Risk and Avoidance of PCOS/Endo

[Kowhai Tree]

Hi again Bec,
Sorry I seem to be on a roll.

With regards to the endometriosis treatment.

I personally have found. I felt my best after surgery. I am sereve endometriosis as I said before.I have had 2 laparotomies. Which are more invasive than laparoscopies. Because (a)of the severity of my endometriosis and (b) Recovery time is longer - approx 6 weeks (depending on patient) and (c) they have to do a caesarian cut to investigate rather than investigate through your belly button.

I had a hard time recovering from the first op. For some reason??, I had lost 3ltr of bleed in surgery?? They never fully explained and I didn't ask.I wasn't in any state to argue rights and wrongs.I had to sign for a blood transfusion, the hospitals explaination was, if taken in pill form it was going to take too long to get back into my system. I was very fatigued and had lost a LOT of weight. Anorexic looking. The only thing I had was pain killers to help with the pain at home.

After about 6 months (max) the endometriosis returned. I was then on zoldex injections for 3 months. To Prep for the 2nd laparotomy. It is administered by injection. Zoldex does effect your bone density. Which chances are not always reversible.It's main purpose is to stop you ovulating. And shut down your cycle. So the endometriosis strinks. It had put me into a menapausal state on the last month. And I was starting to get hot flushes. I had moods swings. Which are all side effects for the drug. It was the mood swings I had the most trouble with. For me and my man. Who I love dearly as we got through it I came away after the second op, with no live endometriosis. So it served it's purpose. But did take a toll. There is a thread on Zoladex. Which will be helpful.

My sisters have been on danazol. Which have had indivdual affects on each sister. Not 100% sure on danazol. As I never took it. But I believe it serves the same purpose as zoladex.

Both operations were done within 12 months. This was done 7 years ago.

Since the last op. I have recieved no medication and deal with the pain through general, over the counter pain killers. I have been okay with pain management so far until now. I use to be able to take a couple of ibupofen capsule (nurofen) and a hot water bottle. Spend a day in bed and be right. But of late, I have to take double the doseage of capsules in a shorter period of time. And more time in bed.
My symptoms have come back stronger in the last 2 months. I am told by my gyno I have to go back in for surgery again I don't want surgery to always be the answer No one wants more surgery. But if it has to be done.

What has helped me. Like yourself a healthy lifestyle and excerise. A high fibre diet for me. As I get heavily conspitated just before my period. I plan to see a dietitian.

I am also at the stage, where I am wanting to know better ways to manage the pain. So I am with you on your quest to know more.

All the best

WA_Endo