I just joined belly baby today and thought I would share my story. My DH and were ttc for 4 months the first time we conceived which is in nov 07 but miscarried at 5 1/2 weeks. We were told we could start trying again after my next cycle. So we did and didn't conceive until June 08 but again miscarried at 5 1/2 weeks. I was told this was normal but didn't want to believe it. I pushed for test to be done and finally got my referral after being diagnosed with a bicorunate uterus.
So I made an appointment with Sydney IVF as they also do miscarriage management. My first appointment again I was told miscarriages are normal which doesn't help. Anyway the doc sent me for ultrasounds and blood tests.
All my blood test came back normal besides one for blood clotting and that was a low positive which they doc said is okay and wouldn't be the reason for my miscarriages. However my ultrasound showed that I had a subseptate uterus.
So the doc booked me in for surgery two days later and I had a laparoscopy and hysteroscopy to remove the septum. I was told my tubes & ovaries were normal and that my uterus wasn't bicorunate. They removed the septum and now I am just about finished the recovery stage.
I am due for a follow up appointment on Wednesday as I am waiting on a few more results from some chromosome blood tests.
Just wondering if anybody else has had septum removed after miscarriages and gone onto having a successful pregnancy? Need a bit of hope as I scared of having another miscarriage.
Hi there Tam
I don't have any advice for you, hopefully some of the other lovely ladies here will, but just wanted to wish you all the best on your ttc journey and hope all turns out well for you!
Take care
xx
I don't have a subseptate uterus, but I read up a bit about the physiology of the uterus when I found out that I have a retroverted uterus. From what I read, the subseptate uterus is when the two tubes that form the uterus as an embryo do not completely fuse and there is a section of "wall" (the septum) that remains and causes the heart-shape that is usually described for the subseptate uterus.
The length and size of the septum can vary greatly and usually the bigger it is the more problems it can cause. A septum can be so small that it causes no problems at all. A bigger septum can cause problems though. If the baby implants on a septum it unfortunately usually miscarries. If the septum is quite large it can cause premature labour because the uterus cannot stretch as much as usual. And the baby can often be breech because it can't turn as easily.
If you recently had your septum removed I would assume that it was big enough that the doctor thought that it might cause problems for you either conceiving, or carrying to full term. I'm not really sure whether the removal of the septum means that there should now be no problems associated with your subseptate uterus, but I really really hope so
I'm very sorry about your losses and I hope that you heal really quickly and that your continued TTC journey is a short one. Good luck!!!
I am so sorry for your losses I am in a similar situation to you, however my hubbie and I are not actively TTC yet. I found out by accident that I have either a Bicornuate Uterus or a Septate Uterus (ultrasounds for other reasons) as well as one kidney - apparently this can go hand-in-hand.
I am leaving the laparoscopy and hysteroscopy until next year as my Gyn wants me to be ready to start TTC immediately afterwards. I think this due to the fact that if its a septum and it is removed (which is pretty likely according to my gyn), it can grow back within 12 months or so.
I too would also love to hear any success stories after having a septum removed. It is constantly on my mind and get upset at times thinking that I will not be able to conceive and be a mother
It is nice to hear that I am not the only one on this planet that is like me - somedays I feel like a bit of a congenital weirdo!!
I to have a subseptate uterus the septum almost divides my uterus in half, I have already had a sucessful pregnancy and she stayed in there for 41 weeks :-)
I havent had the septum removed, apparetly DD just pushed it over...
Good luck with ttcing hope it happens for you soon!
I have also had 2 miscarriages due to having a supseptate uteris, I lost both my babys at 12 weeks, the first on 2nd february 2008 and then again on june 3rd 2008.
I also got told it was normal and to keep trying but I knew deep down something wasn't right so I went to a private gynie and all it took was a scan for them to tell me I had a supseptate uteris, when I had already had 2 scans in my pregnancy's but they never picked it up.
I had the operation to remove the septum 5 weeks ago so within the next few days I can try again but yes I'm very scared of haveing another loss but it's worth a try I just really hope that it all works out.
It get's hard mentally that's for sure especially when people who havn't experienced miscarriage at all tell you that it was for the best there was probably something wrong with it and it's mother nature takieing it's course, you'll get over it and all this stuff they have no idea about and it's them people that make the whole experience so much worse just by talking sh...t! I wish people would keep there comments to themselves unless they know what they're talking about.
I really hope things work out for you!
Last edited by Jussara; April 14th, 2009 at 01:00 PM.
I am so sorry for all of the losses of beautiful angel babies.
But I wanted to post to say that there is hope
I have a septate uterus, it was discovered at my first scan, when I was about 7-8 weeks, it looked like there were two sacks, but DD had implanted on the wall of the uterus, not part of the septate, so we were pretty right and my OB had said that it would stretch during pregnancy.
I also had an amniotic band, but it was far enough away from the edge that DD's legs could kinda hung over it, I even have 3D scan pictures showing this
One of the more common, risks is also preterm labour, for me that did occur at 33 weeks, and due to a fast progression of labour it was not able to be stopped so I delivered, but am very lucky to have a healthy bub.
I will probably make an appointment with my OB prior to TTC'ing again to see how the uterus has contracted and see what it looks like, and go through the risks.
I doubt we would consider removing the septate unless we encounter problems with future pregnancies.
Just thought I'd add my experience so far... I had a miscarriage (1st pregnancy) in June this year that wasn't picked up until the 12 week scan (no heartbeat, 8 week size), and at the same time they said my uterus had a 'subseptate appearance'.
When I went to have the D&C a doctor there advised me to see a particular specialist about the septum as she said there was a 80-90% chance of miscarriage with this condition! My GP sent me for a referral but she was not keen on the idea of surgery much. But I was convinced that was what I should do after reading up online. Then when I saw one of the specialists, he said some people get it done, some people don't, miscarriages are very common anyway..blah blah. Totally not what I was expecting to hear. Anyway, I got put on a waiting list in July, as I didn't have private health insurance, just to have the hysteroscopy and then it would only be from there that he would know whether surgery was necessary or not.
So basically after the consultation with this doctor I decided while I was on a 4-6 month(!) waiting list, I would just 'see what happens' in the meantime... The doctor didn't have a problem with that.
So here I am, 8 weeks pregnant again and hoping for good news but obviously just taking one day at a time. Fully aware it could end the same way, but then again it might not, and if I waited all that time on the waiting list (in the grand scheme of things not really that long I know!) only to find out surgery wasn't even needed...!? My GP this time didn't seem too worried either.
Reading stories of successful pregnancies with septums has been encouraging!
I have a scan in a couple of days to see if I've at least got further than I did last time, trying not to get excited, just fingers crossed...
Thank you for sharing your experiences and your reply. I've had 2 m/c this year and they recently discovered the septate on an u/s. I'm booked in for testing soon, but like you, on waiting lists... (how frustrating.) I too will be looking into surgery as the results are so positive after, but will also be trying again while on the waiting list for that!
Fingers crossed for you XOX please let me know how you go, sending you plenty of baby dust, .....~\_(^_^)_/~.....
Summer X
P.S. If any other ladies have updated info on their experiences please share... it seems noone writes back after they have the op..... hopefully that means all went well after??....
These stories seem similar to mine ... we have been TTC for four months and in that time had two early miscarriages. I have found out I have a subseptate uterus, the septate looks like an inverted pyramid and seems to be taking up a hell of a lot of real estate - I can't imagine how a baby could fit!
My specialist has told me a couple of things:
1. it is rare to have this operated on, as it can be very risky and rupture the uterus (she said the operation is probably only performed three times per year at RPA to give me perspective)
2. lots of people have a normal pregnancy with a subseptate uterus
3. it may not have caused the miscarriages anyhow
But this is different to what the doctor who performer the test this week said (he told me he thought it was so large it would need operating). Another friend who is pregnant told her doctor and his first comment was 'is she having the operation' as if it is the most normal thing in the world
I am totally confused - based on what I have read on forums plenty of people have had this operation, it is a basic day surgery and it greatly improves the chances of a normal pregnancy. I feel like the specialist thinks I am a drama queen who reads the internet too much and should just keep trying. Any advice would be appreciated. Including specialists in Sydney who perform this procedure. Much thanks.
2 Miscarriages - Subseptate uterus
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