Lupus Anticoagulant

[Ramandeep]

Hello ,
I am surprised and feeling a bit relaxed to find a person having same problem as me. otherwise i could not trace a person to whom i can talk.
i also have 4 year old boy and i concieved 2 times and have miscarriages in 16th and 20th week. now i am planning again to get pregnant with consultation with my doctor. one month prior he gave me asprin and some multivitamins.

what precautions and care should i take so that i have normal pregnancy. Before my son i had a girl child prematurely delivered. she died within 24 hours.............

so i was really worried about my health also but still want another child

[AmandaC]

Hello...

My name is Amanda and I’m new to this site. I'm 23 years old and I’m not pregnant but i have been told that if i do want to carry a child that i need to think about it in the next few years.

At the age of 18 i was diagnosed with a DVT in my left leg. I had been on a pill for 3 months to assist me with the pain i was enduring from my endometriosis. After 3 months i had a very bad pain in my leg but thought it was muscular. It ended up being a very deep clot. I then tested positive for a prothrombin gene mutation, lupus anticoagulant and antiphospholipid syndrome. I have been taking Warfarin to thin my blood since i was 18. I have been tested every 6 month for lupus anticoagulant and it has come back positive and stronger on every occasion.

Looking to the future i have been told that i will not be able to take the warfarin whilst pregnant as it can harm the baby so i will have to inject myself twice a day with clexaine (heparin) for the duration pregnancy. I have also been told I will have an extremely high risk birth if i am able to carry to full term. This is alot of information to digest at 23 and although i'm not quite ready for children, i have always wanted them and will need to sacrifice alot to have them. I am lucky because i know my situation and i can seek expert medical care, others are not so lucky and only find out after they have miscarried that they may have lupus.

I am interested in keeping in contact with any mothers that are going through a similar situation. I would like to hear your stories and any advice you may have for me.

Thanks
Amanda

[EJE]

Hi Amanda

I did not end up needing to take Warfin or Clexane, as it turns out my problem with recurrent MC was a chromosone one with DH, so we ended up having to do IVF with a process called PGD (pre Implantation Genetic Diagnosis)

I do know though that Clexane and asprin has been sucessfully used to assist with preganacies

Sorry I can't be of more assistance.

[angel7799]

hi
in 1999 i lost a little boy at nearly 8mths
and was told i had primary anti-phospholipid antibody syndrome,
ive since been pregnat twice & both times ive lost my little ones
i was put on clexane both times,
the symptoms ive had is my blood clots & my babys

[tiffany]

Hi, I had been diagnosed with lupus anticoagulent and antiphospholipid syndrome in November 07, after I had lost my third pregnancy at 17 weeks. However before any of these losses i managed to have 2 healthy boys. My doctor advised me of what medications to take if I wanted to have any more children. Clexane (heparin) and low dose aspirin. I am now 18 weeks pregnant and everything seems to be going well.
I hope that this is any help

[rlyeesmommy04]

ramandeep,

hello i just found this site and people who have the same thing as i do and am very excited to know more people with this. I have a 4 year boy and afetr him i had 2 miscarriages in one year i was tested and they told me i have lupus anticoagulent, he put me on 4mg of Folic Acid and said that if i was to get pregant again that I would have to take a shot through my whole pregnancy and 6 weeks after the baby was born and I am so scared of needles and so scared, we want a baby so bad.

[renae]

Hi there everyone. I am new to this site and my heart goes out to you all. I am 38yrs, have a beautiful little girl who is 3yrs old. My husband and I desperately want more children and I have had 3 m/c's before finding out that I also have anti-coagulant lupus. My specialist put me on aspirin and 5mg folic acid which I take religiously, however I had another m/c in August. My specialist said she will put me on heparin when I fall pregnant again, am not sure of the dose or for how long. Although the sadness and loss of the other pregnancies are still with me and am really positive and upbeat that next time will be successful. Will keep posting and am glad to be able to share my experience with other women going through the same thing.