Newbie with Stage 5 Endo incl. Bowel

[Nikstar]

Hi Newbie,

I have stage 4 endo, but found it to be really emotionally draining. I have had 4 operations in a year and had it all around my bowel and bladder. I have now noticed, after having 2 recent operations that the pain is still there around that time of month when I need to go to the bathroom. Is this what you experience? How do you combat the pain? Its so disheartening to go through the ops and still have pain. Does anyone have any suggestions as to how to manage this? I am at a loss as to what to do. For the record too, I love this website, its like I can chat to people who know exactly the frustrations we go through. Its an awful thing to go through.

[Rainbow]

Hi Nikstar,

I know what you mean about endo being emotionally draining. Not to mention physically draining, financially draining, etc etc!

4 ops in a year - wow! Yuck. I will have had two ops by the time this year is through. Hopefully no more in a hurry!

Apparently my bladder is clear but my bowel is a mess. However, I still get pain on emptying my bladder when it's my time of the month, and I also occasionally get bladder frequency. As for my bowels, they are never much fun, but during my period they can be a bit of a nightmare. Pain, irregularity, etc...

The only thing I know how to do to deal with the pain, is take painkillers and remind myself I have surgery coming up! Thankfully I am pretty much always at home so that makes the bowel stuff easier to deal with.

I can't imagine how shattered I would be if I go through my op and still have issues afterwards! I guess if that happened I would put myself on a strict diet and get alternative therapy.

All the best!!