Lupus Anticoagulant

[AmandaC]

Hello...

My name is Amanda and I’m new to this site. I'm 23 years old and I’m not pregnant but i have been told that if i do want to carry a child that i need to think about it in the next few years.

At the age of 18 i was diagnosed with a DVT in my left leg. I had been on a pill for 3 months to assist me with the pain i was enduring from my endometriosis. After 3 months i had a very bad pain in my leg but thought it was muscular. It ended up being a very deep clot. I then tested positive for a prothrombin gene mutation, lupus anticoagulant and antiphospholipid syndrome. I have been taking Warfarin to thin my blood since i was 18. I have been tested every 6 month for lupus anticoagulant and it has come back positive and stronger on every occasion.

Looking to the future i have been told that i will not be able to take the warfarin whilst pregnant as it can harm the baby so i will have to inject myself twice a day with clexaine (heparin) for the duration pregnancy. I have also been told I will have an extremely high risk birth if i am able to carry to full term. This is alot of information to digest at 23 and although i'm not quite ready for children, i have always wanted them and will need to sacrifice alot to have them. I am lucky because i know my situation and i can seek expert medical care, others are not so lucky and only find out after they have miscarried that they may have lupus.

I am interested in keeping in contact with any mothers that are going through a similar situation. I would like to hear your stories and any advice you may have for me.

Thanks
Amanda