I'm not a mystery anymore LOL (updated 27/11/08)

[Junglemum]

Makes total sense. When you have thyroid Ca they want to get rid of ALL the thyroid tissue. So after her surgery, they would have given her a large-ish dose of RAI to kill off any remaining cells as the thyroid can quite readily grow back. If you have RAI to treat hyperthyroidism, the dose is generally not as high as that. Precautions are still taken of course but not as extreme.

Can i also add........... ticker pic of your little girl is very cute.

[{sarah}]

Okay well we finally have a diagnosis.....

Hashimoto's Disease

My T4 is something like 49 at the moment which is really really bad. I've gone from mildly underactive, to normal when medicated, to highly overactive to now extremely underactive..... So we've now come to the conclusion that I have Hashimotos, plus added to that I had Post-Partum Thyroiditis. How crazy to have a condition cause hypo & hyper thyroidism at the same time!!!

I'm now back on Oroxine, double the original dose i was on last year. I'll have another BT in six weeks then an appointment with the endocrinologist after that. Essentially we're going to have to keep testing every 4-6 weeks until everything stabilises, but she's not sure how long that will take considering in two months I have swung so wildly from one end of the spectrum to the other. But at least we're on the right track now......

[MantaRay]

That's great that you have an answer Sarah. I hope it behaves for you now.

[BellyBelly]

What a relief for you Sarah... being a mystery sucks so much!!! Fingers crossed it's all up from here and you get some results really soon x

[Antheia]

So glad they finally have a diagnosis for you.

[Rouge]

I got your sms when I was at the clinic today and freaked, told the Dr who I was with and she said to tell you its all good and totally managable (its just finding the right treatment etc). Completely put my mind at ease as I was freaking out *just a tad* SO that is GOOD news

[~shazz~]

my husband has this sarah... totally managable ( lol when you remember to take your meds which he forget to do all the time )

[Schmickers]

What a relief it must be to finally put a name to your health problems.

Sounds like you'll be pretty busy managing it, but at least now you'll know what you're managing and be able to put a plan in place.

[Janie]

What a relief Sarah! You know, I have feeling that Hashimoto's is what Bec has? She might be able to give you some advice. (Sorry if I'm wrong Bec!).

Good luck with managing your condition. It sounds as though you ahve a great specialist though