It's the calories he needs DD.. As I said I am really hoping he wont need supplementing and can maintain his weight with just breast feeding and food, but if he's still needing supplementation I'm not sure what to give him. I haven't had much to do with dieticians because they pushed formula all the time. I was so sick of it.. Plus they didn't tell me anything that wasn't common sense anyway.. When I tell them about what I have done with weaning the tube myself they just say that's what they would advise anyway..
ETA: He was having his EBM fortified with precription formula that I got subsidised, paid about $5 a tin.. I still have heaps left, I weaned him off it when he started solids so now he just has plain EBM down the tube..
I was lucky to have a good dietician I needed it as DD had failure to thrive for a while and did not gain a single gram for over 6 months, I did see a couple of dodgy one though in regards to getting her off the tube and I know what you mean by the common sense advice
I did put formula down the tube after I stopped expressing for a while although that was when she was having nil by mouth. Once she started eating and required extra calories but not nutrients I got a tin of polyjoule from the chemist, you don't need a prescription you just ask for it over the medicine counter, it is tasteless and you can add it to their weetbix, drink, yoghurt, anything really and it adds in those extra calories.
Aaah, the old poly joule!!! I have some! maybe I can start spiking his meals! He is eating solids really well, but as soon as I try to wean that tube he struggles to gain weight. He had FTT too which is why he has the tube..
Ahh yes, stop gaining weight when I try to wean the tube, it took us 6 months from when she started to eat solids to removing the tube but she did have an aversion to drinking - anything, so we had to ensure she was getting enough fluids. If it helps, when it did happen it came out of nowhere one day she pulled out the tube (which yes had happened a million times before) and we just never had to put it back in, we did have to push ourselves past our comfort zone, but it worked. It was odd really there was a documentary on TV the day after her tube came out about the place in Austria that specializes in getting children off of NGTs and it just gave us the confidence to push a little more than we usually would.
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