Endo updates..... how are you travelling?

Hi girls
Clare - I'm getting there, I've been told that I have an Irritable Uterus (I keep getting contractions) I am up at the Hosp often with them. Registrar told me to take Bascopan to slow/stop them (sometimes works) but yesterday Head Dr said not to take it. I would rather not take it as I don't know if it can affect the baby. Plus I already take heap of pills.

Lucky you to have less pain with AF. Are you breast feeding?? I hope it don't get worse, you never know the pregnancy might have helped the endo. Well you can wish!!!!! Hopefully your cycle will work itself out and the pain will stay away.

How is everyone else???

Cheers
Chris

Hi Clare and Chris.

Clare: Good to hear that you have little pain. Hopefully it stays away and your AF sorts itself out!

Chris: You seem to be having a really hard time with this pregnancy. Wouldn't it be nice to have a 'normal', no problem pregnancy?! It sucks that you have to go through this. :hug:

AFM, I'm just over 9 weeks and spent last thur and fri at the emergency department due to bleeding. I had an ultrasound and everything looked fine, and my HCG was like 200,000 or something. That put my mind at rest a little. Then come monday, I had more bleeding, and now i've had more today. :(

Getting a little fed up with everything. I've had crampy period like pain (well not like my normal full on period pain). I still feel sick and still have sore bb's, so thats a good sign. It just feels like i'm in limbo. Like I can't get excited yet incase something goes wrong. Such a bizzare place to be in. I've got an appointment with the early pregnancy assessment clinic tomorrow for an ultrasound, so hopefully everything will be fine. :crossfingers:

D :wall:
(formerly Angel_Dee)

Hi Chris and D!

Thanks for the well wishes! i was pretty stoked with ol' AF this cycle, as the last 2 were horrendous.

Chris: here's sending you loads of :hug:. i can only imagine the tiredness (physical and emotional) that you must be feeling. it sounds as though you have got good monitoring happening though, so at least there is some sort of a silver lining!

D: oh wow! 9 weeks already! how the time flies. I am sorry that it has been a stressful time for you. here's sending loads of :stickyvibesgirl::stickyvibesboy: and also some big fat :hug: i hope the appointment has gone well today and that bubs is kicking back and relaxing in there!

Chris - I know too well how much of a pain an irritable uterus is. You poor thing but one positive I found was given all the contracting I did for the last 8 weeks I had a very fast and easy labour - here's hoping some good come of it for you too. Take Care.

D - Congrats on the pg, sending you lots of sticky vibes.

Big hello to everyone else, hope your endo is behaving itself.

I have some good news. We are expecting again. Early days but Hamish will be a little 'big' brother in March next year. About a 17 - 18 month gap. Yep I'm crazy I know but if this does get rid of the endo for once and all nothing will - lol.

Hope you are all well,

Cindy

Hi Cindy!

Congratulations!!!:happyforyou: fantastic news!

BTW we LOVE crazy! LOL! :dance:

Dear Mumszword:
i just joined your forum to be comforted and hopefully you or some other of your friends can assist me. I recently had a laparoscopy to diagnose lower abdominal and associated pains on the right side from ovulation through menstruals but it found nothing abnormal and it was suggested to be more related to bladder or colon problems. My concern though is that although i was feeling the pain on the right side, i received a cut in the bellybutton (navel) and to my left side. Is this normal? or was the wrong side (left) investigated? Has anyone been given these results and later found that it was related to one of the 2 organs mentioned above?
Hope to hear from you soon. Thanks

Hi girls
Tashechann - The problem with endo is that it can be so small the naked eye can not see it and if they did a scrap they could've scraped in the wrong place. I have read case stories on this. Sorry I can't help with the other stuff.

Dee - I had alot of pain in the first tri and into the second. At 16-22 weeks I had bleeding. As you can see little Pip is still snugg and safe. I hope it all settles down soon. how did the US go?? Your ticker is still going so I'll take that as a positive sign.

Cindy - Congrats!!! I have 20 months between my 2 and it can be fun. I will have a 3yr gap between Pip and DS /5yr between DD and Pip. So this will be interesting on how they include Pip into their play. Any how I hope you have a perfect pregnancy :hug:

Cassius - How are you going??? I hope AF keeps being good to you. I know I am not looking forward to her visiting me again :redface:. But it normaly takes a few months after a birth for her to show her horrible side to me.

AFM - I am still hanging in there. Pip is doing well, I had a scan this week and got to look at her in 4D and that was amazing. She has a big head (over the 95th percentile on the chart). So I am not looking forward to the birth as much now :redface:. I was in hosp with high BP and protein in urine a few weeks ago so I am on more pills (that make me sooooooo tired). While I was in hosp I got a day of irritable uterus and I had an baby ecg and seen how Pip's HB went up when I had a contraction.

Take care
Chris

Hi Chris!

So good to hear from you! and great news that Pip is staying put! also, pretty exciting about the 4D scan! i wish i had some done with DD! maybe if we go again, i'll get some done!
ouch about the head! LOL! luckily they are a bit squishy during the birth! how exciting! i can't wait to read your birth announcement (not long now!!).

big hugs :hug:

Hi Ladies,

Joel's girl - thanks :hug:

Chris,

Wow... look at your ticker go!!

My u/s went well, I got to see a little alien, and got good results for the downs and trisomy numbers. Since then, i've been feeling less and less pregnant. m/s has gone (touch wood!) and i'm not soo tired anymore (although, getting up 3 times a night to pee isn't fun).

I've had some pain the last couple of weeks though. Its scary, cause its the kind of pain that i'd get before my period, that really achy, wavy pain in the uterus region (not quite sure exactly where my uterus is sitting right now though. lol.) I feel it is the endo, and with everything moving and stretching, its just being a nasty bi@tch.

I had the tiniest amount of red spotting yesterday... I rang the hospital today, and the midwife was like its nothing. I love it how things are dismissed soo easily. I'm A neg blood group and was told by the early pregnancy assesment centre that any bleeding after 12 weeks would require another Anti-D shot as the one I had at 8 weeks wouldn't cover me. But this midwife said I didn't need it. Its soo hard to know what to do. :wall:

Sorry for the rant ladies.... feeling very hormonal today! Want to bite all the customers heads off!! lol.

How's everyone else traveling?

Dee :hug:

Hi D!

I would definitely press the point home with hospy again. gather all your pregnant lady crazy juice (wish i still had some of it actually!) and vent and rage until you get noticed.

all the ouchie stretching pain i think takes on a whole new level for us girls with endo. i remember sometimes having the breath taken away from me when things got really active down there. and going by your ticker it sounds about the right timing as bubs really starts packing it on from here on in...

also, i remember that when the kicking started and when she engaged at 35 weeks, that the pains were quite 'interesting' as she had a knack for knowing where the endo was! LOL!

I hope that you get a more sympathetic ear the hospy next time, or at least some big fat :hug: from a loved one!

take care xx

Hi girls
Clare: Hi how are you???

Dee: I had alot of pain when I was first pregnant also, I just put it to the endo stretching. I hope you don't get Irritable Uterus.

AFM: I have been very good and doing everything I can to keep out of hospital. :rolleyes:
I had a little bleed a few weeks ago (the day of my scan). But when the scan looked good.
I am haveing another scan this week, I hope I get another pic!!!! I am finaly getting in and getting ready for the arrival. I have done all the baby washing and the room is nearly ready.

I hope everyone is well...
Take care
Chris

Hi Chris!

Oh wow! check out that ticker girl!! not long now...:dance:

things on my front are looking up! last cycle was very very boring :dance: and uneventful! my first in years!!! so am pretty excited to say the least!

Hope everyone is good, can't wait to hear your BA Chris! counting down the days!

take care xx

Hi Clare. Wow, thats fantastic to hear that you've been having a uneventful time with the endo. Gives me a little hope!

Chris - I've had such a stressful time lately. Had bleeding pretty much every week since 8 weeks... and this last couple of days it seems like its happening more often and more in quantity. So, its really all too much right now. I've called the anti natal clinic that has been seeing me, and the midwife I spoke to was no help at all. I got soo upset on the phone that I had to put DP on. The midwife told us to go to emergency, which i am not doing seeing as i've spent way too much time there. All I want is an ultrasound or for them to use the dopler.

I'm really disappointed at the level of care the anti natal centre at the public hospital gives. They really don't seem to care. I've called the Early Pregnancy Centre which is at the hospital, where I've been before, and just waiting for them to call back. I'm also considereing calling the Birth Centre where I had a tour to see what the midwifes there say, seeing as they seemed really nice.

The midwife at the anti natal clinic even told me to go to my GP?! I'm not doing shared care, so I don't understand why they won't take responsibility for my care and see me. Sooooo frustrating! :wall:

What do you ladies think about hiring a Dopler? I've considered it, but i'm scared that if I don't get the hang of it, and can't find a heartbeat, that it would be a lot more stressful.

Arrggg. Sorry for the sulky post. I'm just soooo frustrated right now, and don't know what to do. I feel like i'm trying really hard to take it easy, but my body just doesn't want to behave.

Oh, and Chris, good to see you're on the home stretch!! Soo excited for you :dance:

Dee :(

Hi D,

I'm sorry to hear that you have been having such a hard (and scary!) time. how insensitive of the hospital staff. i hate it when they treat you like some number in a queue. yes, they see pregnant women all the time and they see all sorts of stuff so it's easy for them not to feel frightened or scared. but for us mummas' is scares the bejeezus out of us; especially when we have been struggling with endo. we know that our bodies have had a journey to get to this point and having a baby means something different and more intrinsic IMO.
I really hope that you get some answers, or some decent support! is there anyway that you can hire a private midwife or a doula? not sure if this is up your alley or an option, but maybe it could be a good way to barrack for your rights and needs. i know that i'll def go down that path next time. and hey, why not try the doppler?? i was sooooo tempted too!!

big :hug:

Clare

Hi everyone
this thread is a great idea.
my journey has just started and already i feel like i've been on an emotional rollercoaste ride.
i had the dye test done last week, with minamal success (and loads of pain). next week i'm due to have my lap. I'm feeling out of my depth, and have never been so sad! i never thought falling pregnant would be so hard and emotionally draining.
I have a really great husband, has been a real rock, but sometimes you need to hear about other people experiences.

Hi girls
Dee: Your nearly half way!!!! That is soooo good. I had bleeding on and off till I was 24 weeks pregnant. Plus I had a small bleed at 30 weeks.
Is it heavy or just when you wipe?? Could you have thrush as it can cause bleeding (even enough to spot on a liner).

Cassius : I am glad to hear that Af was good to you. I hope she is gentle next visit.

KLT: Hi your in the right place here. We have been through alot with our struggles with endo. Every girls story is different. I am preg with my 3rd bub now, so don't let any Dr tell you that it can't be done. I found out that I had endo when I was 20 and didn't fall preg untill I was 35, but I did fall preg. Good luck!! I hope your journey is a short one.

AFM: I am nearly there!! Sick and tired of bed rest :redface: Its my BP that is playing up at the moment. I am trying to stay out of hospital by going to the daystay unit instead to be monitered.

Take care
Chris

oh my goodness Chris!! you are SO close! :dance: My girl was born at 38 weeks...so by my books that is very very close!
good luck with it all...on the home stretch now!

KLT: welcome! i'm sorry that you also have to deal with endo, and that yeah, getting pregnant has a whole new meaning for us girls...
it's great news though that it has been identified and that you guys are managing to do something about it. like Chris said, i think we have all been told that getting pregnant will be near impossible, but we have defied them!!

Good luck with the lap. :hug: i've never had one, so i can't give any advice on that one, but many of the girls in here have had them, and they have helped enormously.

Thanks for your encouragement! It's nice to know there are other chicks out there with similar problems. Fingers crossed that after the lap, I'm given the all clear. If thats the case, then they say they're going to put me on a fertility drug. Hears hoping anyway!:)

Hey girls :)
Wondering if any of you have seen this thread posted by a new member?

https://www.bellybelly.com.au/forums...ml#post1428651

Just wanted to direct some of you towards it, in the hope that you may have some more words of wisdom or advice? :)

Nic

Hi everyone,
I had my lap on tuesday, and it didn't go so well. apparently me bowel was in the way, so the doc wasn't able to get in and do want she needed to do. Has this happened to anyone else? Apparently my uterus and ovaries look great, but she still thinks my tubes are blocked. i have an appointment with my doc tomorrow, to go over my options. IVF is one of them, and she did mention something about a bowel dr....I just wanted to know if this problem as happened to anyone else...i'm a little confused!!!

Hi Girls

KLT : I haven't had that prob. But I do know that sometimes endo is not visible with the naked eye.

AFM : I am being enduced on monday, I have also been in hosp twice since I last posted. So it is great to know that the end is near.
After I have had bub I will be having another lap and a hysteroscopy in the months following the birth. (sooner the better as I was told my Dr is leaving in Dec :doh:).

Hi there girls!

Chris: good luck for Monday! we look forward to seeing your bubba's birth announcement! Look after yourself, and enjoy as best as we can! ;)

yeah, i guess i would also be wanting it to get done before your dr goes...especially if she knows your whole case history and stuff.

KLT: Havent had this personally, although a friend of mine had issues where the endo had caused scarring that had involved the bladder. it also stopped her from having full laps done...so i guess that it's not uncommon....ITH?!

and it's great news that the ovaries and uterus look good IMO. at least there is a bit of a silver lining there. i guess it's the not knowing part that's that hardest. but trust me, all is not lost! i too was given IVF as my only option. fortunately we didnt need to go down that path, but it was a pretty confronting conversation so BIG :hug: to you.

AFM: well AF is doing ok pain wise. they seem to be sneaking up again in length, but as long as the pain is not around i am happy. my only concern ATM is that the O pain is BAAACKKK and pretty bad. which has me worried about the endo flaring up again on my wee ovaries. egad. but i still will be positive.

Hi everyone,

I'll join in here too if I may.

I had a lap 8 years ago for endo which was removed off my left tube but conceived my son very easily nearly 5 years ago and my daughter over 2 years ago even though I could feel the endo feeling again just before DS was conceived. Both my children were conceived from eggs from the right tube which leads me to think maybe the left isn't working so well.

I have been TTC for at least 8 months now (I think it may actually be more but Ive lost track of when we seriously started TTC) but to no avail. I get horrendously painful AF and O pains since having DD and I have a feeling that endo is now on my right side too.

I have been getting acupuncture for the past month to try and clear it out and Im off to the Dr tomorrow to talk strategies.

I had my Drs appt today. Im off to a gyno on Fri for ultrasound and another lap. Had bloods too to look for pcos, thyroid and iron deficiency. fun fun.

Hi Annsam!

sorry for taking so long to reply...i have been lucky enough to have had a wee holiday up the coast.

i have the endo on the right as well. it has been fairly quiet since having had DD, but some cycles are better than others.

How does the acupuncture work for you? i am interested in trying it out...

hope the blood test goes ok...

Clare

hi there girls.

it seems i am the one haunting this place lately LOL!

just jumping on as i feel sorry for myself. AF has come smack on time (great!) but now just doesnt want to leave. i have been clear since having DD (only small hiccups) but today it got so bad that i had to call DH to come and take me home. i can honestly say that the pain i felt today was like labour pains as you enter transition. that bad. i cannot believe it. thought i had beaten the monster. oh well. back to the drawing board. will have to give my homeopath in italy a bell and see if she can send me stuff over...ho hum...:doh:

sorry for the 'me' rant!

I'm sorry to hear your in pain again cassius. Although I only had 2 cycles before I fell again hey were not what you would call pain less !! It's interesting to have something to gauge the pain on now. ie: labour.

I always thought I had a high pain threshold and after labour I can say that I do, I know what your saying when you describe the pain as being as bad as transitional pain.

Hope AF does stay too long. Rant away I say, that's what we are here for.:hug:

yeah i always used to pride myself on having a high pain threshold. that's why i got freaked out when endo got really bad before i fell with Leila. because i was like: this cant be as bad as labour and i am a mess...now i know that it is as bad! (not sure whether to laugh or cry on that one LOL!).

Hi,
i'm new at this...but my story is similar to most of you.
I had painful periods from the time i started getting them when i was 13.
Went to several doctors and they said its just period pain.
finally got a referral to a gyno from a very nice GP who was also very old and about to retire....by this time i had ended up in hospital several times from passing out, low blood presure and on heavy medication for pain. I couldnt eat...my periods lasted months (about 4 months at a time) and i would bleed really heavy...couldnt even take a shower without a mess and was embarrased to go out.

was on the public hospital waiting list to see a gyno...but decided to go private after the hospital emergency room visits.

The gyno booked me in for a lap...confirmed i have endo and severe inflamation...after the lap i went on zolodex for 6months. Endo came back just as bad about 6 months after Zolodex.

Was diagnosed with PCOS after second laparoscopy...
dont know how but we fell pregnant with our son (whos 1 now).
I wanted a natural birth but it ended up being an emergency cesar... the scariest experience i've ever been through (2 weeks in latent labor and 16hours in active labour with coupling contractions).

after giving birth i didnt stop bleeding so they put me on hormone therapy...and during this time was diagnosed with Adenomyosis... which brings me to now...i'm 22 and have to plan when to have a second baby so i can have a hysterectomy asap.
so i'm guessing at the moment that by 24 i wont have a uterus anymore to worry about. Lucky that i fell in love young and got married...god really does work in mysterious ways.

Hi Mehza! and welcome!

i have to say that i agree on finding love young! I am 25 and was 23 when i fell pg with DD and i have to thank my lucky stars that DH and i found eachother so early! i was told back when they first diagnosed my endo that i would be more than likely infertile by 25 due to the scarring etc. freaked me out at the time (esp as falling pg was a hard won battle).

I am sorry that you had such a scary experience with your labour. that must have been tough. :hug:

when do you plan to start your TTC journey?

probably in Feburary next year...depending on finances.
Thats terrible...
i was deemed not able to have children as well...but it happened (accident to).
R u planning on trying?

not at this stage. we are going to TTC again when DD is closer to 3. that's if endo doesnt come back full swing. ATM we are playing it by ear...

february! that's pretty exciting. fingers and toes crossed for a good journey there!

Hey cassius 2,
yeah i'd like to wait but have to have a hysterectomy so trying to squeeze another baby out. just trying to...if it doesnt work out then at least we gave it a shot.
what are you taking for oyur pain?

Hi girls
I don't get on that much these days as Bub seems to know when I am at the comp.:rolleyes:

I was wondering if any of you girls had alot of pain after birth??
I have had pain since the birth, it is that bad that I am taking alot of pan forte/Ibruphen.
I thought the afterbirth pain should be over and done with by now.

Take care
Chris

Hi Chris , good to hear from you but not so good about the pain dear.

I didn't have too much pain after birth. It surprised me, I thought there would have been more. Is it endo type pain? Maybe a call or visit to the OB / midwife might be helpful, I had a friend that retained some placenta and bleeding heaps and in quite a bit of pain. It can't hurt to get things checked out.

Hope your feeling better soon.

Mehza: wow that must be a pretty major thing to get your head wrapped around. big :hug: you sound so strong! is there a definite time-line on when the hysterctomy needs to be done?

chris: yeah, i'm afraid that i didnt really have bad pain afterwards. like JG i was expecting it, but it didnt happen. it may be worth checking out, just to make sure that nothing has been left behind. big :hug: to you too!

AFM: well it appears that it is coming back...boo hoo. after my scare at uni, it all appeared to go back to normal and AF finished in good time. then a couple of days later i got the bloating feeling and small cramps and sure enough (sorry if TMI!) but older looking blood followed. has now been continuing like this for 3 days. pretty bummed, as i know the signs...ho hum. luckily i have one treatment round left over from my homeopath that was given to me just before i fell pg with DD...

as for pain treatment i have been trying with just nurofen, but when really bad i raid my stocks of panadol forte...my bad i know...what about you girls??

Hi girls

mezha : Why do you have to have a hysterectomy???

Cassius: For pain I use both pan forte and Ibrufen (nurophen). But if pain is really bad I will use Indicid (a suppository it is from the same family of drugs as Ibruphen but it is very strong hence the suppository (sp) way I have to take them But they do put me to sleep so I hve to have someone to look after kids).

AFM : I have an appt with GYN to see what I can do about everything, but that is in Dec (earlyest I could get). :crying: Between the pain and sleepless nights I feel like a zombie this afternoon :wall:

Take care
Chris

Hey Chris n cassius,
i have adenomyosis, endo and PCOS so my uterous is in pretty bad shape...am on hormone therapy at the moment which lowers bone density and a million other side effects so i cant stay on it too long. originally it was a hysterectomy at 30 but now its soon cause somedays i cant get out of bed on hormones and thats the only other solution.

Chris: Yes i had pain after birth as well the endo came straight back...i suggest for you to see your doctor soon. Especially if your in that much pain, even if it is your GP or a private gyno. doesnt sound too good.

Oh chris big hugs sweet! :hug:

hopefully the pain will settle to something more manageable between now and then...

that really sux about the waiting time. have you had a 6 week check-up? maybe a MACH nurse can get you into someone she knows???

Mehza: oh girl that sounds really painful! :hug:

Im with cassius Chris, Dec seems too far off in the event that it's post birth related and not endo related, IYKWIM ?

Cass - Bugger that your starting to see those familiar signs again. Big Hugs dear. I managed my pain with lots of heat, showers/hot packs etc , then naprosan (prescription) but I know they are not the best thing for your body but they were the only thing that allowed me to get out of bed and didn't cause too much drowsiness.

I just wanted to mention to mehza that depending on where your endo is a hysterectmy may not be the godsend you think. Its often the easy option for the dr but if your endo is outside that area, bowel etc you may still have trouble, sorry to be the bearer of bad news but I've done lots of research on this and was shocked to find that it is not a gaurantee at all - for me (I had not yet had a family) it was NOT a risk I was prepared to take. ie: have a hysterectomy, be on medication for the rest of my days or go into early menopause AND STILL PUT UP WITH ENDO PAIN...... There are other options dear.

For me - Im starting to get daily pain on my left side again. I had it while pregnant with H as well. I thought at the time that it was due to the recent surgery that did not have time to heal properly before I fell pg but no it seems to be just what my body does during pregnancy - great ! Fingers crossed that my uterus doesnt become irritable again and start contracting early. That was so tiring and worrisome. All a byproduct of too much abdo surgery over the years me thinks .