Endo updates..... how are you travelling?

Hi Ladies,

Chris and Jayne - wow! Congratulations on your BFP :clap: Wishing you both H&H pregnancies. Hopefully you'll both be the lucky ones where the endo clears up somewhat due to the pregnancy.

I've posted in other threads, but haven't in this one, so thought i'd tell my story.

I was booked in for a Lap last July to look for suspected endo, when I was suprised to find myself pregnant in May. I was just about to cancel my Lap when I started spotting and had a miscariage. So i rescheduled my Lap for Oct, where it was confirmed I had severe endo, with my left ovary attached to my bowel with adhesions, and endosalpingiosis in my pouch of douglas. Had a bit of endo on my appendix to. It was 'all' removed/cut out (not that i believe that all of it has gone).

The specialist told me I needed Zoladex, and pretty much said I was lucky to fall pregnant in the first place (not the best thing to say to someone that had a miscariage). I did research and pretty much didn't want to go on Zoladex, didn't like the idea of 6 months of menopause. My moods and emotions are bad enought as it is!! hehe

Got a second opinion from Dr Michael Cooper in Sydney. He told me it wasn't as bad as first thought, and that I had two conditions, Endometriosis and Endosalpingiosis, which they don't know a lot about. He told me to go on the BCP. Did that for 2 months, but it made me feel pregnant, which was driving me insane and making me depressed. It also did nothing for my pain, and completely messed up my cycle.

I'm now having acupuncture done and taking chinese herbs. I'm giving this a go for about 6 months, and will hopefully see some results soon.

My endo pain, which was my main symptom, is actually worse since having my Lap in Oct. Has anyone else had this? The acupuncture is helping me with my digestive problems (i've had inflamatory bowel disease in the past), but i don't think i've been doing it for long enough for it to have a great impact on my endo pain yet.

DP and I have decided that we won't leave it more than a year from my op to TTC, so i'm looking at 4-6 months to get myself ready, or at least get my body ready so that its in the best possible condition to fall pregnant, and stay pregnant.

Well, thats my story, sorry its a little long! Wishing a very healthy 08 to all the endo ladies in here. Positive thinking ladies - end each night with visulisation of a big broom sweeping all of the endo away from the pelvic cavity. The mind is a powerful thing! :hug:

D :)

Hi Jayne & D
I am 9 weeks pregnant, this is my 4th pregnancy. From my experience my endo did not do much clearing up while pregnant as it slowly started up agian after the 2 births.
The pain I am having is really doing in my head as is the constant thought that I am starting to miscarry.

For the past 6 years I have just been treating the pain (pain killers when needed) and not really worrying about the endo as I have been on that many hormones to try and get rid of it. At one stage I didn't know if I was Arther or Marther my cycle was really stuffed up and I had put on 45kg's so I decided enough was enough plus the weight would not budge :wall:.

Jayne take it easy and don't push your self. We can take panadol (not that it helps much). I am trying to learn how to meditate to try and get me pain free.

Keep in touch on how things are going I mainly stay in Miscarry and loss forum.
Take care
chris

:

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My endo pain, which was my main symptom, is actually worse since having my Lap in Oct. Has anyone else had this?

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I had endo burnt off in november '06, and have deteriorated since. Pain during AF has increased in severity, although this 'bad' pain now lasts only 2 days instead of 3.

General abdo and back pain throughout my cycle is also more prominent since the lap, along with digestive problems similar to IBS.

I have an appt with an endo specialist on 4 March to (hopefully) find out what's going on :)

I had a Mirena inserted a couple of weeks ago to try to help eleviate my Endo pain so I'm hoping that works!

I finally after 4 months got my appt for the pain clinic but its not until June! I'm really frustrated that I can't get any earlier as I'm waiting on them for a treatment that gyns are not allowed to prescribe due to some crazy govt pharmaceutical nonsense. Its really frustrating when she knows it can help but by law they are unable to prescribe it. I don;t know if its a newer treatment or because its uncommon or what?
My endo is a bit different than normal being that I have problems with nerve pain where my endo was removed during a lap so the drugs are also for nerve pain than the endo specifically.

Has anyone else run into things like this?

Hi Ladies! I have been reading the info on this site on endo for awhile now (thank goodness this site exists!).

Sorry but this may be long as it is coming from years of pent up frustration...
My history with endo started soon after a m/c at 8 weeks in '03. At the time i didnt know what it was or what was happening so assumed that the pain and cycle irregularities were normal. in '04 things got really bad and during a routine papsmear with my GP she noticed that my cervix was badly 'damaged' (her words!), so i went back to my OB/GYN and after a quick look he diagnosed me with endo - and told me that i most likely would not be able to conceive naturally.
the only options i was given was a lap (which he told me could increase my risk of infertility - no thanks!) or to go through 6 months of menopause (as a 21 year old the thought freaked me out too much). so basically asking if there were any other options he said the best i could do was to check out the endo assoc. website and maybe follow their diet guidelines. i did this for 2 years. eventually though things got so bad that i couldnt walk when mid-cycle came around, i would bleed all through my cycle and during AF i would pass out and be sick. in oct '06 i decided enough was enough when, on holiday in italy i passed out in the street, totally unexpectedly, and had to be carried home by my DH! how embarrassing!
It freaked him out so much that he contacted a friend of his who is a specialist in homeopathy and is also a OB/GYN. after 3 hours of exhaustive questioning on my entire family medical history (she even asked if my Mum was sick during her pregnancy with me!) she diagnosed me with a 'weak' uterus and explained that the m/c created a build up that mixed my hormones. i am not sure if she was right, but, she prescribed me some pretty hardcore homeopathic treatment and within one month i had a normal cycle (yay!) and by the next month i was pregnant with our daughter (even bigger yay as we had been trying for almost 2 years!!).

the only problem is that since her birth things were travelling fine until AF arrived and now as i sit here my mid-cycle is kicking in and i can barely move! i thought that the pg might have fixed things up! or is this just an urban myth?! i am really frustrated ATM, so sorry for the vent! is there any permanent relief for endo sufferers?

thanks for your time,
Clare

Welcome to BB Cassius :)
Have you sought a second opinion from someone else? It might be worth looking into, especially if you are having pain again.
I had painful periods through my teenage years, and even after seeing a gyno, he told me that even though I had symptoms and family history, it wasn't possible for me to have it at 16 as you don't get it till you are 25! Load of BS it all was.

After TTC #2 for over 5 years, we sought some answers last year, with a different gyno/fertility specialist. I was booked in for a lap to see what was going on and was finally diagnosed with endo, and a blocked tube, which they couldn't unblock. We were told that IVF was our only option, but before we could do that I had to spend 3 months on Synarel, shutting my cycles down.

I'm not sure why you were told having a lap would likely increase your chances of infertility? I have read numerous amounts of times how after having a lap the following 6 months or so are the best to fall pregnant. Something to do with tickling the hairs in the tubes and giving them a little wake up. (one of the theories i read)

After my DD was born and AF returned, they were regular, and painfree. I would probably have 1 or 2 cycles a year that hurt, but nothing like they did before DD. I would just take a couple of panadol, as opposed to being on prescription painkillers before my pregnancy with DD. It was only in the last 12-18 months that they slowly started playing up again.

I have to rush off now, will come back a little later to see what they other girls say and possibly PM you :)

Nic

Hi Ladies
Just popping in to see how everyone is.
Nic when you were on the Synarel did you find you got nose bleeds after the 3 months(when you have a cold/hayfever and sneezing alot).
I went through so many treatments for my endo its not funny. I through the towel in when I was told the next option was a hormone that would lower my voice, give me hair on the face and chest etc.
I was not as lucky as you Nic as after both my births my AF came back and gradualy got worse.
These days I just control the pain with a routine (of pain killers) that I have worked out for myself.
As far as I know there is no permanent way to get rid of the pain. I have been told that even after having a hyserectomy and endo lazered that you can still have the pain. This is because all endo is not visable to the naked eye and can be missed by the Dr doing the lazering. So I guess the only thing that could help is Menopause :dunno: .

Clare what pain killers are you taking?? What have you tried with no success ??? As everyone is different and there could be something out there that may help you.

Take care
Chris

Hi Ladies! ( I tried to post this earlier but for some reason it didnt work...so here it goes!)

Thank you so much for your feedback! It can be pretty lonely road having endo as not too many people are aware just how consuming it can be!

Nic: I have just moved to Melbourne so I will need to find a new gyno. My OB/GYN who delivered my DD in canberra was fantastic, but unfortunately he didnt know anyone to recommend down here, so the search begins!!
Fancy a Dr believing that endo is age discriminatory!! we get told so much BS as women that it's just not funny sometimes! (like the midwife who told me that have a pethidine injection would help me sleep through most of my labour!! fat chance of that happening!).
I'm not sure why my gyno at the time told me that it could increase my chances of infertility. I believed him and on my own decision decided not to go ahead, as he had also just told me that even without it (the Lap) i will most likely only be able to conceive with IVF. At the time, I was more worried about fertility issues than pain issues as i felt that I could control the pain on my own...lol!

Chris: I guess with the pain relief I was just self-medicating. I had somehow convinced myself that I was exaggerating the pain (even though at times I would have to pull the car over to the side of the road to sit it out!!), so I would take some anti-inflamm pain killers when it got too bad to deal with on my own.
It wasn't until I started passing out from the pain that DH decided he had seen enough and booked me in to see the Dr who specialised in homeopathy (we were in Italy at the time and had no access to conventional doctors). She prescribed me some treatments that didnt help with the pain, but with the endo itself. I was amazed at the result, by my 2nd AF I had my first 'normal' cycle in years! and yeah, as i mentioned in my last post I was pregnant 2 months later. Since then I have not taken any measures as AF only arrived 2 cycles ago and it was only this mid-cycle that I began experiencing really bad pain again. I took some panadol, but as you girls probably know it was like a drop in the ocean!! lol!
so back to square one I guess...and yeah, if you have any tips or recommendations on what can help, I am most willing to take it ALL on board!!

Thanks again,
Clare:)

sorry for taking so long to reply girls.
Chris - I can't recall having nose bleeds, but I only did about 3 and a half to 4 months on the synarel. I did start it in the middle of winter, and did manage to get a cold as well. I went to the chemist and they checked out what I could have for my stuffy blocked nose and gave me yet something else to sniff lol.

Clare, have you noticed if there are any foods that make AF worse? I noticed that whenever I had a coffee or coke, and sometimes even chocolate, my AF was worse. It was only for the first couple of days though, about day 3 I could have a coffee again.
Hope you can find some answers about your pain returning.

Nic

Yeah sorry for the late replies...hectic times with work and bub! (no complaints tho!)

Hi Nic, yeah i find that if i have coffee, chocolate etc in the days leading up to and during AF the symptoms are MUCH worse. this is also the case during mid-cycle. that's interesting that you have the same thing. it must be a trigger of some sort. Maybe the caffeine...

Nic/Cassius - I also found that eating anything sugary/fatty made my endo symptoms/cycles much much worse. I worked this out from when I had my lap I completely went off crap food and ate really blandly, simple veggies/wholegrains/meat etc and AF was great, then when I started adding sugary/fatty foods back into my diet, the endo pain started to slowly come back.

Hi Ladies,

I definitely think diet has a lot to do with Endo. I find coffee and sugar are my biggest culprits, and tend to make the pain worse. If only I didn't crave both!!

A question for ladies that have spotting before AF. After you had a lap, did the spotting continue? I've found that the lap did nothing for that symptom, or really for any symptoms for that matter.

The acupuncture i'm having is helping I think, but its hard to say. I think i'm getting better, then the next month I get the mother of all AF's. I'm also taking herbal and nutritional supplements, which i've been on for almost 3 months now, and to be honest, I don't know if its all helping or not. I did have a really good month with no pain killers, where I didn't drink coffee pre-AF, I took a magnesium powder every day, and took a herbal anti-inflamatory at really high doses for 4 days before AF and 2 days into it. It's just getting really expensive with acupuncture and all of my supplements!

Laranna, did you take herbal and nutritional supplements after your lap? I know you said that you didn't take the hormonal medication recommended to you. Did you just change your lifestyle and diet? Your situation sounded very similar to mine and I need a little encouragement at the moment. I keep thinking that maybe I should have just taken the menopause injections.... its very disheartening when things keep getting worse since the lap. :(

D xoxo

Angel - after I had my lap all my symptoms disappeared for a while. With the supplements, I saw a naturopath who put me on to Vitex Agnus Cactus (chasteberry I think?) which was a really foul tasting liquid. It is meant to balance everything out and regulate your cycles. Unfortunately, I had the biggest mood swings after 3-4 days of it so I stopped it. I just sticked with the healthy diet and exercise and found this to be enough.

I haven't tried acupuncture, only saw a basic naturopath. When I was looking at seeing a chiro for my preg back pain, I heard they may also assist with menstural issues, something about alignments and nerves around the pelvic area so that may be something else you could look into?

I hope things start to improve for you soon.
xx

Thanks for your reply Laranna.

Its funny you mention about the Chiro. I actually went to an Osteopath about a year and a half ago, before my endo diagnosis, and she mentioned that my pelvis was out of whack/alignment. I know that menstrual pain can be worse if you have poor circulation to the pelvic region, its just trying to fix that which is the hard part! I should get back into pilates!

I've probably had the worst AF pain this week since my lap in october, but its also the month that I conceived last year, and coming up to a year since my misscarriage, so I think stress and emotions has a lot to do with my pain.

A naturopath told me that "wanting" a baby will make endo worse (and the stress and emotions that come with that)... not exactly easy to NOT want a baby when you've had a misscarriage and been told that it will most likely be hard to conceive again. All of a sudden everything becomes about just that, and its hard to maintain normality. I hate my uterus sometimes! lol.

Actually, I should change that to 'I love my uterus and it is healthy and pink and will carry a precious baby sometime soon'. Thats better.

D :)

Hi D,

Try not to lose hope! i also found that stress caused AF pain to worsen. I guess it's a 'normal' response for endo.

I totally understand about your anxiety about NOT worrying about conceiving and having a baby. I too was told after my m/c at 8 weeks that i would most likely not be able to have a baby due to the endo. it was devastating and yeah, like you i became pre-occupied, and at times it was all i could think about. also, i figured that i had fallen pregnant in the past, and that alone was my beacon of hope that it could happen again. so we kept on trucking and went to the homeopath and eventually things happened.

In all honesty, i think that you are doing all the right things! (and yes, your uterus is your friend LOL!!). i can safely say that my confidence has returned in my body since having leila, and despite having endo, my uterus carried and helped birth a beautiful healthy baby, so i say stick 'em to all those drs that keep telling us that we can't and our bodies are 'broken'!

:) C

Wow Clair, you've just made me feel a whole lot better! Its soo hard sometimes because it feels like no one understands, but then you come here to BB, and you find soo much support and comfort, and feel like you are justified in how you are feeling. Makes you feel less like a hypochondriac!

I'm on the homeopathic route now. My body is soo sensitive to everything so I think a gentle approach is best. I'm just counting down the months for when DP gives the green light and we start TTC. In the mean time, I think I'll have a little talk with my uterus and come to some agreement for it to behave itself for the next 6 months or so! lol.

Its soo funny how crap I feel from a week before AF till about a day into it. Then the next day comes, the pain pretty much goes, and I feel on top of the world! Maybe if I focus on that aspect of the month, then i'll be able to feel a little more sane!

Just out of curiosity, where abouts are you? Which marvelous homeopath did you see?!

How's everyone else travelling too?

Hi D!

I'm glad that you found BB too! I found it also to be such a great place for info that isnt the mainstream dr version only!

IKWYM about feeling like a hypochondriac! I thought at times that i was just being OTT with everything, but then when i read on here that other women are going through similar sorts of pains and cycles, i realise that what i am experiencing is real, AND frikkin painful! that alone is comfort enough sometimes LOL!

I am now based in Melbourne. but i have to say that unfortunately my homeopath is in italy...my DH mum is a professor in alternative medicine, so she's got the connections LOL! we managed to avoid the 12 month waiting list and get an appointment while i was over there...(I had rather embarrasingly, collapsed in public due to bad pain and passed out, and being italy, it was all very dramatic...eekkk). I have to say though that she was VERY thorough. we went through my ENTIRE health history, including from when my Mum was pregnant with me and she asked if my mum got sick during that time and what she took for it. i think the consultation was over 2 hours. but it all started to make sense and we did find a common denominator and from that she was able to prescribe my the treatment. i like homeopathy as it only treats the cause and if it doesnt work, it doesnt impact on the body. in the end i was prescribed 3 things including a strong dose of 'belladonna' (granular form) and also had to do some chamomile 'rinses' just after AF...not very attractive, but hey, you gotta do what you gotta do!! LOL! it is important to take care of timing when doing this stuff, and one thing she told me is to not touch the drugs with your hands as it is very sensitive and can in fact not work if it comes into contact with anything else...sorry if i am going on too much, but i am a convert as after just 2 cycles on this stuff, i was pg (after almost 2 years of TTC), and the AF before that was the first pain-free, normal one in YEARS. (in fact, i didnt recognise it as normal and freaked out and rang my mum and she laughed at me and told me that that's what it's suppoused to be/feel like!! LOL:D).

I'll ask DH about the lady's name anyway, as she might be on the web somewhere...

take care

Clare :)

Hi ladies,

Great to hear how everyone is travelling. Thought I'd give a quick update.

My baby is almost 8 months old and is just gorgeous - yes I'm biased (lol)

On the endo front not so good. AF returned at 6 months post birth and was just as painful as before. The endo is back with all the same symptoms as before unfortunately.

Considering how long I wait to go see the dr again, I don't want more surgery but hell if I thought endo was difficult to manage before should try with a young baby who needs you to feed, rock, bath etc....regardless of how much pain I'm in.

Another thing I'm finding is that the pain is particularly bad while I breastfeed - perhaps due the uterus contracting ??? yet breastfeeding is meant to be good for endo - I don't know I'm so confused.

Any other mums out there had endo return so soon after bubs ??? I was hoping for a bit of a reprieve .

Hi JG! Sorry to hear that the endo is back :wall:. it seems that there a couple of us going through similar situations. my bubba is also 8 months and yeah, when AF arrived at 6 months i was bummed. and then with the second cycle things started to go back to bad. I too am waiting before heading back to the drs. dont know why, i guess i just want to see if it will be really bad or if i can manage it on my own for awhile. IKWYM about having endo with a bub! so now we can add tiredness to the plethora of other symptoms!!:doh:

I too was hoping that it would stay away at least for awhile. i had read somewhere that people can get around 2 years without it...so jealous LOL!!

Hi Girls,
It can be very hard after giving birth and AF returns and you find that so has the endo. I was told years ago that pregnancy is supposed to help the endo because of the 9 months with no AF. Weel that didn't happen for me and I couldn't breast feed so I got AF soon after the birth and with in 3-4 months was back to being the same as before the pregnancy. I can remember after the birth of my son I was home on my own with the kids and I was in that much pain that I fed the baby and gave my toddler an early lunch and put them to bed so that I could take some pain killers and lay down myself. But for me it wasn't just the AF pain it was the ovulation pain and the B4 AF pain. Some how I got through it :wall: if you have any family close ask for help. I didn't so I had to work around it some how. Gee wizz look what I have to look forward too!!! :doh: (but this time I'll have a 3 yr & 5yr old and a baby).

As you can see (ticker) I am 21 weeks now and still having problems. One of the things I am trying to live with is the pain factor as I have had pain all the way through this pregnancy. I am not sure if it is the endo or the Ashermans Syndrome that is causing it.

Has anyone had alot of pain during their pregnancy???

Take care
Chris

Sorry to hear about your pain Chris. I too had a painful pregnancy. I often felt like the OB thought I was a hypocondract (sp?) but from 27 weeks on was hell. I was diagonosed with an irritable uterus and was on complete bedrest for the last 8 weeks. And I'm considering having another one - NOTE TO SELF: Remember the pain - Don't do it !!!!

Big Hugs Chris - I truly hope that the pain subsides and you can get some relief and rest.

Hi Joel's girl
I know how you feel, as I have been going to the local Hospital for anti natal and I think some of the Registra's think the same of me. I have been told twice (by 2 dif doc's) that I couldn't be pregnant with Asherman's Syndrome. As rare as Ashermans is suposed to be I am also pregnant.

Ever sice my m/c I have been in pain most of the time. I was just shocked that it has continued during the pregnancy.

As for falling pregnant, all pregnancy's are different. If you think you can go through the pain again go for it.
This is the worst pregnancy I have had so I am glad it is the last for me (always wanted 3 kids).
Take care
Chris

Hi Chris

I noticed that you are being diagnosed with Asherman's Syndrome. I have done some googling but was wondering if I might ask you about your symptoms?

I had a D&E (:angel:almost 14 weeks) in Sept 07 and a D&C (:angel:10+ weeks) in March this year. My AF used to be about 5 days, starting heavy and finishing light. Since the first procedure they have been 2, sometimes 3 days (at best) and sometimes they stop abruptly. Then a couple of days later I may bleed fresh for a day. I now get really strong O pains (never used to) and seem to cramp on and off throughout my luteal phase.I am seeing a FS in a couple of weeks, but am interested if this sounds like you? Appreciate your thoughts/history :)

Hi Where there's hope
Have you got endo??? As far as I know the pain that I get is endo.
But your AF is a sign of Ashermans. Mine actualy stopped altogether as my cervex was closed and my AF couldn't get out so it went out the tubes. This is very painful and causes endo (which I already had). My AF (b4 I fel preg) lasted 5 days but It was much lighter and had a 24 hr stop in the middle.

I didn't see where your from but if the FS agrees that you could have it I can let you know if there is an Ashermans Specialist near you.

To be formaly diagnosed you need to have a hysteroscopy (small cam in uterus to look around) to check the lining.

I hope this helps
Cheers
Chris

Hi Chris

Thank you for your quick reply.

In answer to your question, I do not know if I have endo. I don't have heavy or painful periods so have never looked into it.

I notice you are pregnant with Asherman's? Did you have a hysteroscopy? Before the pregnancy? Do you have to do anything different during the pregnancy to help?

I live in the Illawarra, but have heard there is a good Dr at the RWH in Randwick. I do not know what his waiting list is like if I have to see him.

My AF is due on Monday. If I have a normal period (it will be my second since my second D&C) I will feel a little out of the woods. My period last month was 2 days - Heavy then Medium then stopped abruptly. I bled on Day 7 for a couple of hours (fresh) but we did BD that morning. Then I spotted on Day 9. It is that last one that got me... If I have good fresh bleeding, do you think that is a good sign?

I hope I don't sound like a hypochondriac - I really appreciate your POV.
Thanks :)

Hi Where there's hope

I fell preg 2 weeks before the hysteroscopy, so it was postponed until after the pregnancy. (I was on the waiting list at the local hospital). I went and seen a Dr at the Endo gyn clinic at the RWH last year, he told me to TTC while waiting for the Hysteroscopy.

With Ashermans there is the risk of problems happening with the placenta. I will be haveing a few u/s to check it.

When I got my appointment last year I only had to wait 8 weeks to get in to see them. The op waiting list is alot longer.(that is why I went to local hospital)

I mainly went down to see the Drs at RWH because the gyn I seen here was talking about a hysterectomy and no mention of fixing the problem (like the Dr's in RWH).

I would suggest going to a local Gyn and see what they think, they might do a hysteroscopy to check things out. Make sure you tell them not to do anything it is to be to diagnose only. Then once diagnosed you can go to the best to have the Ashermans repaired.

I hope that helps
Chris

Hello, everyone

This is Tiffiny, i just have laparoscopy to remove my endometriosis (moderate) by Dr Molloy in QFG, and i thought my realistic pregnant rate should be normal after the surgery, whlie Dr still recommend me to IUI two months after the surgery, is there anyone who has been conceived naturally after laparoscopy? i am 29 years old and my husband is the same age with me and his sperm count/ motility is good but percentage of abnormal sperm is a little bit higher than normal. we have been trying to conceive for more than one year.


Thanks for your help!

HI Chris

Sorry to have taken so long to reply - I have been away.

Firstly, I forgot to congratulate you on your pregnancy!!! :clap:

AF returned yesterday, a day later than expected (I think because I have been taking a lot of B6 - desperate to do anything to help my lining get to a good place). Day 1 was pathetic. But it has picked up a little last night. I am just praying it sticks around. However, this is the most painful period I have ever had in my life. I am worried there must be some scarring and some of it is being forced into the tubes, etc. I will definitely bring it up with my FS. I wonder if he can do a diagnostic hysterscopy on the spot. I imagine he would want to do it before "O' so as not to waste a month, which will be cutting it fine.

I do not know whether we should be ttc this month or not. I wonder if Asherman's caused my lrecent missed miscarriage (around 9 weeks)??? Can it?

I would have thought a 5 day period as you described, even with a break, was ok - it never would have occured to me it could be Asherman's. It makes me think there must be so many women out there who have no idea they could be at such high risk.

I cannot believe your local specialist was recommended a hysterectomy - that is so extreme!

The two names I have of Sydney Dr's specialising in Asherman's are: Prof Alec Welsh at the Maternal Fetal Medicine Dept. RWH Randiwck or there is a Prof Vancaillie. I got these names through looking through forums. Are you using one of these? My clock is ticking an I am freaking out about waiting even 2 months, as I understand there is a 3 month recovery period.

Any further light you can shed on anything is always appreciated, oh wise one!;)

Hi Where ther's hope,
I feel like my pregnancy is a mirical (even though I have been in so much pain and MS).

Well you do have a good sence of humour, me "wise one":rofl:.
It is just the path I have had to walk to get where I am today.

I went to Dr V (endo gyn clinic) He is one of the best in the world. He has a few Dr's who he has taught and who work with him down Sydney. You will be in good hands down there.
Your local FS could do a in office Hysteroscopy but alot of Drs would rather do in thearter as he could come across some adheasions. the in office hysteroscopy is painful and it is recomended that you take some painkillers b4 you go in to have it done.

B4 I forget, do you know a high dose of Vit B6 for a long time can be harmful, I take 100mg tablets.

As for TTC I was told by the Dr in Sydney to TTC because I had a period of sorts (very light) so I did have some lining. It was mainly the blocked cervix for 10 months with a pain cycle that was the main reason I was told I had Ashermans. I think I will have a hysteroscopy after the birth (if I still have my uterus) to check things out.

I am always happy to help, but I can only go by what I have been through myself and what I have read/found out through other women going through Ashermans.

Take care
Chris

Hi ladies,

Well, today on the 2nd June, which is exactly a year since my miscarriage, I got a :bfp: !!

So to all you Endo ladies out there, who are told that you won't conceive without help, i'm living proof that miracles do happen. I'm not getting super excited yet, because as some will know, after having a miscarriage it is hard to not worry and be scared. I'm a little paranoid about ectopic pregnancy, because I know it is more common with Endo. But, I will be counting the weeks down till my ultrasound for the reassurance that everything is alright.

And to think of at least 8 months without endo pain... :dance:

D :excited:

CONGRATULATIONS ANGEL D!!!:cheer::happyforyou::happyforyou:
This is fantastic news! i got goosebumps reading your news!
IKWYM about the nerves...i was kinda like that for the whole pregnancy (ie extra vigilant about what i ate and drank), but the journey was sooo much fun and the end result of a gorgeous bub is even better!
you must keep us posted as you go along!

loads of hugs,
clare:)

Hi Chris

Sorry to take so long to reply. We have been changing computer networks and have been offline.

It is such a shame your pregnancy has been painful and I hope things improve. It is such a special time for you. I can?t wait for the opportunity to have a big bulging belly again?

Since talking to you last I moved my appointment up to see the FS at Day 7 after my second period after my second MC. That period was rather painful, but did last five days of varying light and medium flow. I was pretty happy with this. More worried about the pain. But here I am Day 8 with a mild spotting and mild cramping after taking DD swimming this morning. I have also been having the odd night sweat and am wondering if it might be hormonal rather than Asherman?s, especially now I had had a reasonable period?

But back to the FS ? was disappointing. I went armed with an A4 page of questions and he pretty much said my symptoms last month could be ?practically anything?. He offered to do a Hyst and Lap ? could squeeze me in this Thursday ? but did not expect to find anything. When I asked for a diagnostic hyst he told me I was doing ?too much reading?. UGGGGGH! I was worried about being put under the knife, perhaps for no reason and asked him how often he had performed these procedures and would he be gentle. He said he had done ?30,000? laps and ?10,000? hysts. That?s a lot for a guy who does surgery once a week. How old is he, a thousand? Anyway, I asked after recovery time after the op and when we could TTC. He said usually next cycle. He said the recommended protocol is no sex for two weeks after but that that did not really matter. So then he said this cycle if we wanted. This is when I decided I would not go ahead. For all my reading (which apparently I do too much of) and from talking to you I did not feel confident with going ahead with the hyst. with this FS. I opted to monitor this cycle, and do the excellent list of blood tests he came up with (related to my MC) and to have an ultrasound. Unfortunately I could not get in until next month for the latter, but at least I can monitor things in the mean time.

The FS said a bunch of other stuff which I know will frustrate my fellow TTC?ers on another thread. He is was pretty much anti-everything. Was not interested at all in my BBT charts (which I had dedicatedly completed and printed for him), amongst other things.

I have now had my vent. Will commence enthusiastic BD?ing in the days to come now we are officially allowed to try once again. Sigh.

BTW ? I have been taking B6. I was on Elevit in my last pregnancy but a couple of months back switched to Blackmore?s Conceive Well Gold. It has 50mb of B6. I then took an extra 50mg last cycle and my period moved by one day. I was not so worried about my luteal phase ? just trying to suppress my estrogen a little and help my progesterone (I thought it might help my uterine lining). Have changed back to just an extra 25mg a day now as I thought the 100mg might be a little extreme for me.

Thanks for all the information you have been sharing with me. You have been a great help and I know I have made the right decision. Good luck with your pregnancy. I might check back with you, if that?s ok. :)


AND TO ANGEL DEE ? CONGRATULATIONS! :clap::dance:

Thanks Clare and Where Theres Hope :hug:

It still hasn't sunk in yet... although i'm feeling nauseas and have really sore boobs! Its funny, everytime I feel a wave of nausea, I get a big smile on my face :D

This time feels different IYKWIM. I just feel positive, although it doesn't stop me checking for spotting everytime I go to pee! This is going to be a crazy 8 months!

Thanks again ladies, I have a stupid massive grin on my face after reading your posts.

D xoxo

Hi girls

Where there's hope: That is a good decision. I hope you can find some answers through the blood tests and the U/S.

I started takeing 100mg of B6 last Nov and in Dec/Jan I fell preg so I hope the same happens for you :goodluck2:

Deevine : Congrats :happyforyou: I was told 17 years ago that I wouldn't have a baby of my own. Well it took alot of hormonal treatments and laps and still no baby. Then "BANG" out of the blue it happened. I couldn't believe it and it took along time to sink in. I hope you have a problem free pregnancy and a healthy/happy baby.
By the way I had/have pain and I think it is from the endo etc stretching as my uterus stretches.

Take care
Chris

Hi Chris
Well, since speaking to you last I have been in the doldrums. Bled on Day 8 and Day 9. No reason given at US. Have narrowed it down to hormones or endo on my RH ovary or follicle. Day 9 ultrasound showed no follicles at all on RH ovary which has freaked me out (all on LH one). So, unless I have low Day 22 Prog I am going to do a Lap and Hyst next month. Still going to give TTC a shot this month.
Sounds like B6 agrees with you. Still not sure if I should take as much (was on 100 like you but cut back to 75) as that as my overall cycle is a nice length and I don't want to mess with it too much.
Glad your pregnancy is continuing to come along nicely and I hope the MS and pain is over soon for you:)

Hi, Where there's hope

It could be your hormones as alot of women have probs with there hormones after a m/c.

Vitamin B6 is thought to help conception and in pregnancy. Google Vitamin B6 conception. It is very interesting. I don't think it will mess with your cycle length.

I haven't been well, I even had to go to the local hosp Del suit.

Take care
Chris

Oh Chris, i really hope things get better for you soon. It's such big moment in our lives and with that comes fear and joy, all mashed together!

I do remember having pain with my pregnancy as things started stretching and bumping, particularly when i got swift kicks in the endo direction (ie right ovary...). but from what you are saying these pains must be pretty bad. my thoughts are with you at this time and i hope and pray all will get better soon!:pray:

take care :hug:

Chris
I was so sorry to read your message just now and learn that you have been in pain and in hospital. You are a healthy and deserving woman. I know you will get through this. Every day that goes by your baby is getting bigger and stronger. Please keep us updated. I have my fingers crossed for you!::hug:

Thank you Clare and Where there's hope,
At the moment every day is a bit of a struggle but I take it in my stride as I can't wait to see this little Pip and hold her in my arms (yes I think we have a pinky). When it really gets bad I lay down and try and picture (in my mind) holding my precious little bundle in my arms. Everything I go through is a part of the road I have to travel, every pregnancy is different, this one is just full bumps and turns.

I hope everyone is well.
Take care :hug:
Chris

Hi Ladies!

Thought to jump on to see how everyone was going. it's been awhile since we heard from eachother.

Chris: I hope that things are going well with you and bubs. you guys have been in my thoughts. big :hug: to you both and even bigger belly rubs!

AFM: things are travelling pretty ok. AF is a little sporadic (the last cycle was 5 weeks!!). but there was virtually no pain, which is a first in a long time. still unhappy that it lasts for so long though.

Anyway not much else to report, just popping in to say to hi!