When I had it it started when I couldn't get out of bed as my legs wouldn't work. My mother thought I was been lazy and dragged me out before realising something major was wrong. She described it like I had suddenly gone spastic (in the limb sense) she took me to the hospital and they thought I had a brain tumour. I was airlifted to Campbell town childrens hospital and wasn't diagnosed for a few days (still thought it was a brain tumour)
When my friend had it she had similar symptoms and went to ED. Very quickly she deteriorated and was on life support for 2weeks. She couldn't breath so was ventilated. Eventually she came home to a rehab hospital and spent 6ish months there before going home. But now she is back to her old self (except has the trachie scar) and takes alot of pills.
I am an RN and midwife so although it has been many years since I had it I still lead a pretty normal life now. The worst is the pins and needles and the pain which is actually from long term. I wasn't near this bad to start with. Apparently not every one thats had GBS gets the polyneuropathy afterwards which is what I have. Other then pain I am completely normal, can work in shearing sheds, ride horses and work as a middy.
Thanks Mildez. She already can't have babies naturally due to endo, so thinking there's a chance this could do permanent damage had me worried. She's already been through alot.
I do remember her saying something about them talking about ms, that was before christmas. Maybe she had the original episode back then & it wasn't so bad, but she is one of those who has relapses?
I'm not sure. Hard to know when you can't ask yourself. But if that's the case, maybe she's past the worst of it.
There was a seperate link to the relapse part of it & I think it had a different name. Will have to have more of a look later.
Clover GBS would have no impact on her fertility. Has it been confirmed she has GBS or something they suspect? You don't usually have a mild case and relapse later on although once you have had it once you can get it again apparently but its very uncommon. Usually at the onset of the illness deterioration is rapid and within 24hrs-48hrs the patient nearly always needs to be ventalated due to it compromising the respiratory system and not been able to breath for yourself. This acute stage usually lasts anywhere from a few days until a few weeks until you can breath on your own and further time to get use of the arms, legs etc. Then physio to gain use of them and muscle tone. The myelin (covering of the nerves) does repair itself and once it does people usually have full mobility again. Just takes time.
No, I know it has nothing to do with her fertility. Those are from endometriosis issues she's had for over 10 years.
As far as I know its been confirmed, & she's booked in for the spinal tap early next week, & they've discussed blood transfusions. I don't really know more than that.
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