Another option is to seek another opinion at a major public hospital elsewhere in your state. I see you are in Queanbeyan, so am assuming all the investigation has occurred at the TCH? If this is the case, there may be avenues for him to go up to Sydney where there will be some "big guns" in neurology, and possibly some whizz-bang machines that can scan with greater accuracy than the ones in ACT.
Alternatively, in many of the medical specialties in the ACT, the same doctors work in both public and private systems. You may be able to get another opinion with someone in the private system (ok, so there would be consultation fees for that, but only a couple of hundred) but then if it turns out treatment is needed, then that doctor may be able to treat him in the public hospital. Ok, so that's not straight forward and there could be a bit of waiting, but it is another possibility. Your DHs GP should be able to help with
FWIW it might be worth taking out health insurance NOW. Enquire whether you can have some or all of the waiting period waived because you were a member for XXX long before you lapsed. Whatever is happening could be something that turns into a chronic health condition, so getting the insurance now might be a huge help in 3 or 6 or 12 months time.
Don't give up looking for answers, or demanding that your health care providers keep looking. And if the HCP s give up, find someone else who will help you. It took me over 10 years to get answers and was worth it in the end, but an earlier diagnosis could have reduced many difficulties and long term problems.
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