Hi Everyone,
It's nice to see this thread continues even though there is a lull every now and then. I hope everyone is well and not in any pain!

I was just reading over some of the old posts and realised how far I've come since I started medication. I remember being quite scared to start the medication, but the impact it had on my life was almost instantaneous. Best decision I made.

(T - I can't comment too much on how medication will affect your other conditions. But I can say that the medication is so effective at relieving the pain. Your doctor should be monitoring you closely when and if you start any medication so they should pick up ay problems straight away. I hope you can get some relief without any problems.)

I've been on MXT since before Christmas. I'm now on 20mg once a week and I don't get any side effects from it. I used to feel a bit "hung over" the next day, but that doesn't happen anymore. I'm still on Pred (reducing to 1mg/day tomorrow) and I will hopefully be off that by July. I hate the weight gain and skin problems with Pred. Can't wait to finish it. What I'm worried about is the pain coming back when I do stop it. I do still get some break through pain in my hands and feet (nothing like it was before the medication though), but I'm scared that it will get really bad. BW and Babyjoy, I know that you both have been on Pred. Are either of you on it now? Have either of you stopped and had all the pain return?

My little boy turned 1 in April and is now walking. Stopping breastfeeding didn't effect his relationship with me. He's such a mummy's boy. I love it! Maybe he has some memory of breastfeeding. Who know's! My daughter still asks me if my arms are sore, but it's so lovely to say that I'm fine and can pick her up for a cuddle. The best thing is dancing and jumping around in the loungeroom with both my kids. I was honestly at a point where I thought I would never be able to do that. But we do it most days!

I love reading about how you're all doing. I hope everyone's well.

Rachel