Just out of curiosity, are there gynecologists that specialise in endometriosis? Basically, will any gynecologist be able to test / diagnose / etc endometriosis? I have an appointment with a gynecologist next week (private) and I'd like to know if it 's something that will need to referred to someone else?
The specialists on the ECCA site have a special interest in endo so I agree with nic wholeheartedly about seeing someone who is associated with them.

Other gynies may use a old 'traditional' technique of removing the endo which is not as good and only gives temporary relief, also in my experience a standard gynie won't necessarily have the experience to look further (bowel etc) - they just seem to scratch the surface IYKWIM.

Yes some procedures can be scary but this is such a hideous disease and it truly cannot be ignored. I know I tried for years and years too do exactly that.

I wish you all the very best jakodai, please keep us update, you'll find that we are a pretty good support network here.