PCOS Support

[*LittleMissSummer*]

I got on the scales when i was diagnosed and i weighed 104kgs. I felt disgusted in myself especially when i weighed 65kgs when i was 16. My weight went up a bit before i fell pregnant so i was 97kgs. At my 6 week appt i was 92kgs and then when i was 22 weeks i was 87kgs but thats due to terrible morning sickness i couldnt eat anything and i didnt want to eat anything. But at my last antenatal appt (26 week) i was 97kgs so in a month i gained back all the weight i had lost but id say its all baby and because i have been able to eat. I'd like to stay under 100 for the whole pregnancy and i know most of it is baby so i will lose it afterwards.

I'm hoping my insulin levels have dropped if they are a bit high i will ask to go back onto diabex, im hoping to get down to 75kgs after the baby. I noticed when i lost 10kgs my symptoms of pcos backed off, i wasnt so crampy and i seemed to have more regular AF's.

Pcos is a terrible thing but not so bad if under control.

[~Gee_Whizzy~]

I got on the scales when i was diagnosed and i weighed 104kgs. I felt disgusted in myself especially when i weighed 65kgs when i was 16. My weight went up a bit before i fell pregnant so i was 97kgs. At my 6 week appt i was 92kgs and then when i was 22 weeks i was 87kgs but thats due to terrible morning sickness i couldnt eat anything and i didnt want to eat anything. But at my last antenatal appt (26 week) i was 97kgs so in a month i gained back all the weight i had lost but id say its all baby and because i have been able to eat. I'd like to stay under 100 for the whole pregnancy and i know most of it is baby so i will lose it afterwards.

I'm hoping my insulin levels have dropped if they are a bit high i will ask to go back onto diabex, im hoping to get down to 75kgs after the baby. I noticed when i lost 10kgs my symptoms of pcos backed off, i wasnt so crampy and i seemed to have more regular AF's.

Pcos is a terrible thing but not so bad if under control.

hun, you are doing awesome and you're growing a healthy bubba - i was unfortunate to develop GD at 28 weeks - it was diet controlled until 30 weeks where no matter what i ate my levels were sky rocketing so i ended up having to be put on insulin - wasn't fun, but the upside was that i actually lost weight and the week before i gave birth i weighed 98kgs. 4 weeks after birth i was down to 78kgs i had never felt so happy and healthy, but then slowly, over the last 15 months since DD's birth the weight has just crept back on and i cannot shift it and i know that is what's triggering the pcos, i was 92kg 3 months ago, so i'd hate to think what i am now

Just a quick question for all you ladies with pcos, do any of you have "skin issues"? - i get terrible boils between my thighs (so embarrassing ) and i've read it is quite common in women with pcos?

[Rowellen]

I get blind pimples over most of my upper body. Face, neck, chest (even boobs), upper arms to my elbows and all the way down my back sometimes even on my bum. They are very painful to the point they are distracting and I pick at them until I bleed. I hate it. The pill I take stops that but of course I can't take it when TTC. ATM the combination of diet & metformin (diabex XR) is what is keeping them under control but sometimes on will slip it's ugly head through.

I'm not overweight but I really struggle to keep my weight down. I eat almost nothing but still put weight on. I'm trying to lose about 5kgs to get back to my pre-pregnancy weight. I had lost 2.5 kg (it took 2 months) but we went away for a couple of nights (yes just 2 nights) and I put on 1.5 kgs Back to the hard slog again.

Negrita, I can't imagine how much harder it is for you, having endo on top of PCOS. PCOS on it's own is bad enough. I hope we both get our BFPs quickly.

[~Gee_Whizzy~]

I get blind pimples over most of my upper body. Face, neck, chest (even boobs), upper arms to my elbows and all the way down my back sometimes even on my bum. They are very painful to the point they are distracting and I pick at them until I bleed. I hate it. The pill I take stops that but of course I can't take it when TTC. ATM the combination of diet & metformin (diabex XR) is what is keeping them under control but sometimes on will slip it's ugly head through.

Negrita, I can't imagine how much harder it is for you, having endo on top of PCOS. PCOS on it's own is bad enough. I hope we both get our BFPs quickly.

Mine start of as blind pimples and then they get MASSIVE and sooo painful, to the point i sometimes cant walk without being in pain cause of the friction of my thighs rubbing together they only relief is when they burst, but then thats gross, cause it takes ages to drain and i have to keep changing the dressing - im hoping being on Diabex is going to help with it as im sooo over being on high dose AB's probably every 2nd month, not to mention the thrush that the AB's inevitably cause - its just a vicious cycle!

Yes, the endo is a pain Rowellen (literally and physically!!) - i really thought after having a bub it would disappear or at least get better (apparently in 70% of cases pregnancy gets rid of it) but i guess i wasn't one of those lucky women - Im back to see my endo specialist on 18 May, so im just bracing myself for him telling me i need to undergo another laparoscopy - but i guess the "bonus" of that is that i will be all 'cleaned out" in the plumbing area, so maybe i'll get a bfp sooner rather than later

Big hun, i really hope we get our bfp's quickly too!!

[Rowellen]

Lots of hugs for you Negrita. It seems like luck is not on your side ATM. I hope that improves for you. I guess someone has to be in the minority but it is so unfair that it is you. You seem to have a wonderful positive attitude though - your posts are always uplifting in our TTC thread.

1stTimeMumma - I look forward to seeing your birth announcement - more proof that doctors can be wrong. Here's 3 of us that have PCOS who have all conceived naturally (pretty much).

It's interesting how insulin can affect so many things. It seems just about everything that's wrong with me is connected to that one little thing. I have a recurrent thrush problem. An offhand comment from a chemist connected it to sugar levels. I was buying diabex & a thrush treatment at the same time and the chemist asked if I was diabetic as thrush loves sugar. My doctor had never mentioned it. I'm not diabetic but the connection to PCOS was to close to ignore. While on diabex, pregnant or breastfeeding, I've hardly ever had thrush. Maybe 3 or 4 times in 3 years compared to every month normally. I also had a rather large baby (4.37kg). I've heard that GD can cause large babies - again sugar levels. I didn't have GD that I'm aware of but perhaps my levels were slightly up? Who knows. I might ask my doctor to keep a closer eye on it next time.

[~Gee_Whizzy~]

Lots of hugs for you Negrita. It seems like luck is not on your side ATM. I hope that improves for you. I guess someone has to be in the minority but it is so unfair that it is you. You seem to have a wonderful positive attitude though - your posts are always uplifting in our TTC thread.

Aww thanks hun i try to stay as positive as i can, but like any normal human, it does get me down some days! - but i just try to remind myself, that there is always someone, somewhere in the world dealing with a lot worse, and i shouldn't think the world revolves around me

It's interesting how insulin can affect so many things. It seems just about everything that's wrong with me is connected to that one little thing. I have a recurrent thrush problem. An offhand comment from a chemist connected it to sugar levels. I was buying diabex & a thrush treatment at the same time and the chemist asked if I was diabetic as thrush loves sugar. My doctor had never mentioned it. I'm not diabetic but the connection to PCOS was to close to ignore. While on diabex, pregnant or breastfeeding, I've hardly ever had thrush. Maybe 3 or 4 times in 3 years compared to every month normally. I also had a rather large baby (4.37kg). I've heard that GD can cause large babies - again sugar levels. I didn't have GD that I'm aware of but perhaps my levels were slightly up? Who knows. I might ask my doctor to keep a closer eye on it next time.

Yes, definitely the sugars can affect how many thrush infections you can get! I had thrush for the first time ever 2 weeks ago, i didnt know what was going on!! When i went to my GP the first thing he said was coupled with the AB's im taking and my elevated sugar levels, thrush would have found a "perfect" environment to grow - wow your bubba was large! - im assuming that at the 28 week glucose test, it came back clear? - my DD was 7 pounds 14 ounces (3.6kg) but i daresay had i not been on insulin for my GD she wouldve been much larger!!

[*LittleMissSummer*]

1stTimeMumma - I look forward to seeing your birth announcement - more proof that doctors can be wrong. Here's 3 of us that have PCOS who have all conceived naturally (pretty much).

Thanks hun

I am very excited and feel so lucky everyday. She is my miracle bub. And yes doctors can be very wrong, its just a matter of changing things in your life and you'll be surprised at what you can do.

I'll be to my lucky stars that pregnancy has settled down my pcos and the same goes for my insulin resistance id love to get down to my goal weight and just feel healthy again and be able to live without pain.

And i hope that they find a cure so that my baby girl doesnt have to go through what i did or more i hope i havent passed it onto her

[Rowellen]

Aww thanks hun i try to stay as positive as i can, but like any normal human, it does get me down some days! - but i just try to remind myself, that there is always someone, somewhere in the world dealing with a lot worse, and i shouldn't think the world revolves around me

That's so true. There is always someone who has been through worse and we have the benefit of modern medicine. Imagine trying year in year out pre u/s & blood tests not knowing what was wrong! We are lucky really.

- wow your bubba was large! - im assuming that at the 28 week glucose test, it came back clear? - my DD was 7 pounds 14 ounces (3.6kg) but i daresay had i not been on insulin for my GD she wouldve been much larger!!

I can't honestly remember even having it. Seems so long ago. I didn't know about the GD/size relationship until after DS was born so I wouldn't have thought to ask for it. My ob wasn't at all concerned about me as I had a perfectly normal pg with no alarming symptoms whatsoever (until he decided he was comfy in there and stayed a few days longer than he was supposed to ). All my scans were measuring to dates though and she thought he would be an average or even smallish bub - around the 7 pound mark. She was as surprised as I was to see how big he was. Next time I will make sure I ask and pay better attention to my diet.

[~Gee_Whizzy~]

I can't honestly remember even having it. Seems so long ago. I didn't know about the GD/size relationship until after DS was born so I wouldn't have thought to ask for it. My ob wasn't at all concerned about me as I had a perfectly normal pg with no alarming symptoms whatsoever (until he decided he was comfy in there and stayed a few days longer than he was supposed to ). All my scans were measuring to dates though and she thought he would be an average or even smallish bub - around the 7 pound mark. She was as surprised as I was to see how big he was. Next time I will make sure I ask and pay better attention to my diet.

i just noticed your DS was born not long after my DD (she was born 21 Jan 09)! - so was the glucose tolerance test not part of your care, you didnt have to drink that horribly sweet drink and then sit around for an hour and then have blood taken? - i thought it was standard pregnancy testing?

[Rowellen]

No I didn't do that test. I have done that before when I was being diagnosed for PCOS but not when I was pg. DS was actually due 24/1 but he just didn't want to come out. He was determined to be a Feb bub lol!

[~Gee_Whizzy~]

No I didn't do that test. I have done that before when I was being diagnosed for PCOS but not when I was pg. DS was actually due 24/1 but he just didn't want to come out. He was determined to be a Feb bub lol!

Ah ok! - Wow, i thought it was standard testing - hehehe your DS was nice an toasty in mummas house

[Rowellen]

He certainly was. I have the awesomest (is that a word??) stretchmarks to prove it too. Considering I'm only 150cm & he was huge, I'm surprised I didn't split apart. I asked my ob about my stretch marks and even she said "they are a bit extreme". He did decide to come out on his own though so he must have gotten a bit squishy.

[~Gee_Whizzy~]

He certainly was. I have the awesomest (is that a word??) stretchmarks to prove it too. Considering I'm only 150cm & he was huge, I'm surprised I didn't split apart. I asked my ob about my stretch marks and even she said "they are a bit extreme". He did decide to come out on his own though so he must have gotten a bit squishy.

oh my goodness you're so little!! LOL...arrgh don't even start on the stretch marks! My tummy's not too bad but my hips are just horrible!

Well they say bubs knows when to choose their birthdays

[damprye]

TTC #2 naturally with PCOS, I was told #1 was impossible but he is H&H and really wants a lil sibling (so does Mummy )
So for it has been 10months and 1 angel bub, I hope this doesn't take too much longer.

[~Gee_Whizzy~]

TTC #2 naturally with PCOS, I was told #1 was impossible but he is H&H and really wants a lil sibling (so does Mummy )
So for it has been 10months and 1 angel bub, I hope this doesn't take too much longer.

Big hun - PCOS can be such a deceiving condition - i have both pcos and endo and was told it would be very hard to fall pregnant naturally, yet, i have my "miracle" DD - Don't give up hope, im sure your beautiful bubba is just waiting in the wings to make his/her appearance

[Cathie]

Hi everyone, I'm a newbie to this site. I first got diagnosed with PCOS when I was 16, I knew nothing about it then and am actually saddened that it has taken me about 10 years to find a support group or other people that understand.
A few years later, when I was trying to conceive, my PCOS had gotten worse. My doctor put me on Serophene. Shortly after I conceived my ds Dean, who is now 4 1/2.
I still suffer from PCOS, as you all know, some months are better than others.
I wish everyone well

-Cathie

[tk1999]

AF returned post partum at 13 months all by herself no need for metformin and I thought things were on the up... I am currently CD50... need I say more

[tk1999]

Update... AF arrived CD55! That is my second longest cycle ever... longest was CD58