hemachromatosis help

[feeb]

But if you have lived in UK between certain years you cant!!!!!!!!!!!! As I have

[MantaRay]

Twinkle, sorry, I didn't even think about the PCOS part. It probably is more of a problem for you than most young females. I think Kate is right - donating blood regularly is the best thing you can do. And make sure you have your iron tested regularly.

ETA - Feeb, if you can't donate blood but your iron levels are high, you can have a procedure in hossy which removes some blood. Just like giving blood actually but the blood isn't reused.

[feeb]

ETA - Feeb, if you can't donate blood but your iron levels are high, you can have a procedure in hossy which removes some blood. Just like giving blood actually but the blood isn't reused.

I did see a physician at st V's and he did tell me to get blood taken off but i have BAD veins and first try the nurse got 30 mls and 2nd time i went they got a professor to take blood and she got it but from veins on upper arm and OUCHY and bruised so badly, they never ever made me more appts, or returened calls when i rang.

When i was preg OB was not concerned and just took some extra bloods to moniter, all was ok

[MantaRay]

That sounds ouchy Feeb.

I found my iron levels dropped a lot during pg and bfing - I even was on one iron supplement a week at the end of my first pg. But as soon as I stopped bfing I could feel the signs of my levels rising.

[feeb]

ohh ok interesting, i wonder what my levels are now as havent had them checked since i was 36 weeks preg!! I am still BF but i am really tired but hard to know if iron, sleep deprivation or what.

When i first found out i didnt know anyone else with it now soooooooooooo many people have it!!! I dont feel like a weirdo anymore!!!

[MantaRay]

I know, it's odd isn't it. I didn't either - and now I know lots of people. The colleague I sat next to at the time I was diagnosed was diagnosed with it a year later. Poor guy hates needles and when I was diagnosed he said "thank goodness that's not me"! And the other day the paed we were seeing for DS1 said she had it too! It must be more common than I realised.

[feeb]

DS is going to hemaology clinic at RCH for appt next week as per our pead to be tested.

[HotI]

But if you have lived in UK between certain years you cant!!!!!!!!!!!! As I have

The Blood bank will still take your blood (if you have haemachromatosis), they just won't use it if you are ineligible to donate for other reasons. You have to get your dr to write a letter and contact the blood bank.