Hi Mumszword

Sorry for the late reply, I just discovered this thread....I was diagnosed with "severe" endo (they didn't give me a stage) in March 2005 after I saw my GP for a checkup and asked her for a different pill as I was spotting and still getting pain (I rated it as 12/10! I also have a high pain threshold!). She said "Oh you shouldn't get hardly any pain on the pill" and sent me off to the gyno.

The lap showed I had adhesions, scar tissue and endo throughout my pouch of douglas, all over my ovaries and uterus, and my bowel was attached to my left ovary. I later realised that was the reason I had horrible bowel movements at ovulation and period time. The gyno did dye tests on my tubes and both are completed blocked. The left one has also got a bit of a twist at one end. The gyno removed all the endo (hopefully). She wanted to put me on Zoladex or Danazol but I refused. I had zero period pain for about 1 year after the lap. Now it's slowly creeping back (6-7/10).

I find eating well and exercise helps cope with the pain and I hope it is also doing my insides good when it comes time to do IVF.

As all the other girls say, don't give up, there are lots of options out there.

Best wishes...
I had the dye test and luckly enough the dye flowed freely through my tubes.... so I am really thankful for this....

I have surgery scheduled at this stage for two months time to remove all endo if possible. I will get to find out how far spread it is at this op and depending on how much repair they have to do will depend on how long I have to spend in hospital..... I have been told to allow anything from about four days to two weeks..... all depends on what they end up doing and how long I take to recover from their handy work

Atleast I can see a light at the end of the tunnel. DH and I have decided not to do IVF and rather to leave it in the lap of the Gods when it comes to TTC. It just seems to be the better way for us as there will be less stress and also financial burden. I believe if its ment to happen it will once I have had the surgery and recovered from it... Also I have my age I have to factor in ..... reproduction wise I am no longer a spring chicken so best to let nature decide.

If surgery can atleast get rid of the nasty affects of the endo then I will be happy.... hopefully more energetic and a happier person.....

I definately don't want to use hormone therapy if at all possible in relation to the endo.... I have read a little about it and don't like the sound of the affects it can have on your body.... I feel like I would just be trading off one problem for another.

Well thanks again to everyone for your comments, advice and sharing your experiences.... I really wish everyone the best in beating their endo and TCC.

Take care

And remember "Faith is the substance of all things hoped for and things not seen"......