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Thread: Rheumatoid Arthritis

  1. #73

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    Lena, if you were anywhere near me in Sydney I'd have suggested the doctor I saw, afraid that doctors in a completely different country are beyond me! I couldn't even begin to think of where to start looking!

    We had the opposite problem - from five transfers I've had four pregnancies. The challenge was in making them stick! It didn't happen until I got the balance of medications for both my PCOS and my RA right. Sadly, I think that sometimes it is just a matter of continually trying slightly different things until you happen to get the one that works.

    I have to admit that now that I'm nearly 25 weeks, my thoughts are starting to turn to how I'm going to cope with caring for a little person. Are RA flares after birth especially common?

    BW


  2. #74
    LenaB Guest

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    BW - thank you for the info. sounds like you have been through alot with a wonderful outcome! I wish you all the best. Never being pregnant I am not sure about flare ups personally but have heard that the RA often goes into remission and then there can be a bad flare up after the pregnancy due to the changing hormones. I hope that is not the case for you though.
    Thank you again for the info and we will keep trying on this end.
    Lena

  3. #75

    Join Date
    Jun 2005
    Location
    NEWCASTLE
    Posts
    596

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    Hi BW, flare ups after giving birth are like the odds in the lottery. Some do, some don't. Considering my RA was from Bradley's pg (came on when he was about 4-6 months old) i was on an array of meds continually until i TTC with Liam then only clexane. During Liams pg the RA was stable with no flare ups and after the birth i had (from memory) no major flare up. I still get the aches and stiffness when i get cold or it rains but as my specialist said a 2nd pg was either going to make it break it so to speak and i have been on zero meds since Liam was born. My joints in my hands are obviously still fused to a degree from prior to the pg but that is something that will not recover. So i guess for you, its a waiting game. Good luck.

  4. #76

    Join Date
    May 2006
    Location
    Victoria
    Posts
    324

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    Hi ladies
    I am just bumping this thread as I was recently diagnosed with serum negative RA. Symptoms first started late in my pregnancy with Z about 2ish years ago. Luckily at this stage I have not suffered any joint damage.
    The pain and inflamation are primarily in my hands and feet. Last winter was a bit of a shocker, some days I could not go anywhere as I could not do up Z's or my seatbelt in the car or hold the key to lock the door properly. Thank god for summer eh?
    I am taking salizopyrin and am now up to 4 tabs a day. Theoretically working up to 6 tabs a day.
    The main side effects I have noticed are shocking reflux - on Zantac for that now - and terrible terrible sinus problems which have come on full steam since I went from 3 to 4 tabs. Whilst the pain and inflam has decreased since having gone up to 4 meds a day I am getting around like a bear with a sore head most days due to the sinus. And feel like I rattle each step I take due to all of the tablets I am taking!
    The only thing which helps the sinus is sudafed which unfortunately leaves me buzzing at bedtime. I do not sleep the whole night after taking the sudafed so it is counter productive. Have tried pretty much all other over the counter sinus meds to no effect (should buy shares in the pharma companies I think!!)
    I feel stuck between a rock and a hard place - I am not really inclined to try diferent RA meds as DH and I would like to try for another little one in a few months but am worried about heading into another winter with no drugs for the RA.
    Has anyone else suffered this side effect?
    Any thoughts?
    Cheerio
    Belinda

  5. #77

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    Hi Belinda. Serum negative RA can be so hard at times! Like you, I'm fortunate enough to have no joint damage, but it's still so frustrating as they can't tell me what this is and how it's likely to progress in the future.

    I had reflux problems with salazopyrin too - you do get used to it after a while. It's been about four years now, and it's either settled a heap or I've just learned to deal with it. From memory it is important that you don't take the zantac at the same time as the salazopyrin - it will impact on absorption. I think it's something about needing the stomach acids to get through the enteric coating on the tablets. I had horrendous headaches when I first started, but I don't recall having sinus issues with them. We fixed the headaches by going off the drug and weaning on much slower. I don't even recall having sinus issues listed as a side effect, but it's been a long time since I read the drug information!

    If things get bad in winter, keep in mind that you can add prednisone in to help without effecting things with TTC and pregnancy like NSAIDs will.

    BW

  6. #78

    Join Date
    Jun 2005
    Location
    NEWCASTLE
    Posts
    596

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    Hi Belinda,
    From memory...and it was a while back now.... I was on 2 salazopyrin morning and night and don't recall having an sight effects like sinus. As that didn't work i went on array of steroids too but thats another story.
    I hope it starts to settle down soon for you. As i said a page back or so, my 2nd pg helped me alot and at this point (touch wood and in the future) i am on no medications at all.

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