Could you get the specialist to write you a letter - or at least a copy of the letter to your son's carers. That way you have less of a chance of miscommunication, and you will have some idea of the evidence on which they based their decision.
You might also want to write a letter to the specialist detailing anything you have noticed and any family history - the more information he/she has the better.
And well done for persisting in this very challenging situation.
People who are used to formula fed babies often think there is something wrong with bf babies' poo. But this sounds like you are also seeing signs that suggest a possible cows milk protein intolerance - most especially the reaction to non-soy formula. About half the babies that react to dairy also react to soy, so although it seems better it might still be causing more of the issues than any dairy in your breastmilk. I agree with surprised, if this is what it is, eliminating all cows milk protein from you diet will help. This would be easier with a dietician to make sure you eliminate all sources of CMP (did you know that you can find it in all sorts of things such as biscuits and some potato chips?). And also to make sure that your diet still contains all the right nutrients.
Keep up the great work hun. Your lo is getting so much goodness from the breast and EBM feeds that he is having. I hope you can get to the bottom of the issues.
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