HPLS - Left heart syndrome

[Rommy'sMummy]

Nicole, I was wondering where you were up to with getting the next scan plus all the consults.

Good idea to see the Physc - my DH and I saw one together when we needed to make a decision around palliative or repair surgical options for our DS. We really benefited from someone helping us to get clear on the options and how we would come to a decision. My DH and I process info and decisions so differently that it was really helpful to talk about HOW the decision was to be made and not just WHAT decision was to be made.

If there is ANYTHING you need from me, more info, more quest, just anything; please let me know.

Its such a hard and confusing and conflicting time - I am thinking of you.

Rachel

[Tegam]

Thank you for letting us know how you are doing. Such a pity that the results couldnt have been better on friday.

Just keep in mind that we are all here for you! Whatever you need!