thread: ventriculomegaly

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  1. #1
    Registered User

    Dec 2010
    1

    ventriculomegaly

    anyone have any info on ventriculomegaly? just found out my baby's ventricles are measuring 13mm, what are the chances this will resolve itself before birth? what kind of disabilities might my child have if it doesn't?

  2. #2
    Registered User

    Jan 2009
    pakenham, victoria
    3,660

    accourding to a wiki search, ur bubs 13mm comes under the mild category, and 90% of bubs with a mild form of the condtion go on to lead perfectly normal lives and often resolves itself.
    big big hugs hun, i know this is a very very scary time for u

  3. #3
    BellyBelly Life Subscriber

    Jun 2008
    In snuggle land
    4,499

    Just wondering what happened to OP's bub or if anyone else has had experience with this.

    Our bub has severe ventriculomegaly and the specialist seemed to think the prognosis was very bad. Just after others' expereinces, if any.

  4. #4
    Registered User

    Jan 2008
    Brisbane
    5,039

    this showed up on DD2 20week scan, it was mild and resolved itself. She is now a perfectly normal (if not smart for age) 4.5yr old... I could try to find the scans to see what the measurement was??

  5. #5
    Registered User

    Aug 2008
    Adelaide
    1,488

    My cousin's son was diagnosed with this inutero. At their 20 week scan it measured 10.05mm (anything under 10mm is normal) but 3 weeks later it measured 14.6mm which almost put them in the severe category and concerned the specialists because it was such a significant growth in a short amount of time. She was offered a termination, but apart from being born slightly early (at 36 weeks) her son is a happy, healthy and boisterous 2.5 year old.

    I know that ventriculomegaly can be associated with chromosomal abnormalities. My cousin did have a CVS at 11 weeks ruling this out. I'm not sure what sort of a difference that makes to the prognosis.

    tash - Let me know if you would like me to put you in touch with my cousin. Her daughter was born with a rare genetic condition so the prospect of having another special needs child was difficult and made for a very stressful pregnancy.
    Last edited by Tuesday's Child; June 6th, 2011 at 03:45 PM. : extra info

  6. #6
    BellyBelly Member

    Aug 2008
    anywhere and everywhere
    718

    Tashy my dd1 had this diagnosed at 20wk scan, they were very worried about it and discussed worst case scenario, I had an amnio and mri on bubs, all came back clear. As she got bigger it started to resolve and by 36 weeks was almost normal. But......DD has a genetic condition called 1p36 deletion syndrome, and the enlarged ventricals are one of the indicators, but her syndrome doesn't get tested on a standard amnio.