Nicolabee I'm sorry you're in the midst of this right now
this is what my son had done when he was born. He had the stint at 3 days, and then underwent bypass surgery at 3 months to close some major holes in his heart. He recovered very quickly from the open heart surgery and was home in 10 days.(installation of a stint - no heart bypass or reconstruction of aorta)
You asked what his prognosis is - I go back to his cardiologist once a year to check the repairs are growing with his body (the stint is synthetic). The cardiologist does an echo, takes blood pressure, checks circulation, height, weight etc to ensure everything is ok. He will only have to have more surgery if one of the repairs fails (they think this is very unlikely). He was in hospital for 3 months when he was born. We lived approx 70 mins from the hospital and I travelled up and back each day and my husband went in every night after work for a visit, and we had an 18 month old at home to look after. The 18 month old hasn't shown any real after-effects of the turmoil during that period of her life (just to reassure you that your other kids will be fine - don't let that weigh too heavily on your mind when making your decision).
I know just how awful it is to know there may be something wrong with your baby![]()





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