After 12 transfers (in 2 1/2 years) and no success I demanded that I get checked for killer cells as my husband and i always got good fertilisation and were transferring 2 blasts with the last few transfers. I got my answer today - i have killer cells, who would hear of it, hubby has low sperm and I have killer cells, how unlucky are we ? I was wondering if anyone has had the intralipid treatment prior to a transfer and if anyone has had success ? Any information on the drug, costs, and success stories would be much appreciated.
One of the lovely ladies on here Murraycod (we love you Murray) has recently found out she is expecting a bub (using IVF and treatment for NK cells). I pass this thread on to her and hopefully she can pop in with her experience and treatment. Best of luck. I hope the diagnosis now and treatment plans leads to your BFP and long awaited for bub.
Hi... I just wanted to say a quick hello and let you know that I also had problems with NK cells, but now have an almost 18 month old little boy. I was treated with prednisone and aspirin as part of my IVF cycle, so a different treatment to what you will be using, but I do want to say that there is definitely hope.
I know this sounds weird, but congrats on the diagnosis, finally you have your answer! Dh and I had been TTC for over 5 years with no success, I knew deep down that we were missing something, so I too demanded for the test also, which came back positive for NKcells. My friends thaught I was weird being so happy, but to finally get an answer after all of this time, was a blessing.
The first month on treatment, I got my BFP, so I hope this helps you, and you can finally put your confident hat back on X
I started taking 5mg Prednisolone 3 times a day 1st day of my cycle.
I also started taking 1 Doxic antibiotic tablet from Day 1 of my cycle untill day 13 of cycle, day B/F EPU.
Started taking 1 asprin 1 day post EPU.
Am still on the meds, am pretty sure I will be on them for another few months yet.
So the first month on treatment for the NKCells I had success, so far, am only 6 weeks today, so a long road ahead yet.
Darling I wish you all the very best, I hope my story can help you get closer to your dream. Please keep in touch and let me know how you go XX Good Luck and God Bless XXXXXXXX
The prednosolone has made me blow up like a baloon, but I don't care, it's worth it!
what a relief- so glad you have and answer I doen have NK but PCOS and once it was confirmed i felt better- for some it reason it does make it all easier- hope we can see a BFP for you before the end of the year
Thank you so much for your story it has giving me new hope. I too was excited when we found an answer I have been pushing my doctor for everytest under the sun as I am running out of baby time. Your story is amazing I wish so much luck and a good healthy pregnancy. I will be starting a new cycle this week to harvest eggs (again) will keep you posted of our result, fingers, toes and eyes crossed. Wishing you all the best, I am sure you will be fine you have overcome your obstacle xxx
Woo i bet you would like to ask the Dr why it was you that had the thought to test and not him! All that money, time and emotions! So sorry your road has been so long! I hope now with your new news you will get a positive response!
Congrats on the diagnosis hope4ababy (which I hope you soon have to change to ‘thanks4ababy’).
By the way I'm wondering how much it costs for an NK test anyway. Maybe it might be only $400 or something. I would have been prepared to spend some money at the start of all these cycles.
Cost of Prednisolone, anti-biotics and Aspirin would be negligible.
Aaagh, and I’m still a little annoyed hope4ababy, because it seems like you were the one to request the test, and voila.
Tegam - I'm with you on this one. Why didn’t the FS instigate the testing? I get a little upset as you would expect the experts to be looking out for you all along, and in the end you have to soooo look out for yourself. Sorry, needing to vent about this one. It makes me a little nervous because I’m on this journey too and I do wonder about the things they could be doing for me, to get a result faster.
So, go girl, will be looking out for you. I hope your journey to a BFP is now a short one, just like Murraycod.
When I requested for my Biopsy, my FS told me " I don't qualify for the test unless I have had 3 failed fresh blastie transfers".
I pretty much told him unless he was willing to pay for my extra cycles and a psychologist, I wanted it done NOW. Of course he gave in and agreed to it, but was assuming I was waisting my time. Well look who had egg on their face!! The nurse that assissted with the biopsy too made me feel like a hypochondriac for requesting the test, she told me I was going through a very invasive and painfull procedure for nothing.
For nothing, yeah, that's why I'm UTD now.
The cost of the Biopsy is different, depends on what your FS charges, mine was $100, yeup, broke the bank!!!! And I got $65 back from Medicare.
My friend is having NKcell biopsy tomorrow in Adelaide and she is being charged $300.
But I guess in the whole scheme of things, it is a lot cheaper than an IVF cycle and it puts you in a better headspace for when you do go ahead with another cycle.
My motto was, if it came back negative, I would put my confident hat back on and know I asked for everything this time, and if it came back positive, well everyone can go suck on an egg!
The thing is, to start another cycle you NEED to be in a good confident headspace. If you have doubts at the start, don't go through with it, because it's not worth starting behind the eightball, it is stressfull enough without doubts in your head already.
I say well done to the girls that are putting their foot down and requesting the Biopsy. Hey what do we have to loose?!
Love to all X
Last edited by murraycod; June 16th, 2010 at 09:11 AM.
: poor spelling! Again!
Thanks so much for all your positive responses. I just hope alot of other ladies read our suggestions. I believe that if you have had a good 6 transfers (or less with no success ) you need to be totally checked out, because as we all know IVF = expensive, depressing, and just plain stressful. Why should we go through more than we already have.
Women need to have the following checks:
Laperoscopy & biospsy (nk cells) at the same time - the doctor is already in there, get it all checked out
blood tests - the long 13 vials -
Then if there is nothing to treat go further with transfers. I also believe in only doing blasts - alot of day 3 embryos die off even before they get to blast - transfer only the strongest ones - survival of the fittest - why not do what nature does.
I just get so frustrated that there isn't some kind of set protocol for ladies to get where they want to quicker - if men had to go through IVF like we do - I am sure a set protocol would of been put in place by now. Ladies do yourseves a favour - if oyu are not getting the results, get it all checked don't waste 2 1/2 years like my hubby and I did and look back with regret on wasted time, tears, money and energy. If i only knew then what i know now
FYI, the cost of the biopsy was only my doctors charge at $200 and the co op fee at the hospital for $50, I do have private health insurance and i have not received the bill from the pathology yet but when you consider that my hubby and I have spent $50,000 so far who's counting ?
This is the best blog to get the word out there to all you amazing ladies, we need to ask more questions and demand more results...all my luck to you all, don't forget who is paying their bills...
Hi Hope4baby, didn't see this post until now....I have NK cell issue as well and is currently being treated by prednisone and Clexane injection. Im yet to have my forever baby. But Im so glad you've found this out now so you don't waste your time and effort when your body condition is not possible to conceive, now you can get it fixed.
can I also ask your girls a question as of what's the level of your NK level? mine was 30%, appearantly on the high end. And Im wondering the standard predinsone and clexane will be able to keep NK cell at bay. I havn't heard anyone in Australia used intraplid but would like to hear anything new.
Did you find out that you had nk cells by a blood test, or did you have a uterine biopsy ? Because they can see different levels, I had the 13 (or 15) blood vials of blood taken and nothing showed up then, and then I demanded the uterine biopsy and found out that I had a moderate level of NK cells, so the treatment is the intralipid done via intravenous, I also have done colorado twice before where I took predisilone (steroids) and augmentin (antibiotics) but they did not help me get pregnant, so intralip is the treatment for nk cells that I have researched on, even just google it there is so much info on it, good luck !!!
Registered User
Answer at last
Reply With Quote
Bookmarks