it feels like i have been "kicked in the groin" sounds weird huh
Not wierd at all. I know that feeling oh so well. Don't forget with hypermobility your condition itself can 'mask' any asymetry. Part of the joys with hypermobility is that joints can subluxate at various times. I'm not saying you have SPD but it sounds very similar. Hell I'm not saying you have anything... I have absolutely no qualifications in anything... although if there was a degree in typing on forums I'd be getting a HD with honours..lol.

Never be afraid to get a second opinion.

The plastic bag under your bum for getting in an out of bed/the car is a great trick. Oh and ice between you legs... omg the relief... I can still remember driving home from work with a frozen ****e bottle between my legs and getting pulled over for a routine breath test... the poor young cop seemed very confused... no I was fully clothed and it was like the bottle was just resting between my legs between sips... but why was it clear and why was there a teatowel??...