A Newie with Stage 5 Endo - Advice?

[Mumszword]

I just found this great forum tonight.... Could not sleep ... got a bit on my mind....

I had a Lap 2 weeks ago today.... This was due to infertility and lately (last 12mths)ending up in bed unable to move in so much pain.... (worse than childbirth.. ) ( Have suffered from pain as far back as I can remember and have a high pain threshold....)

Well I had my followup appointment today and the news was not good. Stage 5 endo involving uterus, tubes, ovaries and bowel. Extensive scaring, adhesions and fusing....

My gyno, who is a very good one said its the worst of his patients he has seen in the last 20years and too extensive to do anything for me and is refering me on for surgery ASAP. He has told me that if I had not been wanting to fall pregnant he would have reccomended a full hysto....

I have left my Gyno (which I have only being seeing for 1 year) scratching his head as to how it got so far without being diagnosed earlier... Had all the symptoms but brush offs from General GP's and Womens Health as to "Its normal to have pain"..... have left me with almost everything fused .... except for my bladder luckily....

Any advice, support and if anyone is willing to share their experiences with endo would be very much appreciated.

Sorry for the long post.....

Many thanks

Mumszword