Oh TD, what you are going through sounds awful. I am glad you have that appointment booked and I hope you find the answers you need. I can well sympathise with your daytime sleepiness and how it gets totally out of control when the little ones keep you up!
As it happens I am booked in for a sleep study on Friday for suspected Periodic Limb Movement Disorder. I think I have had it all my life but now that I have had perpetual sleep disturbance since the boy was born, I am also really taking strain. I know it isn't the same, but trying to operate when you have have a night of disturbed rest because of little ones AND a medical condition is just the pits . Big - please keep us posted on any developments x
So i went to the sleep physician on Wednesday night.
He is quite certain that i have narcolepsy and wants to assess the degree of it. He has ordered another sleep test as well as a multiple sleep latency test the next day at the Epworth.
He said, with those results he will give me a stimulant drug to keep the brain awake during the day. It will be by trial and error until we hit the right dose, where i will be able to sleep during the night and be quite functionable during the day.
I was so happy. Now i need to organise these tests. My PHI isn't 1 year old yet, so i need forms to be filled be out by the drs otherwise i will need to get the test done at the Alfred.
- please keep us posted on any developments x
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