OP
i wish i could give you a story to help you , but i cant
I did read however that 90% of NFold tests can give a false positive.
There has been lots of research done in Britain about the technique and the stress it unncessarily puts parents to be under and how 90 % of those that got a postitive, ended up with healthy babies.
There was a heartbreaking story in the Womans Weekly last month on a 60 minutes reporter who got a high NF test. It then gave these stats that i have quoted. Its point was the risk of having an amino/CV against the risk of the test being wrong!
Hang in there, i have a feeling in my 'waters' that all will be good!
With dd, the NF came back at 6, like yours. We were 1/19 of downs and 1/30 of trisomy 18. After the cvs, the results came back all clear. When DD was born, all we noticed was that she had a thick neck, which in time looked normal!!! She doesnt have any problems, besides her hip dysplasia...obviously not related to NT! We had genetic councelling and were only told it indicated risks of chromasomal abnormalities. HTH and good luck.
I am new to this forum - I have just posted in the "due Feb 16-28 2009" thread - but this thread is what has inspired me to post.
Like OceanPrincess, I had a high NF measurement (6.1) and subsequent CVS, with no sign of genetic issues. I also have twins. The initial NF US showed one looked great (low NF), while the other is/was a bit small and had the high NF. I am waiting on the 16 weeks US too, to see if they can detect cardiac issues, or maybe twin-to-twin transfusion syndrome.
Has anyone else come across any other possiblities? I hope all is well, but I was given a bit of the "ONE baby may be OK, but the other one is stuffed" at the initial scan which I haven't really recovered from...
My fingers are crossed for you OceanPrincess, and I'd love to hear how you go...
my wife and i have been through this TWICE... first with our 2nd daughter who measured 5.9mm at 12 weeks and came out just fine (she just turned 3 and is quite normal) after a barrage of tests and odd attempts at explanation. but we still believe in the science of it and had the fold measured when my wife got preganant with our 3rd...lo and behold the measurement came back 6.1mm! same battery of tests to be sure, cvs to rule out chromosomal abnormality, lots of very precise ultrasounds (we live in los angeles and have access to some of the best ultrasound 'artists' around) fetal ekgs, genetic testing etc. our son was born feb 5th and, again, he's quite normal. i'd even say both of them are pretty exceptional, but then again they're my kids.
when we first got the high measurement on my daughter almost 4 years ago, the method was somewhat new and there was nothing but bad news on the boards when i went on. but my wife was, is, patient, trusted the science and the idea that THE MEASUREMENT ISN'T A DIAGNOSIS, JUST A SIGN THAT SOMETHING MIGHT BE ABNORMAL. so we stuck it out both times (the second time feeling only a bit less nervous) and got two great kids out of it. i hope all your results come back positive and you have the same luck we have. but it can happen.
as for why the measurements were so high in both of my kids, i'd love an answer too!
Hi
My neice had a very high result for this test. She was told there was definately something wrong with her baby and she should consider termination. She had further tests that were inconclusive but decided to keep the baby.Turned out that he was perfectly normal.I don't think these tests are all they are cracked up to be!
Regards
LisaB.
I am sorry that I didn't see this thread - it is easy to miss threads sometimes - I am sorry Ocean Princess it is frustrating when you don't get replies...
I am hoping that your u/s results have been okay?
Higher than "normal" nuchal fold measurements can be an indicator of chromosomal abnormalities - in the event of "normal" karotyping this can be ruled out.
It also can indicate cardiac problems and due to this babies are monitored closely by u/s.
Sometimes babies just have a big nuchal fold for no reason - just is as it is. I have seen this many many times too. It is just one of the pointers (a big one) to chromosomal abnormalities and as such should not be overlooked or discounted.
lmbmbc: It is inappropriate and I cannot quite digest that your niece would have been offered a termination based on nuchal fold measurement. If a low ratio is returned women are offered invasive testing - either or both cvs and amniocentesis. Nuchal Translucency is a SCREENING test it is not a diagnostic test and as such practices will not offer pregnancy interrruption without definitive diagnosis...
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