When I had it it started when I couldn't get out of bed as my legs wouldn't work. My mother thought I was been lazy and dragged me out before realising something major was wrong. She described it like I had suddenly gone spastic (in the limb sense) she took me to the hospital and they thought I had a brain tumour. I was airlifted to Campbell town childrens hospital and wasn't diagnosed for a few days (still thought it was a brain tumour)

When my friend had it she had similar symptoms and went to ED. Very quickly she deteriorated and was on life support for 2weeks. She couldn't breath so was ventilated. Eventually she came home to a rehab hospital and spent 6ish months there before going home. But now she is back to her old self (except has the trachie scar) and takes alot of pills.

I am an RN and midwife so although it has been many years since I had it I still lead a pretty normal life now. The worst is the pins and needles and the pain which is actually from long term. I wasn't near this bad to start with. Apparently not every one thats had GBS gets the polyneuropathy afterwards which is what I have. Other then pain I am completely normal, can work in shearing sheds, ride horses and work as a middy.