Fetal ventriculomegaly

[madmadmummy]

Hi there - glad I came across this thread!

I am 33 weeks pregnant and was told yesterday that my little boy's "bilateral ventricle measurement" was 11.5mm where it should be 10.

I was never given the word ventriculomegaly - found it on the web while Googling - you are all right, the worse thing to do is to Google!!

I am booked in for another ultrasound in 2 weeks to check if it is progressing - apparently if its not all is cool. So I am told not to worry.

How do you not worry?! Now every kick makes me think about it - and there are plenty of kicks!

Have been encouraged by reading this thread though... Is there anyone else currently going through this?

[Lisa1515]

Hi there,

I am a new member and have read as much as i can on ventriculomegaly. Last week, my ultrasound showed my baby (30 weeks preg) to have lateral ventricles at the upper limit of normal which have been progressing since my first scan done at 19 weeks. I am so so worried and have been referred to have a MRI scan in the next couple of weeks to see if there are any other abnormalities. All of my ultrasounds to date have not picked up anything else. I am so worried and there have been a few tears but it is really hard not to worry. Does anyone know what we are going through, and offer any such advice as to the outcomes of their little ones?

[~*Niadalla*~]

HI Lisa,
FIrstly *hugs* There are no words to make everything better.
After the initial diagnosis by the sonographers, I was sent for a tertiary scan where everything was said to be ok. Nothing was said again after 28 weeks.
DS' ventricles were classed as on the upper end of normal, and yes, I freaked out too. Nothing was going to make me feel better except giving birth and seeing how he was. I was truly scared to start with, but after the initial shock, I felt that everything was ok. Mother's intuition if you will.
It's good that none of your other ultrasounds have picked up anything else. Were you told at your morphology scan (19 weeks) of the enlarged brain ventricles? Or have they only just detected this?
Try and remember and think, your baby is till in the normal range.
DS underwent a cranial ultrasound a week after he was born, and although his ventrivcles were still larger than average, there was nothing at all wrong. I was informed that if every baby was to be scanned after birth, 2 in every 10 would have the same thing. That really made me feel easier. To date, he is one healthy happy 9 month old, with no problems whatsoever. His head is not ridiculously large at all, so no problems.
Good luck with your MRI scan. I really hope that everything is still in the normal range for you.
Everyone I have ever spoken to on parenting and pregnancy websites, has had an excellent outcome.
Good luck.

[~*Niadalla*~]

Hi there - glad I came across this thread!

I am 33 weeks pregnant and was told yesterday that my little boy's "bilateral ventricle measurement" was 11.5mm where it should be 10.

I was never given the word ventriculomegaly - found it on the web while Googling - you are all right, the worse thing to do is to Google!!

I am booked in for another ultrasound in 2 weeks to check if it is progressing - apparently if its not all is cool. So I am told not to worry.

How do you not worry?! Now every kick makes me think about it - and there are plenty of kicks!

Have been encouraged by reading this thread though... Is there anyone else currently going through this?

Hi there, sorry I missed your post. How do you not worry??? Well, you can't. But thinking positively really does help.
Hopefully my previous post helps you out a little, and if you ever need to talk, feel free to PM me, or reply to this thread. Good luck! I have my fingers crossed that your next scan goes well

[slyder]

A mate's baby was recently diagnosed along the same lines and the experts were saying this and that about what needed to be done and generally painting a bad picture. A couple of scans later they reckon it's only just outside normal and everything will most likely be fine.

Sometimes I wonder if all these scans and checks are counter productive. Don't get me wrong, they are great in so many ways, but there must be so many Mums and Dads out there who go through terrible angst for nothing.

[Lisa1515]

Thank you for your positive and such supportive message Niadla.

Some great advice also was not to "google", as the very worst case scenarios can be found which only made me sick with worry, and I regret having read so much on this.

I am currently 31 weeks pregnant and due to have another ultrasound in a couple of weeks. This one will determine if I need to have a MRI scan, which I have to fly to Melbourne for.

Please keep your fingers crossed for me, and I will keep you posted on the results.

Thank you - these threads are very helpful !!

[~*Niadalla*~]

No worries hun! As I said, mother's intuition. If you just know everything will be fine, it will be. I am sure eveything will be ok, but you can't help but worry.
Good luck xxoo Will be thinking of you and bubs

[Lisa1515]

Fantastic news !!!! I recently went to Melbourne to undergo a thorough ultrasound and MRI and everthing appears fine ! The ventricles have decreased in size by 7mm in 3 weeks, and have been advised that there isn't any need for any more ultrasounds and to try and now enjoy the rest of my pregnancy.

I can't begin to describe the relief that both my husband and I felt. I am now 35 weeks pregnant, and not long to go now, but I feel that everything is going to be ok.

For other mums experiencing the same thing, please remain positive, and a second opinion and follow up scan sometimes helps.

We can now wait and concentrate on a safe and healthy arrival of our baby. The Ped suggested that we have a cranial ultrasound a couple of days after the birth just to ensure the head circumf is normal etc, but we believe it will be.

[~*Niadalla*~]

Lisa that is fantastic news!!! Sounds like the exact same thing we went through.

Good luck with the impending birth of your little cherub! Let's us know how it all goes

xxoo Niadla