I've hardly had it since I stopped taking the pill TTC our first bub over 9 years ago. Only been a handful of times and I used to get it all the time like you are describing. The migranes I used to get are few and far between too so I'm never going to take it again!

I don't wear pretty lacy knickers anymore on a day to day basis as I found that aggravated it. Menstural pads and tampons irritate me too and when AF comes back I'm considering using cloth pads or getting a cup.

It's a horrible thing to get all the time.