Hi Gabi
Good to hear from you!!
It was a nervous 2 weeks for me not knowing if my bloodwork was going to arrive in time for it to be tested. Unfortunately I was told some people from Australia have their test come back inconclusive because it does not get there in time. The lab still charges for the tests.

I only just got them back and surprise surprise no dq alpha match. I had 2 doctors tell me they thought it was this, Dr Matthias and Dr Sher. I had convinced myself this was definitely the problem.

The only thing they did confirm was I have Natural killer cells so they must be incredibly aggressive because they dont seem to respond to prednisolone. I have been on steroids for a year. So I think we might give the intralipids a shot. My doctor said he would call Dr Sher in the US and have a chat to him about my treatment. I dont think he has done this yet because I have not heard back.
But Dr Sher said to give the prednisolone and the intralipids a shot. I will let you know what my treatment actually is.

Good luck
constance