Has anyone had experience in this area? After being told again and again that this potentially affect my chances, I thought its time.
The fibriod is not big, its 5mmx5mmx7mm, with less than 25% protruding into the uterus cavity, which means majority of it is in the uterus wall. I don't think the uterus is distorted because of the fibriod szie. Hence, my reluctance to go through a surgery in the first place.
FS suggested Hysteroscopy which I am happy with as there won't be incisions. But I also worried how effective that is going to be due to the type of this fibriod, there is only 25% inside of uterus cavity, so that's all he can remove.
Will the removal scar the uterus? How would cutting off the 25% of the fibriod improve the blood flow around uterus etc?
Has anyone done this before or in the similar situation and had a pleasant result?
I'd love to hear some stories to push me through the line..
Hi Cuddlepie,
Sorry to hear you've gone one of those lumps Unfortunately, these are sooooo common, and half the women don't even know they have them until they are pg and and they pop up on the u/s. I had a 7x7x8 cm fibroid that grew to 13x14cm during my pg last year. It grew so large due to the pg hormones and the IVF drugs.
My FS said that although the fibroid was on the large side, it didn't protrude into the uterine cavity so implantation would not be a problem. He was right, I got pg on my first cycle, BUT, 4 1/2 months later, the fibroid put way too much pressure on my uterus and I went into labour ar 20w &6d.
I have since had an open myomectomy op in Jan this year, and the 'dead' fibroid came out without a hitch. The fibroid 'died' a week after I delivered my baby, so removing it was really straight forward as there was no blood supply anymore.
If I was in your shoes, I would get some more opinions on what the best possible path would be for you, as doctors tend to have very different views on fibroids. It is such a grey area. In most cases apparently though, a woman can have fibroid/s and still have a successful pg. It's when the fibroid/s begin to protrude into the inside cavity, that implantation can be a problem or if it is so big (like mine was) that it can sometimes put too much pressure on the uterus. If you'd like to PM me, I'd love to have a chat.
I will be having my FET next month so hopefully everything will go smoothly this time.
Wishing you all the best hun.
Beata xxx
Oh Beata, so sorry to hear your loss...I hope this upcoming FET will fulfil your dream especially after the fibriod gone.
Mine was the submucons one, very small but 25% into the cavity, that's why its tricky. Because its so small it didn't alter the shape of uterus or anything, but reading your story, I just don't want to take any chance down the track. I have very much decided to go with the surgery especially my FS has done a lot in this area. But just thought to hear other people's story, thanks hun for your support.
Oh Cuddlepie, thanks for your kind words. I too hope that my next FT is successful.
I just wanted to tell you that my FS believed that removing the already 'big' fibroid prior to the IVF treatment carried more risk than leaving it alone. He believed that the uterus wall might sustain too much damage after the op, to carry a pg to term or even get pg. I really don't think he thought I would lose my baby, and after my loss he said he wanted to remove the fibroid asap as now that risk of it happening again was very high. So out came the fibroid, and he was really happy with the op, and I've had a u/s earlier this month and the uteus wall is healing up nicely. But I now have the fear of the wall bursting or something going wrong when I get pg, thinking back to what he said in the first place about the wall sustaining too much damage after removing the fibroid. I sometimes think I just can't win!!!(sorry, having a whiney day ).
I hope everything goes well for you hun, like I said before if your fibroid is poking into the cavity, the little embryo might not want to attach itself. Just please remember that my fibroid was probably 10 times bigger than yours, and although it didn't poke inside the cavity at all, it was growing mostly on the outside and put a lot of stress and pressure on the poor little uterus.
All the best sweets.
B xxxxxx
Oh beata, I know the 'you can't win' part, no matter what we do, we will worry....but you've made the right decision of clearing an obstacles, as far as you give enough time for uterus to heal, there should be any problem for future pregnancies.
I've already decided to go with the op and get it done and over it, even it didn't pose any threat toward implantation, I'd hate to think that it will potentially risk a pregnancy. I so look forward leaving all these behind. All the best hun...
Sorry I didn't see this earlier. Yes, I had 2 submucosal fibroids and I had them removed in December. It didn't hurt but I did bleed (very slightly) but for about a month afterwards. I would still have it done if I were you. I was very hopeful this was the problem and we would be preggas soon after but not so lucky yet. I have done a lot of research on it though and there is strong evidence that submucosal, even without distorting the cavity, significantly reduce your chances.
Be a bit careful when you read stuff on this. General fibroids are not thought to be an issue but submucosal are different (only 5 % of people have this type of fibroid). I would absolutely have it out.
Bridget, thank you so much for replying, I meant to PM you but I think because you haven't reached 100 post so I can't...
Really appreciated shedding the light on this, as I was dubious about it give the size is not too big. But now I think I'd rather it out than in...
Just out of interest, were yours big and were they distort uterus cavity? Mine was only 25% into the cavity which means 75% is still intramural, so I am just wondering even Hysterocopy will still only get that 25% inside the uterus, will the other 75% stay in or will grow inside again down the track? Any insight on this? I guess that's tricky part of having this kind of fibroid, 5%, how special are we?
A month bleeding sounds a bit scary, did they say the reason why or it is just normal post op?
Thank you so much Bridget, I hope your TTC journey is a short one hun...
Mine were not big. In fact, on ultrasound they had difficulty even seeing one of them and asked me why I thought there were two (my FS saw then during hysteroscopy). The other one had been seen on ultrasound about a year before but they had previously told me that because it wasn't distorting the cavity they didn't think it would cause a problem. It wasn't until 4 failed IVF cycles with good embryos that I had a laproscopy and a hysteroscopy that was when my FS saw them. FS told me they reduce your chances of getting pregnant by about half even with no cavity distortion.
The bleeding was really just annoying. It wasn't proper bleeding, very light and, TMI - almost watery. I think it was just healing. We weren't allowed to try for 2 months afterwards which I was initially frustrated with but it was actually sort of nice to have a forced break. It was a relief not to have the pressure of "trying".
I have another fibroid which is quite big but on the outside of my uterus and they haven't removed that because the general consensus is that the ones on the outside don't cause issues.
Oh - I forgot to say that mine were similar (only part sticking out). FS said that it didn't matter if the bit in the wall stayed. I think eventually fibroids do grow back and new ones also grow but takes some time.
seems we are so similar Bridget, I've had 5 stim cycles so far as well. I also felt that I've wasted totally stunning 5-day-blasties. Its great to know that you've experienced on fixing those damn fibriods and show me what to expect.
Did you have hysteroscopy and Lap at the same time, I am just wondering so far my FS is just talking about hysteroscopy and if that alone will be able to deal with the problem. I guess the reason you did both in the aim to check everything in order? How long the recovery time needed after op in order to get back to work?
I guess the two months off not TTC will be something to look forward to....I am not a 'spring chicken' but I guess the mindset 'clock is ticking' is just adding extra stress to the situation and I already plan to truly enjoy this 'off time' to nurture the soul, much needed.
Let me know how you go with this cycle Bridget, I'd be so thrilled to see you up the duff....
Hi ladies,
I am so pleased to find this thread - and hope you don't mind me jumping in. I have a Intramural fibroid. My FS has known about it, but a laparoscopy in Jan this year revealed it's quite a bit bigger than she thought; grapefruit variety ? she showed me the photos.. It's not impacting on the shape of the cavity wall, but with 6 failed emby transfers, she thinks it's time to take it out. She says this is a pretty big operation.
Bridget: how was your recovery. My FS is saying 2 weeks off work + six weeks no lifting etc. This op has me a little worried.
Jaggles, welcome to the thread...although mine was a different type from yours. From what I read, intrumural normally doesn't affect fertility and most people don't even know its existence. But given the size of yours, its probably out than in I guess.
Have you consulted with your FS if you can get it out by laposcopy or have to cut you open? As the recovery time will be significantly different. Good luck on finding the answers, I know how scary it can be....
i think i will have to ask lots of questions. will def. ask about different ways it can be removed. thanks for that.
My FS has done every test under the sun to try to work out why my embryo transfers aren't working - so the last thing she can see that is interfereing is the fibroid. it's all a bit of a nuisance really - and as my DP says, the old fashion method is much more fun.
Reply With Quote
Registered User
Submucous Fibriod by Hysteroscopy
Unfortunately, these are sooooo common, and half the women don't even know they have them until they are pg and and they pop up on the u/s. I had a 7x7x8 cm fibroid that grew to 13x14cm during my pg last year. It grew so large due to the pg hormones and the IVF drugs.
).
Bookmarks