thread: My Psoriasis Journey

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  1. #1
    morgan78 Guest

    Yael - Oh darl that sounds painful and dreadfully annoying. The itch gets so unbearable sometimes.
    I am hoping the derm will look at UVB treatments as I really want to avoid steriod based creams as not only do they thin the skin over time, but if you stop using them it can cause a rebound flare which is generally worse than normal - not fun!
    Im looking into a moisturiser atm which is made in the UK (am probably going to have to get it from Ebay) called Doublebase which from other sufferers of skin conditions comes highly recommended. One thing I am currently doing is eliminating skin contact with SLS products as they can cause skin reactions, if you dont do this already it might be worth a try.
    Trillian - to you as well, that sounds like a very nasty painful flare. I have been researching mtx and the like, there is a good chance with having the arthritis that that is going to be suggested, but Im still bf and I really really want to make it to 2yrs, that said I know I cant sacrifice my health just to reach that goal as both my children need me to be as active a mother as I can be. Have you had any side effects from it? Thats another concern I have as where I currently live I have absolutely no support network to call on.
    Im not sure if diet changes would work for me, but I know that alcohol and too much sugar and caffiene cause me to flare. Have you used acupuncture at all? From what I have read while it may not clear the p. it can help reduce stress which is a great trigger for it. Any links you have would be great as the more knowledge I have the better I can live with this.
    And yep, found both the US & UK societies, I like the UK better.
    Good luck with the mtx and hope it puts it into remission for you

  2. #2
    Platinum Member. Love a friend xxx

    Mar 2008
    Perth, WA
    1,225

    I feel for you girls.

    I've had skin probs with psoriasis since I was a kid...have scars on my feet from one particularly bad time!

    My scalp is the worst affected place - it cracks and bleeds, freaking disgusting. A restricted diet and NO chemical application whatsoever (shampoos, hair product, hair colour etc etc) has worked for me on my scalp.

    I have a steroid cream for when it flares up on arms (also have scars from it on wrists), hands, fingers etc which seems to work however nothing helps when it flares on my BREASTS. It feels so degrading and makes them ssssssooooooo ugly. Blech!

  3. #3
    Registered User

    Aug 2005
    Melbourne, Victoria
    1,635

    I also get it on my nipples, vagina (especially when pregnant with more discharge).. it is horrible.

    I wanted to add that i am doing meditation/relaxation for another health issue, and it has had really big side benefits for my eczema. My dermo is in fact highly encouraging of this, and says their is documented evidence that meditation improves skin conditions.

    Pro-biotics are another thing that might work. I'm currently part of a probiotic study to prevent allergies/skin conditions in babies. DD is having her 1yr allergy testing tomorrow. But funily enough when i took the HUGE doses (much more than commerically avaliable here), between 36-40 weeks (assuming it was that, problem with skin coniditions is there is so many variables it might not have been, or i might have been on the placebo), but my skin cleared up and i was able to go off the light treatments for 2 months after i had DD.

  4. #4
    Registered User

    Dec 2005
    In Bankworld with Barbara
    14,222

    Morgan, I've not had any side effects from the MTX and my blood work is still normal, so I've had a great response with it. It is possible that it will be suggested to you, but you have to be sure about your future plans for babies too as you cannot fall pg while on it because it will cause birth defects (not might, but will). But I would recommend to anyone to try all other alternatives first before heading down that path because even if you don't get side effects, it does put a heavy burden on your liver and kidneys and it robs your body of folate too

  5. #5
    Registered User

    Jul 2008
    Brisbane
    592

    "Buchu" as a treatment for psoriasis

    Hi Morgan78. Not sure if this is helpful, but a really close family friend used a herb called "Buchu" to treat his psoriasis. It is widely grown, harvested and used in South Africa (where I am from) and it was incredibly effective in treating his condition (had it all over his head and face and it all but disappeared!). By all means persue the medical intervention that you are seeking, but in the meanwhile it may be something you want to consider as a supplement? I imagine the herb would be available in Australia in either tea or tablet form. Perhaps it may be worth a visit to a naturopath to explore these options while you wait for you appointment? Big and I hope you find the right treatment that works for you x

  6. #6
    morgan78 Guest

    Thank you Sambo, Im always interested in hearing about alternative treatments.

    Had my weekly checkup today and the arthritis has now spread from my hands to my feet and I was on antibiotics for bronchitis which has caused my skin to flare April cant arrive quick enough so I can see the specialists.

  7. #7
    Registered User

    Jul 2008
    Brisbane
    592

    Morgan78, so sorry you have had such a bad run and that the arthritis has spread

    Thinking of you and hoping that April comes around really quickly!