Thank you for all your kind words, I’ve been trying to get my head around all the information the Dr Cooper gave me last Tuesday. Sooo much to take in! Feeling very frightened and unsure, hence the ostrich approach for the last few days ! My DH has been my rock as always, thank you so much for being kind to him. Slowly coming to terms with everything but still have lots of questions if any one can help….
-There is a possibility that I may have Bladder involvement as well, but Dr Cooper hasn’t recommended a surgeon or specialist so far do any of you experience this procedure as well?
-Understand this can of thing differs in every patient, but my biggest fear is waking up with a mass of tubes, drains or colostomy bags attached to me. Can anyone comment on their own experience?
-I’m not a fan of western medicine had to many bad experiences with people giving me all sorts to try and treat my endometriosis. What sort of pain relief and drugs were you lovely ladies on? (Again appreciate this differs in every case).
-Did you all under go your procedures at the RPA (Royal Prince Alfred) what was the patient care like?
-Are any of you taking part in DR Cooper’s medical research program?
I’ll probably think of more things in the next few days, any support or assistance very gratefully received.
It's understandable to be so anxious but like I stated above you are in the best of hands really...........I only said to Joel the other day I wish Cooper could deliver the baby as I would know all would be OK, my OB on the other hand is a standard type of doctor, (explains nothing, you are the patient and they are the almighty doctors), you just don't get that from Cooper.....He's truly a special doctor.
To answer your questions.........Yes it can affect your bladder and it did in my case too, I also recall being told that the endo covered my urthrer (sp?) and that it was oversewn/reinforced for strength after removing the endo.
I don't recall any extra tubes (except for the catheter) just normal surgery bits and pieces. I did have a little trouble peeing but got there in the end. The nurses had to measure my wee for a few days. I think this had more to do with the extensive surgery to the urthrer though.....
As far as pain relief I had a IV drip which dispensed morphine at my discretion, a found a pessoratory very helpful (can't recall the name though) and oral tablets, panadeine etc........ the morphine was a god send for the first day or two.
I am part of Cooper's medical research and think it's a great idea. I've only had one follow up and it wasn't too helpful as I was pregnant but I suspose that's an outcome worth recording in itself.......I"m due for a call in a month or so.
Cooper did my first op at St Lukes at Potts Point and the second surgery (to accommodate the bowel surgeon) at St Georges Private Hospital at Kogarah. Sorry have no experience at RPA...........
Good luck and feel free to ask any other questions you may think of.
Thank you Joel’s girl I’m so grateful to you. I feel really confident being a patient with Cooper he has been very kind to me and called the day after my initial consultation to check I was ok, having noted how shocked I was after our discussion. I have a few other questions spinning around in my head:
- Is the operation done like a laparoscopy (key hole) or is there a larger incision made? Will I be ok with stairs?
- Do you mind me asking, during your operation did they remove Endo from the bladder, bowel etc all in one go? Was your Bowel surgeon Professor Solomon?
My surgery was able to be by keyhole, I had four small incisions in total, but truly they were no problem, caused me no pain at all, which has not always been the case in my other 9 surgeries.
The first surgery proved to be longer and more time consuming than Cooper had expected and although the bowel surgeron (Dr Matthew Morgan) was on stand-by he was held up in other surgeries and couldn't make it to do the bowel bit. Cooper was very apologetic but I needed to have another operation ten days later to complete the surgery. Ten days later Cooper found more endo and Morgan did his bit on the bowel then. I vaguly remember the 1st taking 4 hrs and the 2nd over 5.5hrs.............so it must have been a big job I suspose.
Before the 1st surgery Cooper told us that he suspected bowel involvment but couldn't be sure and wanted Morgan on stand-by. He said that he does this often and is right in 1 out of 4 cases but prefers to be prepared. What tests if any have you had done to confirm any bowel involvement ???
If I can make some suggestions in preparation for your surgery. Do some light cooking, soups etc and freeze them. You won't be able to stomach much more for a week or so. I also enjoyed puree vegetables that I could add gravy or similar to. If I knew what to expect I would have been more prepared as I didn't feel up to all the time-consuming cooking when I got home.....just a thought.
! My DH has been my rock as always, thank you so much for being kind to him. Slowly coming to terms with everything but still have lots of questions if any one can help….
. What sort of pain relief and drugs were you lovely ladies on? (Again appreciate this differs in every case).
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. I feel really confident being a patient with Cooper he has been very kind to me and called the day after my initial consultation to check I was ok, having noted how shocked I was after our discussion. I have a few other questions spinning around in my head:
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