Type 1 Diabetes

[Carla MP]

realitycheck..is that a website???

[mfcr06]

certainly is.

It is for Type 1 Diabetics (although some Type 2ers lurk around).

Reality Check - Young Adults with Diabetes.

It is a wealth of information. There is also a link to a type 1 diabetes and pregnancy information page which is also good.

[melbel]

there are quite a few type 1s pregnant onthere at the moment to so a wealth of info Carla.

[Carla MP]

thankyou so much girls....

[musolissa]

I am so glad I read this thread

I am type 2 insulin dependent and found people with GD think they understand but when it comes to certain things they have no idea, so have had no one to talk to about it.

I am taking novorapid and protophane, but the protophane is a PITA to manage, I can get the same reading with or without taking it generally and have major issues getting my reading under 5.5- Endos arent to bothered as its still an ok reading and my hba1c is 6%

People have mentioned using the pump to me, but the hospi doesnt want to as they havent decided on my treatment post pregnanacy. but more thank likely will still be on insulin

Carla- I found that until I got my novorapid levels sorted I would always be high if eating carbs and got into big trouble for starving myself (I was eating 3 very small completly carb free meals a day). The dietician told me what to eat and they worked my isulin out from there- took 2 weeks but I felt so much better for it

[Carla MP]

Hi Musolissa
Thanks for that....Im on actrapid and protophane at night and have had high and low readings...my overall was 10%!!
Last night I tested at 3am and levels were 4.7 then this morning at 6.30 they were 9.9... I really dont know what I am doing wrong or what else to do..Im high then low..Im so worried this is going to have an effect on my baby. I called my specialist and he re arranged my dosages so hopfully in the next few days they will start to level out.

can you tell me what your levels would be on a typical day and what doses you are on??
I think I may be doing something really wrong and not eating right ..well I dunno..I give up.

[mfcr06]

Carla

You poor thing.

It sounds as though you are experiencing the dawn phenomenon. It is a very common thing for a Type 1er. It can be difficult to stop and the protophane perhaps may need tweeking.

Honestly though, could you speak to your endo about changing from Actrapid to Novorapid. Keeping you on Actrapid would be making thing extremely difficult for you to control.

I know that Actrapid is the only shortish acting insulin "approved" for use in pregnancy, but I have never heard of another typer 1er using it while pregnant.

I was on Humalog last pregnancy and am now on Novorapid this time. They are both the very fast acting (faster than actrapid).

If your endo wont consider changing your insulin (to try and make things easier for you), I would seriously consider getting your GP or OB to refer you to someone else who has more of a progressive attitude towards a Type 1er who is pregnant.

We all need all the help we can get at the best of times, but more so when we are pregnant.

Also seeing a dietician who deals with Type 1ers may also help. But make sure they deal with Type 1 Diabetics and not generally Type 2 or GD.

I know that if I eat things like pasta or rice, my bsls are really hard to control (even with a pump).

Someone else on Reality Check recently got into the public Mater Diabetes Centre for an urgent appointment and I can highly recommend them. They are the ones who got me my pump after my old endo refused to let me get one.

They have endos there (one in particular) who deals with Type 1 and Pergnancy and I cannot give them a big enough wrap. Also the Princess Alexandra does a similar clinic and I know of someone else from the Gold Coast who goes there (she is on a pump I think) and is very very happy with the care she is receiving.

I know it would be a hassle travelling from the GC for those appointments but the care you would receive would be a little more progressive than what it sounds like you are receiving at the moment.

I forgot to mention that the Mater clinic has dieticians, podiatrists etc etc so it is basically a one stop shop.

Please dont give up as it is well worth the hassle in the end.

One thing that kept me going first time around was to keep thinking that I cant give up because if anything happened to my unborn bub that could have been prevented by me having better control, how could I live with the guilt after he was born. I know this is a terrible thing to think, but this is what I had to do to keep me focused.

Being pregnant and having Type 1 is hard, and women who dont have difficult pregnancies have no idea how good they have it.

Keep going and let me know if you need to vent. I am good at listening and I know where you are coming from.

[mfcr06]

Musolissa

I would be asking your GP or endo for a Type 1 Diabetes antibody test to make sure that you aren't officially a type 1 diabetic. I have heard of heaps of Type 2ers and GDers who are misdiagnosed and are in fact Type 1 Diabetics.

[Carla MP]

Hey ladies
Can anyone tell me their typical day of bsl's? And units of insulin to co inside