Im 28. Ive been TTC for 3 1/2 years and have recently found out that I have PCOS and Endometriosis. Im waiting for a lap, im on the QLD public waiting lists for fertility and gyno. My symptoms have been getting worse and worse! Up until last year I would get severe ovulation pain and I would collapse if I sneezed or coughed. Now, I am in agony if I sneeze, cough, laugh too hard, AND when I go to the toilet. It is sooooo gross and I am so fed up. My husband has been amazing, but it is all getting worse and Im so scared of having MORE time off work. Some days I just cant get out of bed
Im wondering if anyone else on here has Endo and PCOS? Or can tell me about the public system for lap surgery?
Welcome to BB. Sorry to hear you are having a really difficult time ttc & with your health. I have had a lap surgery but in the private system. I do have PCO (not the insulin resistance) but not endo. Hopefully someone can come and chat about their experience.
Hi sunnyV, I too have PCOS, but no endo. DH and I have been TTC #1 for almost 3 years now. I am starting IUI in a few weeks
I'm sure you will find all you need here at BB, the ladies here are very knowledgeable and supportive.
It just feels good to even log on to BB!
I feel silly saying that, but I have been trying for so long on my own... I dont really know why I havent done this sooner but maybe I didnt want to admit to having a problem?
Anyway, thanks for the welcome. Was the lap scary? Im looking at that in the next few months. I have seen private gynos, but cant afford the surgery myself (hence the waiting!) I made a mistake I think, I googled the procedure. Ive never been afraid of doctors, etc. But I dont think the googling helped me at all. Silly girl!
I'm 30 and have been TTC for 2 years. I have PCOS, severe endo and a blocked fallopian tube. So needless to say I need help if I am ever going to fall pregnant.
I have a lap in September last year (in the private system). Despite having private health insurance, it still cost a fortune and left me out of pocket more than 4K. So if you can wait with the public system then financially their are benefits but waiting is also so hard.
In my lap they managed to remove / laser a whole heap of the endd but I still have some on my bowel and in something called the pouch of douglas. My FS who did the surgery couldn't remove it. He said it was high risk and required a specialist as a portion of my bowel may need to be removed to get all of it.
The recovery from the surgery was not too bad. I only took two days off work however I think that was the stupidest thing I've ever done. I was in a riddiculous amount of pain to the point of nausea and almost collapsing. It really took more like two weeks to begin to feel like myself again.
The bloating after surgery is also pretty funny, you look about 5 months pregnant, so loose and comfy clothing is a must.
The surgery is done key hole, so I only had three small cuts. They healed well but are still pretty obvious. I'm hoping they fade with time.
After my lap I then started on Zoladex for my endo. It is a hormoe treatmentthat puts you into menopause (well sort of anyway). They break from AF and pain whilst on it was great, but I had a lot of side effects including headaches, mood swings, weight gain and panic attacks. No nice. Am now off it as we have moved on to IVF.
Had an ICSI cycle in Jan but no ET due to OHSS, had feb off to recover and am hoping to do a FET this month.
Oh and in terms of endo symptoms - one million times better after the surgery. I didn't realise how much pain I was actually in and that it wasn't in fact normal. I still have bowel symptoms around time of AF because of the remaining endo, but for now am jsut trying to put up with that. The surgery to deal with that is pretty major and risky so I'm trying to put it off as long as I can.
In the meantime just hoping and praying for a miracle - a BFP.
Sorry for the long winded response. Not sure if I've answered all your questions but feel free to ask anything else you miight want to know
Oh and in terms of whether it is scary. You are knocked out for it all which is great and the nurses are all very nice.
But what I did find hard was that my DH wasn't allowed to come into the day surgery part of the hospital. I did feel quite anxious once in my gown and waiting to go into theatre. I got a bit teary at times, but they see it all the time and are very nice and supportive. I was a complete mess after the surgery though and broke down when getting all the results from my FS. Again my DH wasn't allowed to be in recovery with me, so it wasn't until they were ready discharge me that I saw him.
Was my first time in hospital so all a little new and overwhelming but the nurses were all really kind.
PCOS, Endo, TTC 3 1/2 years... Anyone else????
Thanks.
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