Hi all.
Thanks everyone for your insites - I have to say though, I have been getting really confused with all the graves disease terms being thrown around!!...I did reply a little while ago, but it didnt go through Dont know what happened there.
Congratulations Mamaspice, you must be so happy!! I hope it all works out well for you. BTW, I am on Neo-Mecazole (carbimazole) at the moment - only 10ml (2 tablets) daily. Not sure whether I feel better on or off them though.

Glad you are feeling well Jas, and I hope it continues to go well for you.

Bathsheba, I know exactly how you feel. I am always forgetting things, and vague too...really vague. How did you get on at the doctors?? All good I hope.

Hellrazed, I hope all is well after your operation - it sounds as though you had a hard time. Hopefully things will continue to get better for you as time goes on.

As for me, I am reading through your comments about the help you are receiving, and I cant help but wonder if I have the right specialist. He is an endo, but Im not sure if Iam getting the right information. Dont get me wrong, he is a good doctor, but...long story short, my dad had graves when he was in his 20's, he was hospitalised with a heart rate over 190, and dramatic weight loss, he had previously had radioactive iodine treatment and the doctors refused to cut his thyroid out. Apon my mums insistance, they took it out and found it it was much bigger than they first thought - going down, not out. As Im sure you can imagine, I am afraid that this might be happening to me, so I had an ultrasound done, took it to the doc and he said he couldnt tell what was happening without the report (which wasnt with the films) and the only way to know for sure is a radioactive iodine (?) test, which he didnt even give me a referral to have. The reason why I am worried about it growing down, is because i have trouble swallowing sometimes, I choke on my food and I almost always feel it restricting my airways.

Anyway, just wanted to know what everyone's thoughts were on this - any advice or comments welcome!!
BTW, hellrazed, what is a thyroid storm? (or am Ishowing my ignorance to this disease???)