thread: The latest hurdle...hyperthyroidism.

  1. #1
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    The latest hurdle...hyperthyroidism.

    Well, I have not been well at all lately (stomach upsets/flu etc) and had noticed that my heart has been beating fast, even when resting, I get trembly hands, legs etc, feel hotter than usual, cant sleep well; really tired...went and had some blood tests, which have shown I have an over active thyroid. Last bloods tests re miscarriage showed I had thryoid antibodies, which meant I could develop thyroid problems, and here I am.
    So, my doctor says all treatments are not pregnany friendly, which means all TTC has to go on hold until i am better. He says depending on course of treatment, or surgery,it could take many months. I have to have more blood tests and see an endocrinologist.

    So this is not good news at all and has left me feeling a bit sorry for myself. Why something else? I am already dealing with only having one dodgy tube, with the antiphosphilipid syndrome, and our losses etc...and now, something else is wrong on my side of the fence. I know that things happen and we all have our hurdles, sometimes it just feels like a lot.

    Also, anyone else experience this or have info to share?

    Thanks.
    Last edited by Possums; August 12th, 2009 at 06:01 PM.

  2. #2
    Registered User

    Sep 2008
    1,350

    Possums

    I cannot write a lot as I am at work. I wanted to let you know that I have Graves Disease and the meds I take are the same you will take, and they are fine whilst TTC, and pregnancy.

    I have had the surgery, and you wont be reccommened that unless your on the meds and have no progress for ages hun.

    It's hard for you right now, because you have to take it in, there are lots of us on thryoid medication.

    There is a whole thread dedicated to it = I will BBL - I am sure someone will post you the link

    BBL for more support xx

  3. #3
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    oh thanks for that!..it helps to know I can read up on here and learn and understand. It i always hardest when you first get news to digest.
    My Dr said the medication would not be OK in pregnancy...maybe there are other types then...

  4. #4
    Registered User

    Aug 2006
    Melbourne
    2,890

    sending you a hug. my SIL also has graves. she was unable to TTC for two years, but if WLAB says that they is meds out there that are safe, thats great.

    take one day at a time, might not help reading it, but look after yourself

  5. #5
    Registered User

    Aug 2008
    Melbourne
    1,539

    Possums - I'm so sorry that you have something else to deal with (not to mention more time with doctors and blood tests) - it' just not fair.

    As WLAB mentioned - there are definitely others on bellybelly who know heaps about this - there's a specific thread somewhere too.

  6. #6
    Registered User

    Apr 2007
    in lactation land
    3,776

    Possums that is curve ball you have received. This may be the thread WLAB is referring to.

  7. #7
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    Thanks ladies

  8. #8
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    Officially diagnosed with Graves Disease...meds havent kicked in yet, heart still racing. Hope they work soon. Feeling nervous about length of treatment time, fertility implications etc. Bit overwhelmed at the moment.

  9. #9
    Registered User

    Aug 2006
    Melbourne
    2,890

    possum i am hoping that you are able to make a speedy recovery and that all the health implications for TTC are at an end and that you will be able to start again soon

  10. #10
    Registered User

    Apr 2007
    in lactation land
    3,776

    Diagnosis is a big step Possums. I am sorry it is Graves but I hope it helps to know what is going on and a basis for asking the questions you need to ask about where to next. Take it a step at a time and remember to breathe . You are a special person who will live your dream, I just know it.

  11. #11
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    thanks ladies..it seems our goal posts keep changing...every time we make some kind of plan of action, the time frame blows right out....we will save save for the overseas trip now!

  12. #12
    Registered User

    Sep 2008
    1,350

    You need to be really nurture yourself atm, the hormonal symptoms of Graves, make you even more emotionally challenged than a woman who is LT TTC without graves.

    It is really important you have some strategies in place to help you few the next few weeks till the symptoms subside.

  13. #13
    Registered User

    Oct 2007
    Melbourne
    163

    Hi Possums,

    you sound like you can do with some hugs and a good news story!

    I too have Graves disease and was diagnosed in Feb 2008. I was TTC at the time and was recommended by my endo to put that on hold as the medication was too strong. I went to see my endo every fortnight then monthly as I was pretty bad and the medication would not settle my levels no matter how much we altered the dose.

    Anyway to cut a long story short, after some research and 7 months of the meds not working and not wanting to put off TTC for much longer I decided on a total Thyroidectomy. I had my operation in Oct 2008 and felt fantastic pretty much straight away and felt like my old self. I still have the large googly eyes and now have to take medication for life to make up for the lack of thyroid but I would have it no other way.

    In Jan 3 months after my operation and when my levels were all normal and good and we got our Now we only have 7 weeks left until we meet our baby.

    I hope this helps you know that it is possible to have a baby and have Graves disease. I just have some extra appointments with my endo and Ob to make sure bubs and I are OK.

    All the best, if you need more information let me know!

  14. #14
    Registered User

    Mar 2008
    mid north coast, nsw
    1,644

    thanks for the support xx

  15. #15
    Registered User

    Jan 2005
    1,271

    Hi Possom, I haven't been around lately and Im so sorry to read this latest episode and life sometimes can be so unfair. I hope you are getting your head around the treatment and get over the initial shock of being diagnosed. Its always hard to learn sth is not right at first but once you've gained a bit knowledge of it, you will grow a bit more confidence and more optimistic of the situation.

    On a brighter note, this seems to be the very reason for your past m/cs. So once the treatment is through you are unlikely to have the sitation again. That is a bit reassurance when you do start TTC again. I guess psychologically it will be a good thing.

    Embrace and treatment and meanwhile enjoy your o/s holiday, it could be much shorter than you think and you will be in a much better shape in no time to TTC again. Biggest hug