isn't helping me any.
I am hoping the naturopath I see Tues can help me and maybe I will fall pregnant.
It took us 10 months to fall preg w/ DS - but I also wasn't having endo pain then. My pain/endo got worse after I gave birth. They say being pregnant is supposed to help - its like it made mine worse.
I really want another baby - sometimes I feel like its not going to happen again kwim?

**chris** · December 17th, 2008, 06:17 PM

Hi Christal,
I was trying for only 7 months for Miss D. But I was told that my endo is not near my tubes or overies so I am not supposed to have probs falling pregnant. I have endo on the bowel, f/b uterus,& POD (well that is what I was told 7 years ago).

Did you find that your endo was worse after the birth of your daughter??? I had pain and heavy (had to use maturnity pads) but pain was not as bad as before the pregnancy. The GYN I seen told me that Pregnancy "cures" endo (which made me mad as it didn't cure me